I have been at a loss for many years after having my thyroid removed, until I found this site. It has helped so many people with similar problems as me. I am a postman and I have struggled for 8yrs with aching muscles. Sore feet. Sleep problems and spasms. I've had to endure it because doctors refuse to believe there is anything wrong with me. My last spasm, which was around my shoulder/back left me unable to work. I've just got results from a blue horizon test. I'm on 250mcg levothyroxine. Any advice would be much appreciated.some levels are pretty high.
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unclefester67
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Something obviously wrong for a dose of 250mcg Levo to still show an over range TSH. Your FT4 is surprisingly reasonable for such a high TSH but your FT3 is dire, barely in range.
Your high Thyroglobulin antibodies confirm autoimmune thyroid disease aka Hashimoto's.
Your B12 is far too low in range and I would suggest asking your GP to test for B12 deficiency / pernicious anaemia.
Folate could do with being higher, at least half way through range.
No Vit D result?
Your CRP is high, this is an inflammation marker, this could be due to the Hashi's.
I will ask SlowDragon to comment with information on Hashi's as I am on my tablet and don't have the information to hand.
Thanks for replying so quickly seaside sue. I had my thyroid removed by cause of an auto immune disorder. I did change my meds for a couple of months (150 levothyroxine and 25mg Tiromel) but went back to levothyroxine shortly before I had my tests done.
Research has shown that a combination dose of T4/T3 and research has shown many people do better with a combination.
Levo is the inactive hormone (T4) and it has to convert to T3 (Active Hormone needed in our millions of T3 receptor cells. You doctor or endocrinologist will probably not add some T3 to your T4 as T3 has gone too high in price and has been withdrawn. We can source our own T3, and I immediately found a big difference in my symptoms when some was added to my T4.
If you'd like to add T3, put up a new post asking where to source it and then the post will be closed so that only Private Messages will be sent to you. You reduce some T4 and replace with a dose of T3.
Well, you are hypo and you have Hashi's. Despite your high level of levo, your TSH is still to high. The problem is, you cannot convert the levo to T3 very well, and that is why you still have symptoms. Why you don't convert well, is anybody's guess. It could be because of your low B12 - might be an idea to get your vit D tested, as well - or just because you have Hashi's. But, the best treatment is to reduce your dose of levo and add in some T3.
Although, to be honest, your FT4 isn't very high, considering your dose. How do you take your levo? On an empty stomach, at least an hour before eating? Do you take any other medications or supplements with it?
So, the levels that are high are your CRP, which is an inflammation marker - that's why you have all those aches and pains - your TSH, of course, and your antibodies, which say you have Hashi's. Did you know you have Hashi's? If so, are you 100% gluten-free? If not, it's worth a try. It could reduce your antibodies and make you feel generally better. You could try taking selenium, as well, which could reduce your antibodies, but also help your conversion.
On the low side, there is your FT3, of course, and your vitamin B12. It would be a good idea to supplement that with 5000 mcg sublingual methylcobalamin (B12) nuggets, and a B complex. Take the nuggets until you've used up the bottle, and then buy 1000 mcg sublingual nuggets, as a maintenance dose. Raising the B12 will surely help you enormously.
Hi greygoose. I honestly did t think I had hashimotos. I take levothyroxine in the morning. Although I don't eat before, I do like my cups of tea when I first get up. Don't know if that affects the levothyroxine. I'm not overweight but I'd o snack on sweets a lot. I do keep meaning to cut down on my snacks. I will also start shopping for gluten free products.
The tea will affect the absorption, yes. You should either wait an hour before having your tea, or take your levo at night, two hours after your last meal and last cup of tea! lol
That's too big a change, in my opinion. I would go for a reduction of 25 mcg levo, and the addition of 12.5 mcg T3, to begin with. But, you don't want to change too many things at once. So, continue to take your tea with your hormone for the time being, And just change the levo and T3. Hold for two weeks, and see how you feel. If you feel you need more after two weeks, add in 6.25 mcg T3 and leave the levo as it is. You can do that twice, then hold for six weeks and get retested. Hope that's not too confusing!
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