Private thyroid specialist: Hi all can u guys pm... - Thyroid UK

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Private thyroid specialist

Samy3 profile image
9 Replies

Hi all can u guys pm a good thyroid specialist in Berkshire area near Windsor ascot pls will be very thankful....samy

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Samy3
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SlowDragon profile image
SlowDragonAdministrator

Before you get any appointment it's best to get full Thyroid and vitamin tests done before any consultation

Are you still on ppi. These lower vitamins, especially vitamin B12 and magnesium. Both need to be at good levels for thyroid hormones

gov.uk/drug-safety-update/p...

pulsetoday.co.uk/clinical/m...

Many on here have LOW stomach acid. It has very very similar symptoms to high acid, but treatment is very different

drmyhill.co.uk/wiki/hypochl...

scdlifestyle.com/2012/03/3-...

healthunlocked.com/thyroidu...

healthunlocked.com/thyroidu...

For full Thyroid evaluation you need TSH, FT4, TT4, FT3 plus TPO and TG thyroid antibodies. Plus vitamin D, folate, ferritin and B12.

Essential to test thyroid antibodies plus vitamins

Private tests are available

thyroiduk.org.uk/tuk/testin...

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have money off offers.

All thyroid tests should ideally be done as early as possible in morning and fasting and don't take Levo in the 24 hours prior to test, delay and take straight after. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, GP will be unaware)

Dr Toft, past president of the British Thyroid Association and leading endocrinologist, states in Pulse Magazine,

"The appropriate dose of levothyroxine is that which restores euthyroidism and serum TSH to the lower part of the reference range - 0.2-0.5mU/l.

In this case, free thyroxine is likely to be in the upper part of its reference range or even slightly elevated – 18-22pmol/l.

Most patients will feel well in that circumstance. But some need a higher dose of levothyroxine to suppress serum TSH and then the serum-free T4 concentration will be elevated at around 24-28pmol/l.

This 'exogenous subclinical hyperthyroidism' is not dangerous as long as serum T3 is unequivocally normal – that is, serum total around T3 1.7nmol/l (reference range 1.0-2.2nmol/l)."

You can obtain a copy of the articles from Thyroid UK email print it and highlight question 6 to show your doctor

 please email Dionne at

tukadmin@thyroiduk.org

Also request the list of recommended thyroid specialists, some are T3 friendly

Professor Toft recent article saying, T3 may be necessary for many, note especially his comments on current inadequate treatment following thyroidectomy or RAI

rcpe.ac.uk/sites/default/fi...

Samy3 profile image
Samy3 in reply toSlowDragon

Thanks slow dragon for ur reply I'm still on PPI s but not everyday but I'm taking my b12 and other vitamins too I want to get the full thyroid blood test done before see an endo bcs I'm afraid that he might say the same thing that my results are within range if they are then y I'm symptomatic I never felt fine since I been diagnosed only time I was feeling fine was when I was on carbimazole and that was only for 7 weeks in 2016 never felt myself after that ...medichecks have 6 test for 59 pound do they have any offer on that ?

SlowDragon profile image
SlowDragonAdministrator in reply toSamy3

If your taking B12 and B complex it may not be worth testing them

Has GP tested ferritin or vitamin D?

Medichecks run offers on a Thursday or I think they may still have 15% off if use code Med15

Cheapest way to test ferritin, folate, B12 and vitamin D, plus thyroid is the Thyroid check ultra vitamin test at £99 normally

Samy3 profile image
Samy3 in reply toSlowDragon

Thanks once again yes I'm taking g vitamin d and iron ferrous sulphate not everyday but I do take them but vitamin d selenium and vitamin c I take everyday and my ferretin was low few months back and after taking ferrous sulphate 200 mg a day it was 62 I think few months back

SlowDragon profile image
SlowDragonAdministrator

Are you on strictly gluten free diet? Your previous posts say you have gut issues and raised Antibodies

Leaky gut is extremely common

amymyersmd.com/2017/02/3-im...

chriskresser.com/the-gluten...

scdlifestyle.com/2014/08/th...

drknews.com/changing-your-d...

thyroidpharmacist.com/artic...

Persistent low vitamins with supplements suggests coeliac disease or gluten intolerance

gluten.org/resources/health...

Samy3 profile image
Samy3

I cook everything at home just have bread in the morning but no preserved food ..read made food ....

Samy3 profile image
Samy3 in reply toSamy3

Will ask my GP to test for coeliac disease I got this gut issue after I got thyroid problem ....never had any issue before ...my TRAB antibodies were positive and only o CE they checked TPo antibodies they were slightly elevated I think 55 was the result ...another question slow dragon during the ultrasound of neck the sonographer said its thyroiditis what does that mean

SlowDragon profile image
SlowDragonAdministrator in reply toSamy3

Thyroiditis is another name for Hashimoto's also more commonly called autoimmune thyroid disease here in UK

btf-thyroid.org/information...

Hashimoto's affects the gut and leads to low stomach acid and then low vitamin levels

Low vitamin levels affect Thyroid hormone working

Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten

According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)

But don't be surprised that GP or endo never mention gut, gluten or low vitamins. Hashimoto's is very poorly understood

Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies

Ideally ask GP for coeliac blood test first

It's absolutely no good being almost gluten free. It has to be absolutely strictly 100%. Including avoid cross contamination using shared butter, jam etc. Ideally use separate toaster too

That's nothing with wheat, barley or rye

See coeliac UK for lots of info and recipes.

There are gluten free options widely available. Best bread (for toast) I have found is M&S brown seeded. Also their brown seeded thins make good sandwiches

Tapioca flour or other gluten free flours available. Look in the Gluten free section of supermarket. Hidden gluten in lots of places you don't expect. Read ALL labels.

Suggest to try strictly gluten free for 3-6 months. See if it helps.

Yes gut and gluten issues are either result of the disease itself or that the medication doesn't resolve all problems

Samy3 profile image
Samy3

Thanks a lot once again for ur reply full of information I will go to GP and ask for the blood test

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