Hi guys this post is for my dear and very uninformed friend who is very exhausted all the time and was prescribed to take 225-250 Levo T4 as she was too low, this is what usually happens, up down /up down levels in each test, constantly exhausted
Could she be absorbing or reacting to the T4 badly? or be possibly reacting to it badly as she has used it for many years
I have have suggested NDT which she is very interested in trialling and i have spoke great stuff about this forum, as it has helped me to wit my issues but for now here are her blood results
To add: Also she has the usual other blood tests (which i can post) and it was just the blood sugar the doctor brought up along with the thyroid levels being high
Thyroid levels are not high, so what was he talking about? I'd want to know B12, folate and ferritin as less than optimal levels of those can cause symptoms. Also eating more fat and fewer carbs to stabilize blood sugar (but it takes time)
Graves disease? yes the levels are high but so is her dosage 200-225 T4 Levo
The T4 user is taking a high dose of thyroid hormone as she is Hypo for many years and her levels always fluctuate
her dosages have varied but she has felt exhausted and is sleeping far too much as of late
She is seeking more in depth blood tests on her B12, iron ferratin, which weren't done by her lousy GP, so she is getting these done asap and I will update
Also she is going to trial NDT, reason being its free and her body may react to it better, also as there my be a possibility of the regular T4 synthetic meds not being effective or the body reaction is not desirable which is common
hi, did you see that i said she was taking too much T4 at present? she has now reduced them
i understand hypo and hyper (i am borderline hypo so trialed NDT low dose and trialing T4 100mcg at present) T4 for me seems to be working ok for just now, the T3 component in NDT started giving me regular palpitations at low as 1 grain)
she used to take less but her levels were not right so GP as usual increases meds, the latest test reveals these levels, clearly the T4 isnt working even though her levels are too high, thus other bloods and possibly meds are needed
she is getting also other crucial bloods that have been missed
this is exactly what i said the antibody level of 26. thank you for noticing this
she is going to see another doctor especially with the recent bloods and other tests that are needed. i strongly recommended she sees an experienced endo as GPs are very ignorant to complex thyroid issues
is it also a possibility the T4 levo can be causing this antibody level raised against her thyroid gland (by resistance or a reaction?) if thats what it is and would a medication change possibly change this
i understand she went full hypo a long time ago. so her thyroid failing further or having issue is causing this reaction
like you said peoples lives had transformed on NDT
i have that to hand and can start it and start the weaning away from T4. i have the conversion charts so should be fine. i did explain its gradual because of the t3 element and can take several weeks to get the dose near correct as well as feeling well again
ok super info. i appreciate your help i wont see people suffer in silence. i am wise to these conditions but we almost have to force the doctors to help almost
i find many of the older doctors trained overseas in the 60's and 70's and 80's are absolutely useless. so ignorant
younger doctors seem so much smarter and open to condition variations (not always)
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