Hoping to find suppliers of T3 or NDT in the UK - Thyroid UK

Thyroid UK

139,071 members163,215 posts

Hoping to find suppliers of T3 or NDT in the UK

RaggedyA profile image
4 Replies

Hi, I'm new here, and so pleased to have found a supportive site, but dismayed to see so many of us are in the same situation regarding NDT.

I've been on levothyroxine for 10 years. It seems to have brought my T4 levels to 'within the normal range', but I'm still overweight, have IBS, severe anxiety, brain fog... and so on, in short, nothing much has changed in a decade.

My GP won't prescribe NDT as it's against the guidelines in the East Midlands.

I am desperate, but wary of buying from abroad as not sure how to check I'd be getting the genuine article. Is there anyone who's found a reliable supplier? If so, please share! A nurse at my surgery said another patient has bought it online and within two months it has changed her life. But she can't share more details. I understand why, but it's SO frustrating.

Help!

Written by
RaggedyA profile image
RaggedyA
To view profiles and participate in discussions please or .
Read more about...

The ability to reply to this post has been turned off.

4 Replies
humanbean profile image
humanbean

Anyone who sells T3 or NDT without prescription in the UK is breaking the law, and on that basis I wouldn't trust them. But you can buy it online and import it into the UK quite legally. You might have to pay VAT and admin fees to import it though, although not if you buy it from the EU. What happens after Brexit is anyone's guess.

I can understand why you are wary. But if you ask for reliable suppliers from abroad you should get some replies. I'm not up-to-date on the places that T3 can be bought, but I know people are still doing so.

RaggedyA profile image
RaggedyA in reply to humanbean

Wow - that was a quick reply!

Thank you humanbean, I look forward to getting the info on trusted suppliers abroad.

There are so many ‘ad-on problems’ associated with hypothyroidism that it would probably cost the nhs less in the long run to provide NDT than the repeat prescriptions for antidepressants, buscopan, sleeping pills, sumatriptan etc that are happily dished out to me on a monthly basis, and all put down to my thyroid - hey ho!

I’ll be moving to a new town before the end of the year. I feel I should trawl all the GP surgeries to see if any prescribe it... but I don’t have the energy 😯. Maybe it’ll return enough when the heatwave passes. I LoVe autumn, winter and spring!

Merw profile image
Merw in reply to RaggedyA

If you get anywhere with ndt I’d be interested in update - I too am in East Midlands and have a rubbish time with doctors- paid privately to see endo in Sheffield who will prescribe t3 at a cost but to be honest doesn’t seem to be doing a lot for me - I’m a decade down the line and feeling worse by the yr, hope you find an answer and get the support at your new doctors/area

shaws profile image
shawsAdministrator

I will close your post for answers on the forum. Those members who source their own NDT or T3 will respond by Private Message as no information is permitted on the open forum.

Doctors used to prescribe NDT - in use since 1892. Due, I believe, to persuasion by Big Pharma that levo was best. Most on this forum found levo was not the best for them.

They also used to prescribe T3 - that has also been withdrawn due to suppliers increasing it by 6,000%.

Also the BTA did not do any favours when the published an article with False Statements about it:

One of our Advisers wrote the follow to both organisations the following and despite three yearly reminders for a response they never did and Dr Lowe died through an accident.

thyroidscience.com/Criticis...

The ability to reply to this post has been turned off.

You may also like...

T3/NDT prescriptions UK

eg T3 or NDT prescribed by a senior endocrinologist can you have it dispensed locally please? -...

Hope, T3, NDT, Hashimoto’s and determination...

are the facts (please see earlier posts for my most recent bloods): Started on 2grains NDT...

Up to date NDT supplier queyry

on ordering NDT. Please Pm me if you have any good advice or reliable supplier/ reliable names ....

T3 Thybon Henning from UK Pharmacy Supplier

prescription filled, but have now found a pharmacy here My endocrinologist gave me details of a...

NDT supplier?

refuse to prescribe necessary NDT. thailand supplies gone & am desperate, full body edema well...