NDT supplier: Hi, I only have 4 days of Thyroid S... - Thyroid UK

Thyroid UK

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NDT supplier

handbag99 profile image
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Hi, I only have 4 days of Thyroid S left-ordered weeks ago from usual supplier but now saying can’t get hold of any. Could someone private message me suppliers I could try please?

I am on 4 grains daily-if I reduce down to 1 or 2 per day in an attempt to make it last then add some Levo that I had leftover, would this be ok? TIA X

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handbag99 profile image
handbag99
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26 Replies

I´m afraid all suppliers are currently out of stock. I have a friend on Thyroid-S and everyone says the same thing: they have not received any supplies for months and don´t know when they will. Production stopped back in March/April and only recently resumed. Hospitals and pharmacies in Thailand will be restocked before they start shipping to suppliers abroad. I honestly think you need to consider switching to a T3 + T4 combo (or consider a supplement such as Metavive).

handbag99 profile image
handbag99 in reply to

Thanks for reply-where would I get t3 from? Is Metavive thyroxine?

in reply tohandbag99

T3 you get either from a doctor (if you can find one to prescribe it which seems very difficult in the UK plus it´s very expensive there compared to other countries) or order it online yourself without a prescription (you´d have to ask for sources to be sent to you by private message only).

Metavive is a supplement available both as a porcine and a bovine version. Just google it and you´ll find it as there is only one supplier. It´s manufactured in the UK and shipped from there.

genesurf profile image
genesurf in reply to

I used to take Levoxyl (T4, or levothyroxine) once daily plus low-dose Cytomel (T3, or liothyronine) twice daily. I like NDT better, but this combo worked okay.

Levoxyl by itself wasn't enough. I guess I don't have the genes or the system for a good enough T4 to T3 conversion.

handbag99 profile image
handbag99 in reply togenesurf

Thank you-where do you get t3 from? Would you be able to private message me? X

genesurf profile image
genesurf in reply tohandbag99

My dr gave me a prescription at my request (he wasn't happy about it though), and I filled it at the pharmacy. The pharmacy had to order it in, it wasn't usually stocked.

I figured out the equivalent dosages from charts online, so I was able to ask him for the specific T4 and T3 dosages. He wouldn't have known what strengths to prescribe otherwise. And then I had blood tests to make sure the dosages worked.

handbag99 profile image
handbag99 in reply togenesurf

Thank you!

genesurf profile image
genesurf in reply tohandbag99

I hope it all works out for you. :-) I took it a long time ago.

in reply togenesurf

I think that´s how it works for many of us...that is, that levo only is not enough.

It´s a shame what´s happened to practically all brands of NDT...after all the problems with US brands and Erfa, which are also very expensive, many switched to cost-effective Thai brands, only to end up without options when two of them were discontinued and the last remaining one ended up unavailable...plus Thyroid-S is also very expensive nowadays. There are two new brands of Asian NDT (Tru Thyroid from Thailand and Real Thyroid from Vietnam), but reviews unfortunately are not that good.

genesurf profile image
genesurf in reply to

naturethroid.com/

The Naturethroid website shows how much T4 and T3 are in their tablets.

1 Grain (65 mg) has 38 mcg T4 and 9 mcg T3.

waveylines profile image
waveylines

You can still obtain ndt products. However Westhroid & WP have been withdrawn by the manufacturers due to potency issues. Naturethroid is not currently available -reason not known. Cant comment on thyroid s but other ndt products are available.

handbag99 profile image
handbag99 in reply towaveylines

Thanks for reply-what are the other products that are available & where would I get them from please? X

waveylines profile image
waveylines in reply tohandbag99

Its against the rules to name sources. Have pm you.

nelliemac profile image
nelliemac in reply towaveylines

Hi, can you pm me also. Would be appreciated x

in reply tohandbag99

Just a word of advice: there have been a lot of problems with prescription brands of NDT. They are all reported to be problematic and many reported to work less well nowadays. Plus they are very expensive. So I think it would be wise to ask for advice here before ordering any US brands (even if you can find suppliers not requiring a prescription).

waveylines profile image
waveylines in reply to

I know STTM have condemmed a lot of them now but am not sure its as wide spread as they allege. Ive been fine on Acella NP which is one they have said has changed. I did have a couple of pots that tasted a bit funny but the efficacy was the same for me at least. Armour they say is still ok. So have taken what they have said with a pinch of salt so far.....

I definately do not want to return to levothyroxine which did not work very effectively no matter how high the dose!!

in reply towaveylines

This is a newsletter I received this week, from a T3- and NDT-friendly doctor:

restartmed.com/wp-thyroid-0...

waveylines profile image
waveylines in reply to

Yes those two ndts have been recalled but not the others.

Acella NP has not been recalled in the uk. I talked to my uk nhs pharmacist. She said they dont recall for such minimal difference. I was told the tiny slightly higher dose would not affect me. She was right. Ive been fine. It wasnt all batches either.

in reply towaveylines

Yes, but the article highlights the facts that something has happened to all brands of NDT. Also, it would seem Armour is not really the best, but rather "the least bad"...it´s also by far the most expensive brand of NDT.

waveylines profile image
waveylines in reply to

There is no evidence that ALL brands of ndt are affected! The doctor even mentions in the article you sent that there are other brands of ndt. Armour did have problems years ago when it altered the filler (which affected me) but it has reformulated back which the article also mentions. I havent tried it since it did this as am happy on the one I take. Armour is expensive though your right!! Lol.... people suit different brands of ndt for a variety of reasons, the fillers, the degree of compaction of the tablet, the method used to release the thyroid tablets active ingredients (often not mentioned) as well as the combination of active thyroid ingredients. A nhs pharmacist spent sometime rxplaining this to me -cant remeber all the technical details am afraid.

