Wondering what's happening

[Zeph43]

I wonder if anyone has ay thoughts about my situation. Last October my TSH was 4.2, My Levo dose was increased to 125mg and TSH was at .011. (0.27 - 4.2) Felt good with that. Then in June I started to get some ectopic heartbeats and upset stomach, poorer sleep, so was retested and TSH .07. Dr suggested reducing levo back to 100mg. Retested last week and TSH now 1.19. Now getting a lot more ectopic heartbeats especially when tired.

It's interesting/puzzling because previously a rise of 25mg led to a difference of 3 or 4 in the TSH. This time the difference is only about 1. The only thing that I have changed over the last year was to bring my Vitamin D up to 150. Of course the Dr never tests for T4 or T3 if the TSH is in range. Just wondering if I need to get a private full test to compare with last years.

Any thoughts?

[LAHs]

Don't worry about TSH, reduce your dose to the point where you are not experiencing heart irregularities. If your heart was OK on your original dose but you felt OK although not completely fit (even if your TSH was high) return to that. If you want to increase your dose pick the lower dose which was OK, and the one which gives you palps and go to the center of those two doses and try that. If you still get palps at that "center" dose then halve that again (the original + center dose divided by 2), and keep doing this until you have eliminated the heart irregularities. You might find that the original dose was fine except that your TSH was high, don't worry about the level of TSH, your heart takes precedence.

[Mollie2]

Hi Zeph, I have serious doubts as to the safety of Levo. It is generic, get onto a brand name med. The quality fluctuates with generics. Look it up. I had this.

[helvella Administrator Thyroid UK in reply to Mollie2]

Not relevant to the UK.

We have four makes of levothyroxine. All are clearly identifiable. None is an anonymous "generic". Mind, so far as I am aware, it is usually easy enough to identify all levothyroxine tablets. There aren't any that are just little tablets where you cannot find the maker, ingredients, etc.

[Angel_of_the_North]

You get palpitations from undermedication as well as over, esp low T3. I suspect your free T3 is now too low.

[Zeph43 in reply to Angel_of_the_North]

Thanks for that, yes i originally had them when i was taking too much Levo. I think I am going to get another private test done to include the full range, although getting the doctor to understand the results, or even accept them might be a problem, as the last time they retested themselves after having private bloods done.