Anyone having success using LDN?: If so how has... - Thyroid UK

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Anyone having success using LDN?

MissFG profile image
5 Replies

If so how has it helped and can you recommend an online UK private prescription service where I can order this from?

Although unregistered in the U.K. I hear it has had great success in treating autoimmune conditions and also cancer so I'd like to try LDN and see if it benefits me for my SLE & Hashimotos

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MissFG profile image
MissFG
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5 Replies
galathea profile image
galathea

Here is the link to the l dn reseach trust who will help you to buy some.... I bougt some liqid on prescription from the uk and had several goes with it, I also tried tablet form bought elsewhere..... both forms had me completely dizzy on the 3rd week of taking them. Eventually I gave up. :-(

ldnresearchtrust.org/LDN_Pr...

Xx

MissFG profile image
MissFG in reply togalathea

Thanks I've printed off the information pack but can my GP prescribe it if it's unlicensed in the U.K.?

Sircharles profile image
Sircharles

Yes. I've been taking LDN for 2 years. Changed my life.

Are you on FB? There is a great group called Beating thyroid disease with LDN. Join. Great protocol for trying LDN & suggestions of where to get it prescribed & compounded.

Someone else posted the link to the LDN trust in the uk. They have a letter you can take to your Gp requesting it. It's so cheap I think all gps should know about it.

This was my treatment May-Aug 2015

- 150 thyroxin t4 daily

- 20 (t3) daily

^ taken as soon as I wake so on an empty stomach and I don't eat for 2 hours to ensure max absorption.

Plus I take:

- vitD3 25,000 iu twice a week

- vit k2 daily

- folate (not folic acid) daily

- daily probiotic

- 2000 iu vit C daily

- magnesium 2 tabs twice a day

- Betaine hcl before meals

I'm also:

- gluten free

- soy free

- don't drink caffeine within 2 hours of my thyroid meds

Since August 2015 I added:

- 4.5mcg low dose naltrexone before bed

^this really helped with brain fog and end of day tiredness and has coincided with a huge fall in my antibodies.

As a result I :

- lost 3 stone in a year

- got my brain back

- feel alive - can run around after my kids

- fell pregnant with 2nd child after years of failing!!!

- antibodies have come down

- - AND after 20+ years of suffering shoulder pain, it has gone!!

Best of luck on your journey.

MissFG profile image
MissFG in reply toSircharles

Thank you! Did you start on a low dose and increase to 4.5mcg? I was looking at just getting a prescription online which seems quite simple but will try my GP I just thought as it was unlicensed in the uk GP's can't prescribe it. Did you get yours online?

galathea profile image
galathea in reply toMissFG

I got the prescription online, it involved a telephone consultation with a doctor, then the chemist made the suff and posted it to me....

Bill arrived a few days later, As i recall it was about £50 in total.

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