Perfect storm.....: Is it possible that there’s a... - Thyroid UK

Thyroid UK

137,647 members161,423 posts

Perfect storm.....

Icicles profile image
8 Replies

Is it possible that there’s a moment when, having started NDT, TSH has come down a bit, T3 has hardly moved at all...........so weight starts to go up? Even more?

Written by
Icicles profile image
Icicles
To view profiles and participate in discussions please or .
Read more about...
8 Replies
Jazzw profile image
Jazzw

Are you still only on 1 grain a day? Because if so, you’re almost certainly undermedicated.

Icicles profile image
Icicles in reply to Jazzw

I’ve been on 2 grains per day for three weeks.

shaws profile image
shawsAdministrator in reply to Icicles

It has probably taken many, many months for the thyroid gland to gradually not produce sufficient hormones. Therefore it can take a while to build up again. I shall give you a list of clinical symptoms and you can tick off the ones that are relieved and you probably still have quite a few to be resolved.

thyroiduk.org.uk/tuk/about_...

Icicles profile image
Icicles in reply to shaws

Thank you, Shaws, it’s good to look at that again. There are one or two which have lessened, but on the whole, no, almost everything is still a problem and I’m impatient! I’m glad that I found this forum which lead to some great advice and support, which lead to me finding someone who would prescribe. I’ll gratefully stick with it!

shaws profile image
shawsAdministrator in reply to Icicles

Do you take one daily dose or split it.

Icicles profile image
Icicles in reply to shaws

I started as prescribed, splitting it, but I’m afraid to say that having had a Eustachian tube problem, I was advised to take some sudafed, and it was impossible to split the dose and take more than 1 or 2 doses of sudafed, and supplements, and eat and work, so I just started taking it all when I woke up at around 5 or 6, go back to bed for an hour and then get up for work. I don’t feel any real difference, my pulse and temperature still fairly low, no spikes when the dose increased 3 weeks ago, no spikes just after I’ve taken it all in one go.

I just feel so despondent when I see my weight is going up, and I know that you always say not to diet because it affects the take up of T3, but I really didn’t expect my weight to increase!

Thank you for your time, I think I know the answer...patience!

Icicles profile image
Icicles in reply to shaws

I’ve just read your post about hormones, and a friend (I’m grateful to this forum for meeting her) has been gently reminding me to address hormone things. My GP has been suggesting hormone replacement (rather than consider my thyroid) but I resist the idea because I fear endometrial repercussions. I’m going to try talking about transdermal treatment and possibly testosterone with GP.

That’s a great post, Shaws!

Icicles profile image
Icicles in reply to Jazzw

thank you jazzw, I realise that I am impatient and the scales are driving me mad! I’ll stay off them and ask my endo for an increase in the next few weeks 🙂

You may also like...

Thyrotoxicosis/Thyroid storm

hypothyrodism. Doc prescribed 200mg Eltroxin to start and lowered dose over a month to 150mg. I...

Is Levothyroxine Always Perfect?

doctors almost always condemn NDT as an inferior alternative even though it has successfully been...

’Perfect’ bloods but gaining weight and feeling rubbish

meds have stopped working. I have been steadily gaining weight (6kg in 6 months, which is more...

Blood test results..perfect but still feel dreadful.

late evening but as soon as I take levo next a.m.probs start again in about an hour..downhill all...

Could it be the start of a thyroid storm?

overactive I was on 20mg for 6 weeks my levels barely moved, then endo purs me on 40mg that very...