NDT making me feel hyper?: I have used NDT (Erfa... - Thyroid UK

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NDT making me feel hyper?

Domomo profile image
2 Replies

I have used NDT (Erfa Thyroid) for over 10 years. Suddenly this year I have had nasty hyper symptoms, but labs are normal. I have insomnia, heart papls, shaky hands etc. I tried to lower my dose but it made me have hypo AND hyper symptoms! Also my labs are too low if I lower my dose. So that is not a solution.

I think I am maybe getting too much T3 from my NDT? I have tried to be a couple of days without Erfa every now and then, and I always feel better, less hyper, on those days! I am thinking about changing to T4 only but I'm afraid it will make me hypo. Most patients I know tell me T4 only is not working for anyone so I'm scared to even try it :(

I am a Grave's patient and have hypo because of RAI treatment I had back in 2006. My antibodies are normal.

Did any of you switch from NDT to synthetic T4 only med? Why? How did it work out for you?

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Domomo
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greygoose profile image
greygoose

What do you call 'normal' labs? Do you have the exact numbers - results and ranges?

Domomo profile image
Domomo in reply to greygoose

My TSH is 1.0 (range 0.2 - 2.5), FT4 is 14.1 (range 11-20), FT3 is 5.0 (range 3.5-6.5). I am from Scandinavia, our ranges are different than in UK.

The labs have been approximately same level for 10 years and I've been feeling OK. Last 7 months I've been feeling totally hyper and it is only getting worse! No changes in my lifestyle, diet, medication, supplements, nothing.

I wonder if anybody else experienced this?

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