So tired and fed up!: Hi, This is my first time... - Thyroid UK

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So tired and fed up!

LRowe profile image
6 Replies

Hi,

This is my first time of posting, apologies for the long post but any help or advice would be appreciated!

I had TT in Dec 2009 owing to Papillary Thyroid Cancer whilst pregnant. Radiation Ablation Treatment followed in March 2010. I started on 150mg Thyroxine and bloods always came back normal.

I was increased to 175mg approx' 2 years ago.

I guess I've always put up with the tiredness and lack of energy as I've always had it. It's got to the point now though that my joints are really painful, sometimes just going up or down stairs feels like my ankles will give way. I can fall asleep anywhere at anytime! Brain fog all the time and hard to concentrate. I started taking extra vitamins which havent made much difference. I visited my GP who initially said could be early Menopause (I'm 38) then told me after 2nd bloods, all ok and now referred me to Rheumatologist (I've been waiting since Dec 2018 for an appointment, telephoned today to chase up and told I'm on the list and should get an appointment in a few weeks as they're backlogged)

I personally feel it's all down to my Thyroid (or lack of) and just feel im banging my head against a brick wall.

Any help or advice? Thanks for reading 😊

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LRowe profile image
LRowe
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6 Replies
greygoose profile image
greygoose

Hi LRowe, welcome to the forum. :)

First things first: do you have copies of your blood test results? If so, post them here, with the ranges, and then we'll know what we're talking about. We need to know exactly what was tested, and exactly what the results were.

If you don't have copies, ask for them at the surgery. If you live in the UK, it is your legal right to have copies of YOUR results. :)

LRowe profile image
LRowe in reply togreygoose

Hi Greygoose, thanks for the reply.

No, I don't have copies of my blood tests. Can I just ring and ask for them? I am in the UK.

😊

greygoose profile image
greygoose in reply toLRowe

Absolutely. You have a legal right to have them under the 1998 Data Protection Act. Ring the receptionist and tell her you will come round in a couple of days to pick them up. Better take some form of identification, though. :)

LRowe profile image
LRowe

Thank you! I've just rang them now, she said she would print them off and check with the Doctor they are happy to hand them to me and will ring me back 🤔

Hay2016 profile image
Hay2016 in reply toLRowe

Don’t panic. They all hedge their bets. I’ve been waiting 3weeks for online access that should take 5days. I’ll chase them now!! 😂

greygoose profile image
greygoose in reply toLRowe

Good. But, should the doctor say no, for some reason, remind him he's breaking the law, and that there are measures you can take to force him to hand them over. :)

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