LDN?: Has anyone tried or on LDN - Low Dose... - Thyroid UK

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LDN?

MissFG profile image
10 Replies

Has anyone tried or on LDN - Low Dose Naltrexone?

I’m interested in anyone’s experiences good or bad and if it has helped them? Ive read very good reports especially of the benefits in the USA where it’s an approved treatment for autoimmune diseases and other serious conditions such as cancer where people have benefited.

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MissFG profile image
MissFG
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Helena877 profile image
Helena877

Not yet, but I’m hoping to... just awaiting a letter from my GP stating my conditions and will then do a phone appointment with a view to obtaining a prescription....

MissFG profile image
MissFG in reply to Helena877

It’s not expensive I’ve just heard it can help and with having an autoimmune disease we can get a prescription over the phone

shaws profile image
shawsAdministrator

There is a forum on HU who may be able to help re LDN

This is a link which may be helpful

healthunlocked.com/hughes-s...

Helena877

MissFG profile image
MissFG in reply to shaws

Thank you Shaws I’ll take a look. Just out of curiosity have you tried it?

MissFG profile image
MissFG in reply to shaws

Shaws I looked on the link but not sure how sticky blood / Hughes is related to LDN?

shaws profile image
shawsAdministrator in reply to MissFG

I am sorry if I've confused you. I know the following member has spoken at times about LDN which I believe may be useful for quite a few autoimmune conditions.

You could send her a message and I'll give you a link to her history.

healthunlocked.com/user/maryf

G2G2 profile image
G2G2

I've been on LDN for almost 4 months. When I have labs in several months, I'll find out if it has lowered antibodies. I haven't had any side effects.

MissFG profile image
MissFG in reply to G2G2

Do you feel any better or seen any improvements in your health since being on LDN? Thanks

G2G2 profile image
G2G2

Not yet, but my doctor said it takes a while. LDN doesn't work for everyone.

ChrisH100 profile image
ChrisH100

I’ve been on LDN since Jan 18 - I’ve recently reduced my Levi dosage by 25 mcg as started to feel over medicated on 150 - had antibodies rechecked this week but unfortunately came back higher not lower than when I had them tested in Sep 17. That said my FT4 has gone up not down and by a big jump - now outside of range - not sure what that means? That said I do feel better symptom wise and will be continuing with LDN treatment. Good luck...

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