I have used NDT (Erfa Thyroid) for over 10 years. Suddenly this year I have had nasty hyper symptoms, but labs are normal. I have insomnia, heart papls, shaky hands etc. I tried to lower my dose but it made me have hypo AND hyper symptoms! Also my labs are too low if I lower my dose. So that is not a solution.
I think I am maybe getting too much T3 from my NDT? I have tried to be a couple of days without Erfa every now and then, and I always feel better, less hyper, on those days! I am thinking about changing to T4 only but I'm afraid it will make me hypo. Most patients I know tell me T4 only is not working for anyone so I'm scared to even try it
I am a Grave's patient and have hypo because of RAI treatment I had back in 2006. My antibodies are normal.
Did any of you switch from NDT to synthetic T4 only med? Why? How did it work out for you?