Graves???: Hello! This is my first post...I was... - Thyroid UK

Thyroid UK

137,629 members161,400 posts

Graves???

malena65 profile image
16 Replies

Hello! This is my first post...I was told I have Graves based on my tpo antibodies. The baseline is less than nine. The first top test was 119 and the second one was 80. It appears the antibodies are lowering. Can a diagnosis of graves be based solely on top antibodies? All the other thyroid tests and tsh were normal. I would appreciate any feedback. Thank you!

Written by
malena65 profile image
malena65
To view profiles and participate in discussions please or .
Read more about...
16 Replies
Silver_Fairy profile image
Silver_Fairy

To be entirely sure you have Graves you would have to have TSI tested. TPO antibodies can be found in both Hashimoto and Graves sufferers.

For a more in depth look FT3, FT4 and TSH need testing.

If you put your results up (with ranges) members can comment.

malena65 profile image
malena65 in reply to Silver_Fairy

Hello!

tsh 1,44 (0,40-4,00)... ft3 3,30 (1,5-4,1) ..ft4 1 (0,89-1,78)... thyroglobulin <6,4 (<18)...tpo 80 (<9,0)

Thank you!

Silver_Fairy profile image
Silver_Fairy in reply to malena65

How far apart did you have your antibody testing? You may well have Hashimoto where the production of thyroid hormone goes up and down. Your numbers seem quite low for Graves, they are not even really borderline.

malena65 profile image
malena65 in reply to Silver_Fairy

Thank you for your reply. First week in October tpo reading was 119 with normal level being <9. second week in December tpo read 80. I will be tested for nodules that may be causing the mild symptoms described below. Thank you!

Valarian profile image
Valarian

Do you have any symptoms? Have they changed at all ?

malena65 profile image
malena65 in reply to Valarian

Hello!

Symptoms suggestive to graves or hyperthyroidism would be mild intolerance to heat and some sweating upon exertion but not excessive..no eye problems and no tremors...

Thank you!

Valarian profile image
Valarian in reply to malena65

From your results, you don't currently have overt hyperthyroidism - TSH and thyroid levels are within range.

Approx 65% of people with Graves' are positive for TPO, but almost everyone with another autoimmune disease, Hashimoto's. As Silver Fairy said, you would need TSI, or maybe TRab, tested for Graves'.

thyroiduk.org.uk/tuk/about_...

You mentioned that your TPO was previously 100 - do you have corresponding TSH and FT3/4 results, and if so, what were they ? Have you been given any treatment ?

By the way, where are you based ? It would be quite unusual to have FT3 tested on the NHS with this level of TSH, unless you were already being treated for thyroid disease.

Typically people with strong hyper symptoms will feel a bit over-heated all the time. They will be the ones turnng the heating down and opening windows when everyone else is reaching for another sweater ! Tremor is common with high thyroid levels, but not everyone experiences them. However, your thyroid levels themselves are within range.

malena65 profile image
malena65 in reply to Valarian

Hello test results mentioned above were done in Italy. Now I am in Canada and not given test results but told thyroid readings normal except for tpo which however was lower than the Italian reading done in October and based on same <9 normal level both in Italy and Canada.

Thank you so much for your attention to my message.

Silver_Fairy profile image
Silver_Fairy in reply to malena65

Totally off topic, but where in Italy were you?

malena65 profile image
malena65 in reply to Silver_Fairy

Oh my reply is further down

malena65 profile image
malena65 in reply to malena65

After human bean...u will see my reply. Bye.

Silver_Fairy profile image
Silver_Fairy in reply to malena65

Just being nosey, as I live in Italy.

malena65 profile image
malena65 in reply to Silver_Fairy

GM!!! Wish I are there now...could go to a centre for tests and get a copy of results too!!!

Silver_Fairy profile image
Silver_Fairy in reply to malena65

Yes, Ive done just that. Got my prescription, after visiting the GP with no appointment and got my thyroid meds from the chemist for just over 3 euros!

I was given a form at the hospital where I got my blood tests done with website, password and reference number where I will find my results on the 24 February, 5 days after having them done :)

humanbean profile image
humanbean in reply to malena65

Mild intolerance to heat is not guaranteed to be an overactive thyroid problem. It could be overactive or underactive. It is common on here for sweating to be mentioned as an issue.

malena65 profile image
malena65

Hi! In Reggio Calabria but no problem there was told simply I had had tiroidite/thyroiditis and just to keep an eye on tpo in the event they increase which haven’t.... here already with normal ranges have dx Graves!!!!

You may also like...

Is this Graves?

Finally got my tsh receptor antibody test result today and it’s 6.9, range is <2. Does this mean I...

Graves?

see me first, then the dr, who is a professor, no less! Anyway, using the results of a blood test...

Graves

Hi I think I have Graves' disease? TSH 0.03 (0.2 - 4.2) Free T4 22.7 (12 - 22) Free T3 4.8 (3.1 - 6

Graves

responded to another persons question regarding graves disease still being active after a...

Graves

Hi I have Graves' disease was diagnosed 3 years ago, since then my levels have been up and down...