Angry at registrar and other things

[CameTheDay]

Just got off the phone from the ent registrar, chasing up results. He said all my results, the full suite, were 'fine', some were 'low but fine'. The thing is i have no confidence in him, as he was clearly out of his comfort zone last week when I was asking him about TT4. I'm going to the GP tomorrow to try and get a print out so I can post on here.

I'm still exhausted Daily, despite sleeping well, and need naps throughout the day. I'm also finding it hard to concentrate, which mean returning to work is impossible. I had been told I'd be put up to 175mcg levo but, on the basis of my results, they were now keeping me at 100. When I pressed about the exhaustion I was told to ask the onc when I have my appt for RAI.

I intend on booking an appt and demanding it's with the consultant next week, and ask whether he treats test results or people. I feel utterly depressed, as the idea of carrying feeling this wiped out terrifies me. Sorry for the rant.

[thyroidorwhat]

When did you have them done? When I'm waiting for hospital results it takes weeks for them to reach my GP surgery, annoyingly. Fingers crossed though.

And what does low but fine mean?! It's low, or it isn't!

I despair.

[CameTheDay in reply to thyroidorwhat]

Had the test done on Friday, and the ent secretary reckons it's on the system and available to the gp. If it isn't I'll have to wait to see the consultant. Ah well, keeps me off the streets!

[StillEverHopeful]

I so feel for you.

I too hate the idea of feeling like this for life. It’s like trying to get to the top of the down escalator, almost at the top and then it speeds up and your somewhere near the beginning again.

[CameTheDay in reply to StillEverHopeful]

My daughter asked to go for a bike ride a while ago, and I had to say no. I'm a big ugly fella and it's got me welling up. God knows what the summer holidays will be like, as I have the RAI in the middle of it. I'm in recovery, so I can't even have a couple of drinks to cheer me up!

[StillEverHopeful in reply to CameTheDay]

That’s tough! On an up note I know someone who has been through the same treatment as you when children were young and is now full of energy. I so hope you get your energy back soon. I’ve thought about an electric bike but not looked at costs..

After frustrating gp appointment today my husband has declared I am a cat in disguise - fine so long as I have a nice sunny spot to snooze for 23 hours a day.

Now have referral to the local Endo’s all 10 of them specialising in diabetes!!

[CameTheDay in reply to StillEverHopeful]

Brilliant, hope it goes well for you. Naps are excellent!