Who agrees with my endo? (throws grenade...)

[Laundretta]

The endo has kindly copied me into the letter he sent to my GP. I had asked for full copies of the blood test results. That'll be another phone call on Monday then, because it'll be useful to see what effect my supplements have had on levels.

Long story short, my tsh is 1.6. (See biog for full most up to date results) He's upped my dose from 100 mcg levo to 100 with an additional 25 twice a week. So 7mcg extra per day. In your collective experience, is this likely to have much impact at all?

To be fair to him, he was lovely and listened to my symptoms without reference to blood ranges etc and I left the appointment feeling he had my best interests at heart, and I have a follow up in 8 weeks, so presumably there is more scope to adjust.

I had done my own TFT before the appointment which showed that my FT4 and FT3 have actually improved. (again, numbers in biog) However I had a very unusually sedentary 2 months over the summer due to being floored with the effects of lack of b12, and I wonder if that is the main cause of those levels going up. The conversion ratio is about the same at c. 1:4.5

Its really hard to gauge what's going well when there seem to be multiple sets of goalposts and they're all bloody moving!

[SlowDragon Administrator]

Be interesting to see how your vitamin levels have improved

Are you on strictly gluten free diet? If not that's likely next step

Your FT3 is too low.

But FT4 at top of range

You may need 125mcg Levothyroxine per day....but that likely to push FT4 over range.

Or addition of small dose of T3....

[Laundretta in reply to SlowDragon]

That is exactly what I thought, pleased with myself, feel I’m getting to grips with understanding. TPO has come down since supplementing - from 212 to 130 in 2 months. I’m not gluten free. Gluten light perhaps. It’s last on my list to try. I can get t4 OTC in Spain whenever I’m there, so if the endo isn’t open to the extremes of Dr. Tofts advice I’ll play with my dose and see if I can resolve all the bugs that way. Gluten free would come next unless the endo offers me t3 on a plate (as if!)

Thanks for all your help

[silverfox7]

I managed to correct my conversion issue by just getting Vit D, B12, folate and ferritin optimal. 2 were pretty low. I retested 5 months later and it had been sorted. I don't have antibodies though so whether that made it easier to do I don't know.