I'm a newbie and unsure if my novel is allowed, please let me know if it's not or its posted in the wrong forum etc...
I've been very ill for over twenty years and I'm 42 now.
I was tested for thyroid issues twenty years ago and told it wasn't my thyroid. I never looked at it again and eventually, though reluctantly accepted Fibromyalgia amongst other diagnoses.
My mother has virtually the same symptoms as I have although she's partially bald now and 17 years older than I am, but we are estranged and don't speak to one another so we couldn't have known each other's symptoms, we only discovered our common symptoms last year due to a family matter over my autistic nephew (sorry the mental health diagnosis is constantly hovering over me so I'm always quick to say it's not psychological!).
With the exception of severe hot flushes I've had classic hyperthyroid symptoms for decades, but of late I have gained a little weight.
My throat is permanently swollen now and my new GP sent me for basic bloods (FHS and T4) which were pretty much bang in the middle of the scale.
My GP has put me on 60mg of propranolol a day which is a God send in honesty and sumatriptan which I'm taking like smarties (my mum gets huge doses of Botox for her migraines as well as masses of sumatriptan but it's still not enough)
I'm desperate and broke as I'm passing out constantly now with severe upper kidney pain amongst other symptoms like enduring migraine, vomiting, hot flushing 24/7, muscle aches, tremors, spasm, hair loss, severe throat issues, earache, tinnitus and allergy etc and the financial impact on us is huge now, as a family we're at breaking point.
All that said, we have scrapped enough money together so I can see a specialist privately but I'm terrified I'll spend the money and still end up without any answers and I'm looking for any reviews from anyone who has seen a professional that's helped especially when their NHS bloods were normal, ideally in and around London and home countries, I'll travel to France if need be.
So sorry for the novel, I'm feeling very alone in all of this as folks are beginning to think it's psychosomatic given that the only problems on my bloods are low B12 and eosinophils.
Thank you all so so much. Mel