Liothyronine, (T3) source

[Jenny583]

Please can someone message me as to where to source T3 without prescription.

I will run out of the old T3's that were given me by friend, in a few weeks.

Is it easy to get now? It would have to be mail order, as I live in Jersey C.I.

Many thanks in advance.

Jenny

[Clutter]

Jenny583,

How much T3 have you been taking? Have you had FT3 tested to check it remains within range?

[Jenny583 in reply to Clutter]

Thanks Clutter

I have been taking between 3mg & 10mg, I seem to need more in winter. The GP's have abandoned me. They won't do ferritin or antibodies. Ft3 is now 4.5.

Latest results; gamma glutamyl transferase - 11 L iu/l (12-43 )

Adjusted calcium - 2.23 mmol/l (220 - 260) (this has improved )

Transferrin Saturation - 19.9 L % (20 - 50 )

Iron 13 - umol/l - (7 - 30 )

Glumular filtration rate - 84 ml/min/1.73m^2 (>90 ) ( This is going down)

TSH 0.35 L mU/l ( 0.50 - 5.00 )

free T4 10.2 pmol/l ( 10.0 - 25.0 )

Free T3 4.5 pmol/L (4.3 - 8.1 )

B12 685 H ng/l (200 - 680 )

total 25 - OH vitD 79 nmol/L

They won't treat or investigate low

Thanks

[Clutter in reply to Jenny583]

Jenny583,

TSH is low-normal, Free T4 is low, as expected, as you are taking T3 only, and FT3 4.5 is less than half way through range so there is scope to increase dose if you feel you need to.

Having antibodies tested and a confirmation of Hashimoto's doesn't affect thyroid treatment. There is no cure for Hashimoto's, the treatment is for the hypothyroidism that Hashimoto's causes. 100% gluten-free diet can help reduce antibodies. You can either assume you have Hashimoto's which causes 90% of hypothyroidism and adopt 100% gluten-free diet or arrange a private thyroid antibody test from Blue Horizon or Medichecks via thyroiduk.org.uk/tuk/testin...

The T3 you buy online will be 25mcg not 20mcg. You will struggle to cut the tablets into smaller doses than 6.25mcg.

Ferritin is stored iron and is often tested instead of iron. Your practice has measured iron which is just under halfway through range so is neither too low nor too high.

Low gamma glutamyl transferase means it is unlikely you have liver disease. google.co.uk/search?client=...

Calcium, vitD and B12 are good.

[Jenny583 in reply to Clutter]

Thanks clutter

I saw from the printout that TSH is below range o.35, & ft3 &ft4 are on the floor. The TSH has been going down steadily. I am concerned that the pituitary gland may be malfunctioning. Also the transferrin saturation is going down steadily, despite me buying the maximum dose iron.

I just wondered if there might be a connection?

I have been gluten free for years BTW. I have to take vitamins which I buy my self. GP says I have to source my own medicine & private tests won't make them budge, so I have to buy T3, & just hope that I don't have inflammation with high storage ferritin. Whether I have Central hypo or hashies the need for T3 is the same, I have other conditions too, so am housebound. I am Jersey so have to pay GP several times a year, & have to have lots of x-rays & bone scans, (My spine is shot) which I have to pay for. I live on 85% widows pension, no other income.

Just a source for T3 to enable me to get to hospital and back, till I can save up for the battles ahead is all I need, I was bedridden & hypothermic before I tried the T3.

Thanks

[Clutter in reply to Jenny583]

Jenny583,

It doesn't matter if TSH is below range as long as FT3 is not over range. The more T3 you take the high FT3 will go and the lower TSH will drop. It means pituitary is working well, not malfunctioning. FT4 will be low in range as you are taking T3 only.

Central hypothyroidism is indicated by low-normal TSH and low FT4 and FT3 at diagnosis. FT3 4.5 is normal and doesn't indicate central hypothyroidism.

I sent you a private message a couple of days ago.

[ChristinaGasparri]

I have experienced same problem. I contacted this site at the time but got nowhere as I could not access private message/reply.

[Jenny583]

This is an update! I have just come from another practice today, now that we are allowed here in Jersey to seek a 2nd opinion from another practice. I have been to 2 practices, just b4 xmas I sought a 2nd opinion, as I had lost the will to live. I was given script 4 a anti D, 3 months - that I am allergic to. I was told that it would help with the pain from my spine (osteoporosis), 1 of several complications from 40 years of unaddressed hypo.

