Every 3/6 months my thyroid levels keeps on goi... - Thyroid UK

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Every 3/6 months my thyroid levels keeps on going up and I don't know why, has anyone had the same problem.

Teanna profile image
10 Replies

Hi all,

I'm on this site for many different health issues and apart from (no update on my hand, that's if anyone that's been following, and my APS is not doing so well), but now my thyroid levels keep on going up between 3 to 6 mths. I have not got the full result as I've just got a call from my GP's secretary (my GP is on holiday again). I'm already on 175mg of thyroxine but this time (I don't know if it's connected), my throat is swollen, although not it's not sore until I eat. It hurts and feels like I'm eating something really sharpe. It's a weird feeling, plus my mouth is full of ulcers and my tongue is swollen too. Could all this be connected??

Thank you, kind regards

Teanna

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Teanna profile image
Teanna
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10 Replies
greygoose profile image
greygoose

What exactly do you mean by your 'thyroid levels'? Your TSH? Your FT4? Your dose of levo? Do you have any labs to post? Do you have high antibodies?

I'm afraid we're going to need more information before anyone can really help you. :)

Teanna profile image
Teanna in reply togreygoose

Hi,

Sorry, but all I was told by the receptionist that my levels have gone up so my thyroxine will have to be increased. I can't speak to my own GP until next week. She would not say no more.

Regards

Teanna

greygoose profile image
greygoose in reply toTeanna

Then, she is breaking the law. The law entitles you to a print-out of your results. Ring her back and ask for one, and tell her you will be round to collect it at her convenience.

Teanna profile image
Teanna in reply togreygoose

Hi,

I would if I could but I cannot get round to my GPS as my full time carer is on hols and I have another carer to cover, and as my GPS are quite away, firstly they would no give it to her as they don’t know her, even if I told them her name etc, secondly, if I was well enough and my carer has transport I could of gone round there, but I’m not well enough, So I will have to wait until Tuesday. Honestly, across my file/on the computer, no other doctor can interfere with my health issues unless it’s an emergency. Because (my GPs exact words, “This patient is so complexed that NO-ONE is to interfere with any medication, test results etc, until I return”

So there is nothing I can do until next week.

Thank you and the kindest regards

Teanna

greygoose profile image
greygoose in reply toTeanna

I didn't know you couldn't get to the doctor's. In that case, she should give you your results over the telephone. That is the law. :)

Teanna profile image
Teanna in reply togreygoose

I know, it’s so frustrating as I have at least 5 other health issues and when I ask (even my GP), it seems that it’s all down to me). But in saying that, she is a great GP, but I seem to go around in circles. Example, a letter was sent to my GP saying that I have osteoporosis and she but me on these tablets. Now I have never been checked for it, I’m not under a rheumatologist etc. So I refused to take it, and my GP told me it was up to me whether to take it or not. I still get the medication every month with my blister pack. It’s only now I’ve started to get pains in my knees, I already suffer with my back and it’s deteriorating (upper and lower), but I’ve not had a scan scan on my back since 2009, I had an RTA, prior to that I had a back op on the lower discs. I can no longer lay down, so I could not have an MRI.

So really I’m fighting a losing battle. I’m no doctor, but it feels like doing a job of one (if u know what I mean).

Sorry for going on, but it was just to give you a small outline of what I’m going through.

Thank you for your help

Kindest regards

Teanna

greygoose profile image
greygoose in reply toTeanna

Well, she's right that no-one can force you to take tablets you don't want to take. And I think you were wise to refuse. From what I've heard, the stuff they prescribe for osteo does more harm than good. What you need is good levels of vit D and magnesium. Have you had your vit D tested? Do you take magnesium?

Teanna profile image
Teanna

Hi,

Thank you for your replies. Firstly, they will give not give out copies of any of my reports unless they get the ok from my GP. Apparently across my notes are "only to been dealt with my GP" unless it's an emergency and cannot wait until my GP returns.

Although my GP is excellent in many ways but tries to do the opposite of what the hospital doctors put into place. Luckily enough, I have a good carer who is clued up with most things, but as I said, I cannot do nothing without my GP say so.

Kindest regards

Teanna

Fruitandnutcase profile image
Fruitandnutcase in reply toTeanna

That sounds really strange - kind of dramatic too - do you think the receptionist made it up or do you think it’s really written right across your notes?

Hope you get what you want soon.

SlowDragon profile image
SlowDragonAdministrator

You are legally entitled to printed copies of all your previous blood test results

UK GP practices are supposed to offer online access for blood test results. Ring and ask if this is available and apply to do so if possible, if it is you may need "enhanced access" to see blood results.

In reality many GP surgeries do not have blood test results online yet

Alternatively ring receptionist and request printed copies of results. Allow couple of days and then go and pick up. They can make nominal charge for printing but many will do so for free (£10 max and can not charge at all after May 25th 2018 due to new EU ruling)

For full Thyroid evaluation you need TSH, FT4, TT4, FT3 plus TPO and TG thyroid antibodies. Plus vitamin D, folate, ferritin and B12.

Essential to test thyroid antibodies, FT3 and FT4, plus vitamins

Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies

thyroiduk.org.uk/tuk/testin...

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have money off offers.

All thyroid tests should ideally be done as early as possible in morning and fasting.If on Levothyroxine, don't take in the 24 hours prior to test, delay and take straight after

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, GP will be unaware)

If antibodies are high this is Hashimoto's, (also known by medics here in UK more commonly as autoimmune thyroid disease).

About 90% of all hypothyroidism in Uk is due to Hashimoto's. Low vitamins are especially common with Hashimoto's. Food intolerances too, especially gluten. So it's very important to get antibodies tested.

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