Hi all. Thank you to this group for all the help and advice that you give us. This morning I had an endocrinologist appointment and it went so well. Essentially the endocrinologist I saw agreed that I have issues converting T4 to T3 and levothyroxine alone was keeping my THS and FT4 levels at optimum but my T3 level was too low. This has been a long and gruelling journey to get to this point and I’m so happy right now but could also cry. I gave up my job and was diagnosed and treated for ME/ CFS. The last few years have almost broken me at times but this group has had a massive impact on me. Thank you again.
I have been taking metavive II for the last few months, have changed to a strictly gluten free diet and take a range of supplements and feel so much better. My endocrinologist said that he would be willing to prescribe me T3 to go alongside Levothyroxine/T4 but that it might not be as cost effective as the metavive that I’m currently taking. Putting the money issue aside, i’m not sure if I should stick with metavive or trial T4/T3. Has anyone else experienced this? I’d be grateful for any advice from this fantastic group.
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Emma
That's a difficult one.
Metavive ll has a set amount of hormone - although they can't guarantee the hormone content as it's a glandular, it's safe to assume that whatever the hormone content is then it suits you well.
Synthetic Levo plus T3 gives greater flexibility for tweaking doses to get the perfect combination for you.
If you feel well on Metavive ll it might be better to stick with it.
I assume your endo wont prescribe T3 on the NHS but wants you to fund it yourself?
You might want to compare cost of Metavive to Levo plus T3, and factor in that you have to start with guessing the amounts you will need and work towards getting the perfect dose.
Considering the cost, and difficulty getting T3 - and bear in mind that after we leave the EU we are unlikely to be able to send prescriptions for T3 to Germany as at present - Metavive might be the way to go.
Thank you Susie. I am inclined to agree that since I feel well on metavive and it is relatively inexpensive that it might be best to stick with it. However, the chance to tweak the T3 to T4 ratio sounds good too. For now I’m being re-tested for TSH, T3 and T4 to see what my actual hormone levels are now I feel better and the endocrinologist said we could go from there. Thank you again.