I am feeling really rather frustrated with my GP - I initially went to my doctors surgery last June (saw the nurse practitioner - she was very good) I was having palpitations, anxiety, extreme joint pain, and chest pain (among other symptoms!) and my blood pressure was through the roof.
I was sent straight to the hospital as my blood pressure was so high and the initial thoughts was that it could be angina due to the nature of the pains I was having (I'm only 41!) - after all the scans etc, I am pleased to say my heart is in good health, however in the mean time, the first bloods I had done came back as abnormal in the way of my thyroid - it was actually slightly overactive which could have been causing me the trouble possibly?
Result - TSH - 0.07 (0.2 - 4.0), T4 19.6 (11.0 - 22.6)
I then waited 4 months for them to re test me in case it was a sporadic result and this result came back as underactive thyroid and my antibodies were high - I felt dreadful at this point - weight gain, joint pain, muscle weakness, memory loss, brain fog and a whole lot more. I took a call from the doctor to tell me this, he explained that sometimes you can go from overactive to underactive due to a burn out and said take this pill once a day and come back in 2 months - the call lasted all of 2 minutes with only a very brief description.
Result - TSH 7.0 (0.2 - 4.0), T4 9.7 (11.0 - 22.6), Antibodies >1300 (<60)
Since day one of taking 50mg levothyroxine though, I have felt like I have a football in my upper abdomen and feel sick all of the time - Its so bad that even other foods seem to make it worse now - especially milk and I feel absolutely dreadful all day. Because of this I have stopped drinking milk. I have also been very strict on taking my tablet on an empty stomach with water and not having anything for at least 2 hours after taking it as I wanted to get maximum absorption in the hope of feeling better - for the last 3 months whilst waiting for my new bloods to be done I have felt absolutely dreadful from this and also still have severe muscle aches/weakness/memory loss/flaky nails/weight gain/cold constantly etc. I had my new bloods done last week and they only did my TSH level (nothing else - is this right?) which showed I am now within range but why do I feel so dreadful still?
Result - TSH 1.0 (0.2 - 4.0)
I arranged a phone appointment last Friday with my doctor regarding reacting with the levothyroxine and he just sounded like he couldn't be bothered to talk to me and even admitted he was doing 3 things at once whilst talking to me. He said to stop taking the tablet for 2 weeks and see if it made a difference and then go and see him - I asked him if there are any other tablets I could take instead if it was that and he said 'Yes but I can't give it to you as its too expensive.' Well - I felt really dismayed.
So what do I do if I am having a reaction to the tablet (which I know I am as the very first day I didn't take it I didn't get the swelling and sickness feeling). Do I suffer the extra illness of being so uncomfortable and feeling sick all of the time or do I go un medicated? Are there any other options?? I just don't understand why I feel so ill still if I am in range now? I think I am going to try and get referred to an endo as I'm not sure if my doctor knows much about thyroid problems and really doesn't seem helpful at all.
Sorry for the long post but I am new to all of this and just don't get why I feel so ill still and am getting so frustrated. Any help on my results and situation would be much appreciated! Also - can anyone confirm if I have Hashimotos from my results above as my doctor hasn't explained hardly anything? Thank you for your time!