Hypermobility Syndrome diagnosis-anyone else been referred to University College of London HMS Clinic?

[ElleOmar]

Hi, just wondered if anybody out there has HMS and has been to the University College of London for appraisal? I have an interview coming up with them this week and I am wondering what to expect!? Been such a long road to get there, taken years of misdiagnosis (put it down to menopause and osteoarthritis mostly), steroid injections, shoulder op, De Quervains, and GP even put it down to age! 😩

Anyone who has it knows how hard it is to deal with, I even have gastritis and acid reflux because of HMS on top of severe joint paint and tendinitis..... am hoping they will help me at the London uni as they are specialists.

Any kindred spirits out there, please let me know your experience, many thanks

[SilverAvocado]

ElleOmar, sorry you haven't had any replies. I haven't seen this issue discussed on the forum before, so it may not be linked to thyroid.

I've got quite mobile joints, so I'm interested to hear about how much trouble it caused you. Have you had these symptoms all your life, or did the build up over time?