Hi folks, not been on for a while, my doc has finally given me iron tablets I’m on 322mg of ferrous fumerate a day, I’m definitely feeling just tired now and not exhausted, still ha e a lot of other symptoms though.
What I was wondering is if I was to source my own medication and just say I felt better and my thyroid levels were good would I still need all the supplements I take now or would the medication for thyroid then balance these out?
I’ve also been suffering with hormonal acne and told at 38 that I might be peri menopausal, no treatment given, my mum didn’t get this till around 45 and I’m slightly concerned as I don’t have any children yet.
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SLM81
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Have you have a thyroid blood test? Testing TSH, T3 & T4.
I was diagnosed with Hashimotos by a private endo and no matter what I did vitamin wise I didn’t improve, in fact I went down hill fast. When I asked to be started on Levothyroxine he said it would make me worse.
Once he told me that, I started to do my own research and came across this forum. I should of been on Levothyroxine
To cut a long story short I got worse and my GP tested my TSH from that results I was started on Levothyroxine immediately.
Levothyroxine didn’t help so I now self medicate with NDT and a small amount of Levothyroxine.
Vitamins play an important role in supporting the thyroid and I still take them, but if you have a thyroid problem you will need to take some form of thyroid medication for life.
GP’s have a habit of saying that your results are normal, what they mean is they are within the lab ranges and this means nothing.
Best to obtain your results from your GP (official copies)
Yes I’ve got a swinging TSH between 2-4.8 my tpo antibodies were 109 (I’ve been taking selenium to try and lower them but haven’t had bloods done since) which we all seem to know mean hashimotos but the docs don’t want to give me meds until my thyroid is completely broken which is madness! I just wondered if I did decide to self medicate if they would still be needed or my thyroid would help with that. She also wouldn’t test me for sibo, bloods to be tested again in October. I’m not sure if I should see a functional practitioner first to sort my gut issues out before trying to source NDT myself. Have you been taking it long? X
I would suggest going completely and strictly gluten free this may help reduce your antibodies sometimes going dairy free as well.
Vitamins support the thyroid, I still take those along with my NDT.
Many including myself have experienced that until your TSH reaches 10 or above the NHS will not step in with treatment of Levothyroxine, madness I know.
I saw a nutritionist and it did help, but, very expensive and in the end I desperately needed thyroid medication.
If you buy the book, Isabella Wentz Hashimotos protocol this may help.
As you have Hashimoto's are you on strictly gluten free diet?
Hashimoto's affects the gut and leads to low stomach acid and then low vitamin levels
Low vitamin levels affect Thyroid hormone working
Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten. Dairy is second most common.
According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps, sometimes significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)
Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies
While still eating high gluten diet ask GP for coeliac blood test first or buy test online for under £20, just to rule it out first
Assuming test is negative you can immediately go on strictly gluten free diet
(If test is positive you will need to remain on high gluten diet until endoscopy, maximum 6 weeks wait officially)
Trying gluten free diet for 3-6 months. If no noticeable improvement then reintroduce gluten and see if symptoms get worse
suggest you get retested privately once your iron levels are improved
For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also extremely important to test vitamin D, folate, ferritin and B12
Low vitamin levels are extremely common, especially if Thyroid antibodies are raised
Have you had vitamin D tested?
B12 in previous post was low
No folate result
Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and fasting. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)
Is this how you do your tests?
Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies or all vitamins
Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have special offers, Medichecks usually have offers on Thursdays, Blue Horizon its more random
In summary, whereas it is not yet clear whether a gluten free diet can prevent autoimmune diseases, it is worth mentioning that HT patients with or without CD benefit from a diet low in gluten as far as the progression and the potential disease complications are concerned
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