Latest test results - am I 'cured'? : Hey... - Thyroid UK

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Latest test results - am I 'cured'?

Moomoocow profile image
5 Replies

Hey everyone.

I'd really appreciate if you could look over and comment on my latest test results taken on Monday please? I'm currently on 25mg of Levo, nothing else, and have been since 1st July this year.

My Thyroglobulin antibody on 28th June was 640 (0.00 - 115.00) and TSH was 6.71 (0.27 - 4.20). On Monday they were Thyroglobulin 158 (0.00 - 115.00) and TSH 1.96 (0.27 - 4.20). I didn't have the Ultra test at the end of June so I didn't have the hematology or biochemistry results so I'd really appreciate your help in what I should highlight to my doctor next week based on the attached?

My symptoms are all still apparent but not as pronounced as in June/July (although we were right in the middle of a huge heatwave then - don't know if that has a bearing on anything) however my goiter has got much worse and I constantly feel like i have a proverbial 'frog in my throat'.

I'm assuming that my doc would be loathe to increase my Levo. Would it be a possibility that I may have to fight to stay on my current small dose?

Any other input/ammo you can help me with will, as always, be very much appreciated. I'm a long way from feeling myself, despite what these test results may indicate.

Thanks for reading (and replying!)

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Moomoocow
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5 Replies

Cured of what? You still have Hashimotos (autoimmune thyroid disease) and will always have it, but you won't always have symptoms. Your folate and ferritin are too low. Your TSH is a bit high and your thyroid hormones a bit too low (for most people). If it was me, I'd ask for a 25mcg increase in levo. NHS guidelines say that TSH should be between 0.2 and 2, so there is room for an increase, and 50mcg is the standard starter dose for an adult.

Moomoocow profile image
Moomoocow in reply toAngel_of_the_North

Thanks for your reply. I guess sarcasm doesn’t come across well by typing. I know I’m not cured (and there is no cure) but my idiot doctor who took a year, three TSH tests and my first Medichecks test to begrudgingly put me on 25mg ‘for a while’ will probably want to stop my medication.

I want a referral to my private medical insurance for my goitre which hasn’t happened yet. So I need to have enough ammo to be treated for my condition and symptoms, not my test results or the doctors notion that I’m peri menopausal, ‘depressed’ and should just eat Prozac and HRT.

I have an appointment on Monday and I’m really scared this is what I’m going to hear, again. 😞

Angel_of_the_North profile image
Angel_of_the_North in reply toMoomoocow

How can "depression" cause a goitre? You could threaten to sue if goitre interferes with breathing and eating, and you need emergency surgery because you weren't treated. I can't see why GP won't give you a referral.

Moomoocow profile image
Moomoocow in reply toAngel_of_the_North

My GP actually prodded my throat asking me ‘What’s that?’ and then noted I had a ‘sore throat’ on my notes despite me vehemently denying that was it. I was then prescribed OTC ibuprofen to ‘help with the pain’.

I’m seriously upset and demoralised. Every single time I’ve visited my GP in the past year or so I’ve been fobbed off despite providing proof of my condition. I’ve pleaded, begged, demanded, cried, asked nicely and shouted to no avail. I just get the party line of ‘you are menopausal. Here is HRT’ followed by ‘You’re depressed. Here is Prozac’

Angel_of_the_North profile image
Angel_of_the_North in reply toMoomoocow

Go to A&E or the walk in centre and tell them you can't swallow or breathe easily because of a swelling in your neck.

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