Ndt: Hi I’ve just had a raise in NDT from 1 1/... - Thyroid UK

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flo-jo100 profile image
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Hi I’ve just had a raise in NDT from 1 1/2 grains to 1 3/4 grains I’m on day 12 and feel awful! I take it will take longer to kick in.

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flo-jo100 profile image
flo-jo100
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18 Replies
greygoose profile image
greygoose

I don't see why it should take longer to kick in. How did you feel on 1 1/2 grains? Are you sure you really needed an increase?

flo-jo100 profile image
flo-jo100 in reply togreygoose

Didn’t feel good on 1 1/2 nor on 2 so I was reduced to 1 3/4. My tsh 3.91 (0.5-5.0) t4 9.7 (9-22) t3 3.1 (2.30-510). I had also been on bioidentical hormones for 2 months but stopped them as too much going on with the thyroid wanted to sort this out furst

greygoose profile image
greygoose in reply toflo-jo100

What were you taking when those labs were done? Because whatever it was, you were under-medicated. Your FT3 isn't even mid-range, so not surprising you don't feel good.

Have you had your vit D, vit B12, folate and ferritin tested?

flo-jo100 profile image
flo-jo100 in reply togreygoose

I’d been on 2 grains for 2 weeks then seemed to go hyper but I think I caught a virus. I was dropped down to 1 1/2 for 2 weeks now been raised to 1 3/4

greygoose profile image
greygoose in reply toflo-jo100

Well, that was silly, because on 2 grains you were obviously under-medicated. What do you mean by 'going hyper'?

flo-jo100 profile image
flo-jo100 in reply togreygoose

I had palpitations heat flashes but I realise now it was a virus I thought maybe I’d gone up too quickly as well

greygoose profile image
greygoose in reply toflo-jo100

Palpitations can be hypo symptoms, as can hot flushes. But the blood test results were telling you you were under-medicated. How quickly did you go up? With NDT, we can increase by a quarter grain every two weeks.

In any case, the problem now will be that you are even more under-medicated, so need to get your dose back up. Have you had the tests I asked about?

How do you take your NDT? Do you take it on an empty stomach and wait one hour before eating or drinking anything other than water? And leave at least two hours before taking any other medications or supplements - some of them four hours?

flo-jo100 profile image
flo-jo100 in reply togreygoose

I was on /1/2 grains for 3 months then went to 2 grains. My vit d is good my b12 was ok 6 months ago. Yes I take it on empty stomach twice a day. Endo wants me on 3 weeks this dose then I can go up again

flo-jo100 profile image
flo-jo100 in reply toflo-jo100

I’ll ask if I can raise at 2 weeks

flo-jo100 profile image
flo-jo100 in reply togreygoose

Hi again that blood test was taken when I had been on 2 grains for 2 weeks then I dropped down to 1 1/2 for 2 weeks should I raise still to 2 grains?

greygoose profile image
greygoose in reply toflo-jo100

Yes, raise it to 2 grains now. Your endo doesn't really know what he's doing, does he. Is he a diabetes specialist?

flo-jo100 profile image
flo-jo100 in reply togreygoose

No hormones and thyroid specialist supposedly! When would you suggest next blood test? Thanks again for all your help

flo-jo100 profile image
flo-jo100 in reply togreygoose

Just to make sure I explained that right I’d done 2 weeks on 2 grains then 2 weeks on 1 1/2 then I had the blood test

greygoose profile image
greygoose in reply toflo-jo100

Yes, I understood. :) But, you were under-medicated on two grains. So, go back to two grains, and in two or three weeks increase by a quarter grain, and see how that makes you feel.

flo-jo100 profile image
flo-jo100 in reply togreygoose

Thank you

greygoose profile image
greygoose in reply toflo-jo100

You're welcome. :)

flo-jo100 profile image
flo-jo100 in reply togreygoose

Thank you

flo-jo100 profile image
flo-jo100

Am I ok raising day 13 I’m not going to wait for my endo as she wanted me to do 3 weeks

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