For a very long time I have been looking around to help myself to move forward in understanding my thyroid disorder so I hope that this makes sense (especially to my two tutors)! I think there might or could be a link between my raised Ferritin and some family members including my mother who died in 1951 at the age of 41 with "auricular fibrillation". I have spent the last few days trying to evidence this but I am afraid my increasing brain fog might mean that I am simply "over the rainbow"! This (as many of my friends here will know) it is identified as "too much iron" or perhaps better as hereditary haemochromatosis. I have looked at several podcasts about this and reviewed some (what I think) are relevant sources.
My cousin this afternoon identified a few family members who might have had the relevant gene mutations from one parent or even two parents but, of course, this is not yet confirmed. An overload of iron causes seems to cause havoc in the whole body just as thyroid disorders do; in fact it could be mooted that they are inextricably interwined one with the other.
One gentleman I viewed earlier today spoke about being regarded as his friends and family as "always complaining". However, after a long journey trying to find what was wrong with him, his efforts concluded in a very unexpected but wonderful "end game"! He and his brother both carried the gene mutation from both sides of their family which meant they were "carriers" too! DNA tests were performed and showed that there was evidence of this in the next generation!
I think someone here said that you must "listen to your own body" and I am trying to do this now although I might be hearing a lot of junk! (Sorry)! However, I think now that my use of Sertraline combined with Statins initially was an error, i.e. I tried to look at my past medical history which seemed to support this new revelation.
I think that I will now try to find out my own DNA so any help in this connection will be much appreciated.
Apologies for this rambling post but I thought I might try to consult Prof. Tort on my own behalf to get his views on my present situation. I see that some of our colleagues has done this already. Any help here will also be appreciated. The other person I thought of was Dr Karen Adamson. Both of these experts are in Edinburgh.
One of several sources I consulted was "Investigation of a raised ferritin result" found at: intranet/departs/Haematolog.... If I was OK I would be able to tell everyone more about things here but brain fog, memory loss, joint and muscle pain, wobbly legs et al prevents it.
Thanks to everyone for all their support and kindness.
PS. I am going to get a copy of Dr Skinner's book and others.
victoria99,
I have Hashimotos, and Haemochromotosis (iron overload) which is a genetic condition where my body can not get rid of excess iron. The two easy identifiers are high ferritin and high transferrin saturation.
The term Haemochromatosis encompasses at least four types of genetic iron overload conditions, most of them recently distinguished from one another as a result of the identification of a series of genes related to iron metabolism.
There is a genetic test the National Health will do to identify if you have a mutated gene. You need to get your GP to refer you to a Haemotologist. Your GP may not know about Haemochromotosis (my GP didn't) so make sure you arm yourself with some literature.
Be aware that ferritin can raise through inflammation or an infection and if you have Hashi, inflammation is common.
Treatment is fortnightly/monthly theraputic phlebotomy until iron levels drop. My Hemo likes both my ferritin and transferrin saturation levels around 50, and I now feel well.
There is a HU forum for Haemochromotosis but not many members. The best support I found was through Haemochromatosis UK (link below).
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Haemochromotosis UK
haemochromatosis.org.uk
Haemochromotosis Genetics.
hemochromatosishelp.com/wp-...
Thank you Radd for your reply to my ramblings. Simply, your response to me totally accords with the work I have done over the past few days and what I have found. I could say that you might have been "walking and guiding me" in my journey. Enough said. I really appreciate your help here which is much appreciated by me and my husband. As far as literature is concerned I am now sure that I have more than enough evidence for my own GP. I have downloaded a fair bit of information already from your "other" society.
As I have remarked before this forum might be described as an all-encompassing refuge.
Thanks for your kindness and support here Radd.