Now the local alopecia support lady (online) kindly gave me the name of a GP that is sympathetic to baldies! so I saw him today, & long story short - he told me to see the new endo assistant, but that I would have to see my own GP to get the referral! I have been saying that it is my thyroid that has caused the secondary & tertiary illness 4 years! & the 1st thing he said to me was secondary thyroid! A 1st in all the 40 years that I have been incapacitated.

Now I have to mortgage my house in order to seek confirmation & help with advice on central hypothyroidism, in order to die with some dignity, & told that the only way that I can get a referral to the only endo is through the GP practice that have destroyed my medical records, in order to cover up years of iatrogenic & medical neglect!

Please - if u live in a democracy, (UK) don't let it get to this, You may need to beg, borrow or steal in order to get a diagnosis of any kind of hypothyroidism, but please don't give up, & go down the black market t3 till u absolutely have to!

I am surviving on Metavive, but it just gets me out of bed at some point of day, it's no life though -as u get to a certain age, & it all gets to the point when U wonder if it's all worth the hassle. The tertiary problems just escalate without treatment.

Please let someone know what is going on with Your situation, & seek a 2nd opinion b4 Its 2 late. I wish U well.

Jenny.

[EbonyEvans]

Do you have some recent blood works?

[Jenny583 in reply to EbonyEvans]

Hi,

Yes from 24/10/18.

Free T3 4.3 pmol/L ( 4.3 - 8.1 ).

This blood was taken 9am, I had ingested NDT - (obtained privately - internet), only

hours b4, as I would have felt too ill to make appt otherwise, so it would have been below range had I not?

T4 11.7 pmol/l ( 10.0 - 25.0 )

TSH 0.62 mU/l ( 0.50 - 5.00 )

Cortisol 314 nmol/l ( 09:00hr 125-630 )

Ferritin 46 ug/l ( 8 - 205 )

Transferrin saturation 47.5 % ( 20- 50 ) This was below range just a few months before!? - for years...

Iron 31 H umol/l ( 7 - 30 )

Adjusted Calcium 2.16 L mmol/l ( 2.20 - 2.60 )

The Calcium & thyroid was still low, but some other things that had been quite hi or lo were reversed to lo & hi! But that could be explained by all the supplements I buy.

I asked for the hashimoto's test, but received the graves test instead....

If I was a cynic - I would be suspicious of a cover up, especially in view of the disappeared records, & revision of my Celiac diagnosis. All GP's in Jersey cost £43. plus, repeat scripts £6.50, referral letters, bone scans, x rays all cost extra.

I will have to sell my house in order to find a GP that is willing to refer me to the only Endo.

I have been told that the Chronic Major depression, the dry skin, the collapsed discs, the rickets & osteoporosis, the secondary hyperparathyroidism & the baldness are all down to thyroid disease _ told me by a GP that won't take me on or refer me himself. I have lost count of the GP's that I have sought a 2nd opinion from, only to be told stay with your present practice, & take antidepressants & sleepers ( which make me ill & don't work ), & when my BP goes dangerously high & fibrillation takes over - they prescribed propranolol, along with 11 other drugs, which also made me ill - & don't work .

So because the only drug that I can take is cetirazine, I am seen as an awkward nuisance.

So I pay hundreds £ each year for antihistamines, & the death stare from 'gone native' GP.

And as if that wasn't bad enough - suicidal ideation, dissociative disorder, amnesia, major depression, confusion & C ptsd are not only NOT treated here, they are denied, even if u have been diagnosed by a GP & psychologist. The shrinks only diagnose chemical imbalance diseases, & The GP treats with anti D's, (the shrink just box ticks them), only 8 of the very cheapest, often banned by other countries available to choose from, or lithium!

U can only get computerised CBT here, which is unsuitable for most, esp if u have a physical disease. They dare not let u have that if u were abused by the psches b4 though! They have shoved CBT onto the charities now, but they don't tell the public that it's just good old fashioned OH behave! therapy dressed up as "talking therapy"

But the Human rights people are told something totally different to what the 'sick to death victims' of the fake health service experience here!

So - in other words, if u have a physical illness like (central hypothyroidism) ,here u are told that its - A. laziness/hypochondria - B. CFS, assuming u are still alive by then, & C - your records only go back 10 years - or whatever.

Sorry about the long rant, but there is no support here, I cant even join the alopecia group!

Maybe I should paste this onto anxiety & depression forum??

feel free to ignore all but the lab numbers though!

Jenny