Looking for a private thyroid specialist? Recommendations?

I was diagnosed with an under active thyroid 11 years ago and am now 25. Ever since being diagnosed I haven't felt that well and over the years suffered from further health problems including ibs, irritable bladder and most recently been diagnosed with cfs/me. I am convinced it's all related to my thyroid not being treated correctly I am currently on 125mg, levothyroxine and I am now desperate to see someone that can help as I am struggling to go about daily life as feeling so unwell all the time. Thanks

11 Replies

  • I feel sure you sure right in your view that you are still hypo. I suffered years of this after Thyroidectomy but in the end realised I had to take my health in my own hands. Do you have latest blood tests for thyroid? This will give members info which can help them make suggestions to help. Finding a good thyroid specialist is not easy but Louise Warvill has a list and may see your post. If not, send her a message.

    Have you had checks of vital nutrients such as iron, ferritin, B12, folate and Vit D and Selenium? Deficiency or low levels of these can impair the way your body uses your dose of thyroxine or can make you feel unwell. I found I was low in iron and had been for years but my GP had never told me. Do hope you find a good doctor who can help.

  • Hi thanks. I think I have had all those blood tests but over the past 3 years would it be worth getting upto date tests done again. I was low vit d and was given a few months of tablets to take but never retested. Also is there any other tests I should get done? I am also due a thyroid blood test so will get that done and post the results. I've decided to take it into my own hands I don't know how many times I've been to the GP and refered to various people and not getting anywhere. I feel awful all the time and can only manage to work 6 hours a week. Luckily I still live with my parents so they support me financially. Thanks

  • Hi Do you want to see an Endo privately, covers so much of the body, or a private doc specializing g in thyroid ? There is a vast difference. There may be various things involved, only an Endo will cover this. However, pick with lots of research and great care..Louise.Warvill , TUK has a list. Sorry I do not have her email address to hand.

    If you want a good Endo in Leamington Spa, send me a PM,private message, easiest way is to click on my name. Then I will give you all my info.

    Best wishes,


  • Hi thanks I'll give Louise a message I think I would like to see a thyroid specialist. I saw an endo a few years ago and literally went in for 30mins then was discharged. That was on the NHS. I have found people I have seen on the NHS haven't been brilliant so not sure if I'm getting referred to very good people. This is why I would like to go private and find someone really good.

  • I hope you find someone oK.


  • Hi, if you're interested in visiting a doctor in Hendon please send me a private message and I will give you the details. My 16 year old daughter was suffering bad hypothyroid symptoms and digestive tract problems before we saw this doctor but, with treatment, is now free of symptoms, living a normal teenage life and coping well with A Level studies.

  • Hello....Could you please send me details of the doctor in London your daughter saw. Many thanks Anne

  • Hi, I have sent you a private message. Marianne.

  • Many thanks Marianne.......regards Anne

  • You really need to ask your doctor to refer you to a consultant. He will recommend you to someone who has a good reputation, and then you can ask him if you can go private to the same consultant, if you cannot wait on the NHS.

  • It sounds to me (not medically qualified) that you are not on enough medication.

    For your information, this is a link to an archived site which may give you some information. Before levothyroxine was introduced together with the blood tests for the thyroid gland, people were dosed with natural dessicated thyroid hormones until the were better.

    It was about ten years later that three new diseases were named, cfs/me/fibromyalgia.

    This is an excerpt from the link and there are other topics at the top of the page.

    Barnes was right when, long ago, he wrote that circulating levels of hormones don't measure what's most important—how the patient's tissues are responding to a dosage of thyroid hormone. Our regimen involves multiple measures of how tissues are responding to a particular dosage, repeated at short intervals in a highly systematic way. Our model of assessment is taken from behavior modification, in which I was trained in the early 1970s. We know from hundreds of trial runs that we can precisely control the metabolic status of most patients only by using these multiple measures of tissue response. We adjust each patient's dosage until these measures tell use we've achieved normal tissue metabolic status—regardless of what the patient's circulating hormone levels are. I concede that you can do some fairly good tweaking by using free T3 and T4 levels. But still, if the patient's tissue responses aren't carefully assessed, the clinician isn't focusing on what's most important—the patient's physiological and clinical responses to treatment.


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