Reference ranges for blood levels versus symptoms - Thyroid UK

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Reference ranges for blood levels versus symptoms

muddledme profile image
5 Replies

Why do Doctors dwell mostly on exact ranges for thyroid results and not symptoms ?

My TSH is often raised but not enough for the G.P. I feel the cold, always tired, cholesterol of 8 despite excellent diet, low ferritin and family history of hypothyroid..

I had persistent headaches with low dose Thyroxin (the Magnesium stearate filler) after a few weeks about 10 years ago. Herbal medicine seemed to help. I have not bothered the G.P for years except for an annual TSH. It is only 4.75 now but some of the reference ranges show this as marginal, and it has been 7.5.

I was prescribed Statins without having seen the G.P and without a current TSH.

Apparently Statins are not well tolerated with Hypothyroidism and due to multiple allergies I declined them.

I have been given oral iron as the ferritin was 22.

I feel no one is really listening , the GP was unaware of a link between Thyroid disease and Ferritin levels and uninterested in my diet or symptoms.

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muddledme
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5 Replies
greygoose profile image
greygoose

Lack of education. The medical 'industry' in just not interested in thyroid problems, so there is little training on it in med school. All they know is to keep the TSH somewhere in range. Anything more complicated completely stumps them.

They also have no training at all in nutrition, so your doctor really wouldn't know about the thyroid/iron connection. Nor, come to that, the cholesterol/thyroid connection.

I don't suppose he's ever tested your FT3, but if he did, it would probably be rather low. And that would be why your cholesterol is high. Cholesterol levels have next to nothing to do with diet. It is made in the liver. And the more you consume, the less the liver makes. And, the less you consume, the more the liver makes. However, when T3 is low, the body cannot process cholesterol well, and it builds up in the blood. If the T3 rises, the cholesterol levels will decrease. It's not just that statins aren't well tolerated when hypo, it's more that you just don't need them! Nor do you need all the side-effects! Cholesterol does not cause heart attacks or strokes. :)

SlowDragon profile image
SlowDragonAdministrator

Suggest you get full Thyroid and vitamin testing

Have you ever had antibodies tested?

What about vitamin D, folate and B12?

FT3 and FT4 tested?

If antibodies are high this is Hashimoto's also called autoimmune thyroid disease

For full Thyroid evaluation you need TSH, FT4, FT3 plus TPO and TG thyroid antibodies and also very important to test vitamin D, folate, ferritin and B12

Low vitamin levels are EXTREMELY common when hypothyroid

Why were you only on low dose Levothyroxine 10 years ago. Low dose is frequently counterproductive. It just shuts your own production down but doesn't give enough replacement

Majority of patients need slow steady increase in dose, typically to some where between 100mcg and 200mcg Levothyroxine

cks.nice.org.uk/hypothyroid...

Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies or vitamins

thyroiduk.org.uk/tuk/testin...

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have money off offers.

All thyroid tests should ideally be done as early as possible in morning and fasting.

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, GP will be unaware)

If antibodies are high this is Hashimoto's, (also known by medics here in UK more commonly as autoimmune thyroid disease).

About 90% of all hypothyroidism in Uk is due to Hashimoto's. Low vitamins are especially common with Hashimoto's. Food intolerances are very common too, especially gluten. So it's important to get TPO and TG thyroid antibodies tested at least once .

Link about thyroid blood tests

thyroiduk.org/tuk/testing/t...

Link about antibodies and Hashimoto's

thyroiduk.org.uk/tuk/about_...

thyroiduk.org.uk/tuk/about_...

List of hypothyroid symptoms

thyroiduk.org.uk/tuk/about_...

As you rightly say high cholesterol is linked to being hypothyroid

nhs.uk/conditions/statins/c...

Come back with new post once you have results and ranges and members can advise on next steps

muddledme profile image
muddledme in reply toSlowDragon

Thank you so much for all the advice. My thyroid antibody test was negative in 2012.

B12, Serum Folate both normal now. I was advised to return for repeat bloods in 6 weeks so I can ask for the other tests.

Unfortunately after 6 weeks of Levothyroxine I had constant headaches which I always seem to have with tablets containing stearates.

I have multiple drug allergies since Drug induced Lupus about 18 yrs ago.

SlowDragon profile image
SlowDragonAdministrator in reply tomuddledme

There are several different brands of Levothyroxine

All have different fillers.

List including fillers

thyroiduk.org.uk/tuk/treatm...

Many/most patients find different brands are not interchangeable, and many only tolerate one brand

Some patients have to have liquid Levothyroxine (more expensive so GP reluctant to prescribe) if can't tolerate any of the tablets

You can have Hashimoto's (autoimmune thyroid disease) and still have low antibodies

heyhashi.org/hashimotos-low...

As you have Lupus which is autoimmune, it's very likely hypothyroidism is due to autoimmune thyroid

Ask for ultrasound scan of thyroid, this can confirm diagnosis in absence of antibodies

Always get actual results and ranges on all blood test results, especially vitamins

Within range is not necessarily optimal.

Vitamin D - at least around 80nmol

B12 and folate towards top of range

Ferritin at least half way in range

Lupus and vitamin D

vitamindcouncil.org/health-...

Lupus and gluten

ard.bmj.com/content/63/11/1501

amymyersmd.com/2018/04/3-re...

lupusnewstoday.com/2016/10/...

glutenfreesociety.org/glute...

muddledme profile image
muddledme

Thank you for your helpful comments, explains why the G.P not interested in symptoms.

He was also uninterested in family history of hypothyroidism, I know this disease is often inherited as I was a practice nurse for years. Also was often shocked by the lack of interest and sometimes dangerous actions of a few G.Ps. This was 21yrs ago and I was also lucky to work with some excellent Doctors.

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