He said at the moment I have a slightly underactive thyroid but is not going to treat me at the moment because of my AF. He also said because I have thyroiditis there's a chance my thyroid my go overactive. So he's going to keep an eye on me by having my blood checked every six months. Well yippee!
Finally seen the thyriod specialist : He said at... - Thyroid UK
Finally seen the thyriod specialist
Written by
Burlingham
To view profiles and participate in discussions please or .
Read more about...
48 Replies
•
A low thyroid level could be exacerbating your Af. Does he realize that?
Obviously not. Thanks something for me to be aware of
You cannot be slightly under active - you either are or you are not. So what results do you have that confirm being slightly under active.
Reading your post of two months ago members were requesting your results and also offering excellent advice - far better than any given by your Endo.
How was thyroiditis diagnosed ?
Unfortunately, Marz, because of utterly ridiculous guide lines across the UK a person can be very under active with many symptoms but it will not be recognised until their TSH has reached a certain level. GPS interpret these as they wish and it is a scandal that leaves many patients without medication. I would suggest that it is the most poorly managed of all chronic diseases across the world. Burlingham is probably in that category but unless recent blood tests are posted, we are all guessing....
Yes I agree but I have seen postings from Admin with quotes showing otherwise. In the presence of anti-bodies etc ... the reaching 10 Guideline is not appropriate. Hence Burlingham has been asked before about anti-bodies. At least members would be able to explain the results - if only we could see them 
I was merely emphasising the point in my own way hoping it would prompt OP to follow the advice given by members in her previous posts and replies.
• in reply toMarz
Exactly right if only.
Hennerton’s obviously not spotted the gazillion posts you’ve written here, Marz
Quite agree. Sorry, I hadn’t. Head bowed in shame, Marz and Jazz and maybe we shall soon get some results from Burlingham.
No quarreling on here! I've order copy of blood test taken 1st August will try to put the on here. Not been successful in the past.
Suggest you put results on a new post
You can only add one photo per post
Will try when I pick up my results Wednesday
Not quarrelling Burlingham, promise. Was just amused.
All I know thyroiditis showed up in a blood test.
With a blood test. Put about this before.Asked the doctor how was my blood test they said fine so asked for a copy of them instead got a letter saying I needed to see the doctor. That's when he told me I had thyrioditist. I asked what symptoms does it cause and he just shrugged and said he refer me to specialist. You now know as much as me.
Those are the results you need to obtain - the ones that showed Thyroiditis. Ask your surgery for copies. There is no test for Thyroiditis as far as I know - so it could be the anti-body TPO test that was done.
Burlingham , please ask for a copy of your blood test results. It’s your legal right to have them and then you can keep your own records, post them here for comment, etc. With thyroid issues, you’ll find you can be on your own with insisting on getting optimal treatment but many of us here have managed it (eventually...). Don’t be fobbed off. Knowledge is power.
Just had some blood test done will get these and post
healthunlocked.com/thyroidu...
The above link takes you to your post of 10 months ago with lots of advice from SlowDragon regarding having the correct testing - especially the anti-bodies. Having raised anti-bodies would explain your fluctuating results you mention and could cause an inflamed thyroid. Have you had an Ultrasound done of the Thyroid ?
Have you had confirmation yet about your arthritis - as I read you were not sure if if was Osteo or RA. If it is the latter I am sure you know it is auto-immune - which could also mean your Thyroid condition is also auto-immune.
I definitely have osteoporosis. But no markers for RA. So the RA specialist signed me off, but said would see me again if symptoms worsening. I know all I have can be put down to auto immune probs. Going to see specialist for hip replacement but that could be my back. Have requested today copy of blood results for thyriod. But don't know if I will be able to up load on here. Some one on here told me to take but d for bone which I do now and have seen an improvement.
You need more than VitD for bones - how much are you taking ? VitD improves the uptake of Calcium from foods so you need also to take Magnesium and VitK2-MK7. This was explained to you by SlowDragon in an earlier post/thread of yours. VitK2-MK7 directs calcium away from the arteries and into the bones and teeth. SlowDragon gave you lots of links to read about bones ...
drmyhill.co.uk/wiki/Osteopo...
As SlowDragon mentioned the Magnesium will also help you AF. Osteoporosis is a lifestyle condition in many cases - so getting the thyroid right would be helpful in supporting your bones along with every other cell in your body.
How is your gut ? Most conditions start with the health of your gut ...
Had trouble with my gut before the thyroid trouble reared it's head again. Had cameras which did show I had had an infection but by the time I got N appointment my body had sorted it out itself. Still have probs but just take buscapan. My daughter is starting with most of my symptoms but won't go to doctors I'd now trying vitamins magnesium. B bits different ones etc.
As a said early I'm at a stage where my thyroid is fluctuating and I have posted results on here in the passed.
healthunlocked.com/thyroidu...
The link above may help others to see the advice already given. I have re-read the thread and there are no results there with ranges - just lots of support.
Hi. Presume AF = atrial fibrillation - An irregular and fast heart rate. Does anyone know if it can also be irregular and slow?