NDT production has also been affected by the shortage of thyroid powder as half the stock of pigs in China was wiped out. This has affected availability of thyroid powder which shot up in price & consequently so have ndt tablets.

in reply towaveylines

I don´t think that Armour has been reformulated back nor is that what this article is saying. It´s saying that it has not been reformulated for several years (so it would seem the last known reformulation was back in 2009 when more cellulose was added). It then goes on to say that Armour is not the best option which would confirm that what is available is still the reformulated version that has been around since 2009 and is not as good as "old" Armour...maybe only slightly less bad than the other brands of NDT. But "less bad" does not necessarily mean "the best", especially if it costs several thousands of pounds per year.

Where is your proof that Armour "has been reformulated back"? That would be of great interest for those who did great on old Armour, then went downhill after the reformulation.

If someone wants to switch from Thai NDT (which until recently was very cheap) to a very expensive brand of US NDT, at least I think they should be aware of reported problems and complaints.

waveylines profile image
waveylines in reply to

Ah well that was said on SSTM.....probably shouldnt have gone on that if Armour are saying this isnt true? .....STTM said it was the lower dose tablets

It certainly is not all NDTs! Where is your evidence for that?

I agree there has been frustratingly a lot of problem in recent years which has driven me mad......heyho....but it isnt all ndts. Currently two have been withdrawn , one has stopped production and with the Thailand brands two have stopped production because of new regulations that their government brought in so the one remaining one is in scarce supply and very expensive. In other countries you caln also get compounded ndts but sadly not in the uk. The uk medics would like us all on levothyroxine!!

in reply towaveylines

Well, I maintain that all prescription brands of NDT have been reported to be problematic. We just read about a recent recall, and at least Armour and Naturethroid have been reformulated and reported to work less well since (and not just on the STTM). There have been posts (here and elsewhere) about Erfa working less well now as well. I have never seen anything about Armour being reformulated back, and would be interested in links to that statement on the STTM. It would be even more interesting if the manufacturer had confirmed that.

waveylines profile image
waveylines in reply to

Purplecat71 I am not saying there hasnt been a problem with ndts -there has - I agree! I have had to switch several times over the years because of it. I an only disputing the allegation of ALL. I just cannot explain why Im doing well on my ndt Acella when the only report of minor superpotency did not affect me at all just as the uk nhs pharmacist said. I think we need more scientific evidence of what has gone on with those that have failed.

Its very sad to see so many ndts drop for one reason or another - how convenient for big pharma who have found them a thorn in their side for years. Am not prepared to add weight to the big pharmas push that would have only their synthetics available........and once that happens we can look forward to levothyroxine price shooting up like the Liothyonine already has. I tried the synthetic combination it was better then levo on its own but it did not work nearly as well as a good ndt. I much preferred Armour to that. We are all different. I only ask that we dont shoot the ndts down completely unless we have concrete hard scientific evidence. Currently we don't have that for ALL NDTS. Lets not help big Pharma get rid of its competition!!

Below is the linkbto the Acella NP Thyroid batches of recall. It is only some not all. Only affected two of my pots which the pharmacist said I was fine to continue to take as the potencys was only very very slightly higher.

fda.gov/safety/recalls-mark...

in reply towaveylines

The intention of my reply to the OP was to make her aware of reported recent problems re all if not most brands of NDT before ordering something for hundreds of pounds. That´s why I recommended she get advice from others on the least problematic brands as long as Thyroid-S remains out of stock.

This is not about helping Big Pharma get rid of competition...this is about having an open discussion about problems encountered. As far as I know, many brands of T4 have been recalled over the years, and some are reported to be more problematic than others (Teva, Lévothyrox in France, most recently Euthyrox after it was reformulated to include mannitol). Several brands of T3 are also reported to work less well, so it´s not a problem limited to NDT. But something has definitely happened in recent years, and I think it´s important to discuss it, especially if someone asks for advice on which brand(s) to choose.

I have seen so many crazy rumours over the years (on various websites and forums) and I don´t think it helps our credibility to spread them. Among those are the statement that the FDA shut down production of Thai NDT (when it seems the reason was that two out of three manufacturers would not pay the extra cost linked to the licensing system imposed by the Thai government), that "Big Pharma" forced Forest (the then mfg of Armour) to reformulate it to make it less effective so that people would be forced to use levo instead (but then, new US brands without cellulose appeared), that the problems with Erfa were also caused by the FDA interfering...when the problems seem to be linked to a change of production facilities. And so on and so on.

waveylines profile image
waveylines in reply to

I think we are largely on the same page. 😊 And a discussion is great -Im all for that. Am just not in favour of blanket statements for the reasons you have just outlined. Acella NP Thyroid notified some batch numbers as being faulty. My uk pharmacist had been notified but told me the problem on those batches was extremely minor well below the level the nhs would withdraw the medication. Why Acella have had to do this in the usa I dont know but theyve clearly had to. Seems harsh.

Apologies to handbag99 for taking over the post.

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