Yes that's often classic Hashimoto's often, especially with low vitamins and/or gluten intolerance
Low Magnesium and low vitamin D often go together
Thank you.
SlowDragonAdministrator
10 months ago post
healthunlocked.com/thyroidu...
This says you have low vitamin D but were not supplementing
Have you been supplementing at all since? Or had level retested?
Magnesium is frequently low with low vitamin D
Magnesium is very important for controlling heart rate
Aiming to improve vitamin D to around 100nmol. Vitamin D mouth spray by Better You is good as avoids poor gut function. Suggest you supplement for 2-3 months and retest. It's trial and error what dose each person needs. Once you Improve level, very likely you will need on going maintenance dose to keep it there. Retesting twice yearly via vitamindtest.org.uk
Also read up on importance of magnesium and vitamin K2 Mk7 supplements when taking vitamin D
betterbones.com/bone-nutrit...
articles.mercola.com/sites/...
healthy-holistic-living.com...
articles.mercola.com/sites/...
betterbones.com/bone-nutrit...
easy-immune-health.com/magn...
naturalnews.com/038286_magn...
You do not ever seem to have had thyroid antibodies tested?
As others have said fluctuating TSH is very often autoimmune thyroid disease
Hi. By "mouth spray by Better You is good as avoids poor gut function" do you mean vit d tablets can cause poor gut function, or if you have poor gut function you don't absorb vit d from tablets?
Poor gut function common hypothyroid problem, often due to low stomach acid
Mouth spray vitamin supplements avoid this issue
Better You make several. Vitamin D, B12 and new introduction .....iron
Thanks Slowdragon. Just been discussing this with a friend, and up pops all your links!
Insist on being treated l went for years not treated l have Hashimoto Thydroritus they did not tell me until l was so ill then they panicked
and told me l had been subclinical but the damage was done Instemic heart decease and plethora of autoimmune chronic conditions
If you saw s picture of my face when it was full blown all classic symptoms moon face no eyebrows
SCalloped tounge hair falling out
Menegorra and couldn’t loose weight , miscarriages
They put my extreme fatigue to children and my job
Insist on being treated
He said he's going to keep an eye on me but he said at the moment I could go either way. Hyper or hypo. I have had hyperthyroidism twice in the past and so have six of my immediate family. Dad, brothers and sisters. Have tried to up load photo of some blood test but they're not my current ones. Will ask for them and try and post on here.
Please read up on Hashimotos - auto-immune Thyroid - the most common thyroid condition globally. With Hashimotos you can swing from HYPER to HYPO and back again - as many on this Forum do ... it's possible family members also have Hashi's ...
I have hashis but have never really swung either way was on Levo for years, very suppressed Tsh very rarely did it go up? But still felt hypo?
So how was your FT3 ? - that's the test that matters if feeling hypo ...
Don't know till I gety results Wednesday
My Reply was to Joanneconnor about the T3
It was always quite low then steadily rose over a few years
Read up on this before and thought it could be the sort I have.
Ooh - sorry - how were you treated when you were Hyper ?
I was treated with levo nothing else
Even when my t3 went slightly over range eventually I felt hypo 😩
The question was for Burlingham 😊
First time treated with thyroxin and carbminsol ( don't know how to spell it)
2 Nd time just with carbiminisol.
You really must get your results from GP from those times to see what was tested. Were you treated by an Endo or just your GP ? It is possible you had Hashimotos and Graves or just Hashimotos. That is why you need to know which anti-bodies were tested. Ring the surgery tell them what you want and say you will be in to collect in a couple of days. Time to take control
- your health your body !
Istanbul time just go. Next time specialist. Said it was Graves. Rest of the family had goiter Derbyshire neck and 3 have had thyriod op.
Sorry your reply above does not make sense to me here in Crete. Are you in Istanbul ? 😎
SlowDragonAdministrator
Burlingham
You need full testing, including tests for Graves
Private testing for suspected Graves - TSI or TRab antibodies
medichecks.com/thyroid-func...
For full Thyroid evaluation you need TSH, FT4, TT4, FT3 plus TPO and TG thyroid antibodies and also very important to test vitamin D, folate, ferritin and B12
Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies or vitamins
thyroiduk.org.uk/tuk/testin...
Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have money off offers.
Not what you're looking for?
You may also like...
Finally diagnosed with thyroid disease
Finally I attended my long awaited endocrine appointment at the hospital . And a big thank you to...
Consultant physician (not endo specialist) diagnosed CFS without my agreement!
My diagnosis from the Consultant physician who said TSH test is THE MOST accurate test for thyroid...
Thyriod
Hi I have been diagnosed with under active thyroid I have been given levothyroxine 50mg to try...
Thyroid Cancer Finally Confirmed
OK, so after finding my nodule in November and being messed about for nearly a year because my old...
Seen Endo yesterday, USELESS !!
TSH 0.87 (range 0.35-4.94)
FT4 (range 9.0-19.0)
I was diagnosed 8 months ago hypo with TSH of...
Well, I had my first appointment with the endo today.... and the conclusion he came to was...... (wait for it)
thyroid results finally! from my gp!
Finally Got Iron and Vit D Tested but Endo Backtracking. Opinions?
