more results?!?: Hi, I'm sorry to just keep... - Thyroid UK

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more results?!?

MrsO2510 profile image
12 Replies

Hi,

I'm sorry to just keep posting but I have more results now so thought I'd share in the hope that someone will guide me with questions to ask my GP

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MrsO2510
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12 Replies
Marz profile image
Marz

Please please look at the Guidelines for your area. You are severely LOW and your level needs to be around 100. What does your GP say ? Your GP should know what to do - you need loading doses and a GOOD maintenance dose. Also there are co-factors like Magnesium and VitK2-MK7 - which your Doc will not have a clue about.

Check out SeasideSusie by clicking onto her name in BLUE and then click onto the heading REPLIES so you can read the excellent advice she has given to others. Far more than your GP will know ....

Clutter profile image
Clutter

Mrs02510,

VitD is severely deficient. Your GP should refer to local guidelines or the cks.nice.org.uk/vitamin-d-d... Do NOT accept a prescription for 800iu which is a maintenance dose prescribed after vitD is replete >75. My GP prescribed 40,000iu daily x 14 followed by 2,000iu daily x 8 weeks which raised vitD from <10 to 107. Vitamin D should be taken 4 hours away from Levothyroxine.

You haven't given the date of this result?

Your GP should know how to treat Severe Vitamin D Deficiency but you could check out the NICE guidlines for treatment of . . .

You should be presrcribed loading dose of supplement of approx 280,00 IU 300,000 IU to take in split doses and/or refered to a Specialist - depending on your symptoms.

Look up symptoms of deficiencies in Vitamin D on NHS choices and treatment of Severe Deficiency in the NICE guidlines.

Mary-intussuception profile image
Mary-intussuception in reply toMary-intussuception

Sorry

That should read

. . . of approx 280,000 IU /300,000 IU to be taken in split doses over several weeks.

x🐥

MrsO2510 profile image
MrsO2510

Hello sorry - he following bloods were from mid October 2017

Osetradiol level serum 140 pmol (150-1000)

SHBG level serum 28nmol/l (35-100)

FSH LEVEL SERUM 8.9 iu/l (0.39.9.0)

LHL serum 6.0 iu/l ( 2.0-11.0)

Androstenedione level serum 5.5 nmol/l (0.8-4.7)

DHEAS level serum 7.4 umol/L (0.5-6.3)

TSH level serum 3.2mu/l (0.35-4.7)

Free T4 level serum 11 pmol (7.8-2.1)

Prolactin level serum 230 mu/l (70-550)

Free androgen index level 4.3 (0-4.0)

And serum total 25-hydroxy vit d 15nmol (<25nmol overt deficiencies) taken 23rd November 2017.

shaws profile image
shawsAdministrator

Don't worry about how much you post. When we are trying our best to find out what is wrong and how best to improve our health doctors seem not to be able to assist.

Your doctor should begin to give you Vit D supplements. This is an excerpt from a past post by SeasideSusie re Vit d:

Vitamin D 20.7 (<25 severe)

You are severely Vit D deficient and need loading doses - see NICE treatment summary for Vit D deficiency:

cks.nice.org.uk/vitamin-d-d...

"Treat for Vitamin D deficiency if serum 25-hydroxyvitamin D (25[OH]D) levels are less than 30 nmol/L.

For the treatment of vitamin D deficiency, the recommended treatment is based on fixed loading doses of vitamin D (up to a total of about 300,000 international units [IU] given either as weekly or daily split doses, followed by lifelong maintenace treatment of about 800 IU a day. Higher doses of up to 2000IU a day, occasionally up to 4000 IU a day, may be used for certain groups of people, for example those with malabsorption disorders. Several treatment regims are available, including 50,000 IU once a week for 6 weeks (300,000 IU in total), 20,000 IU twice a week for 7 weeks (280,000 IU in total), or 4000 IU daily for 10 weeks (280,000 IU in total)."

healthunlocked.com/thyroidu...

MrsO2510 profile image
MrsO2510 in reply toshaws

Hi had a call from docs receptionist to say a prescription has been forwarded to chemist just picked some tablets up - Cocalferol 800 units x 5 tablets a day for 8 weeks. Fingers crossed it works.

SeasideSusie profile image
SeasideSusieRemembering in reply toMrsO2510

Mrs O

The Vit D Council recommends a level of 100-150nmol/L although your GP just will want to get you out of the deficiency category and your prescription will end up as 800iu daily which won't be enough. When this happens, come back and post your new result and we can suggest what dose you should continue with which you will have to buy yourself. You will need to supplement for life. My level was 15 although I have self treated and now my maintenance dose is 2000iu daily but in winter I increase to 3000iu daily.

Also, your doctor wont know, because they are not taught nutrition, but there are important cofactors needed when taking D3

vitamindcouncil.org/about-v...

D3 aids absorption of calcium from food and K2-MK7 directs the calcium to bones and teeth where it is needed and away from arteries and soft tissues where it can be deposited and cause problems.

D3 and K2 are fat soluble so should be taken with the fattiest meal of the day, D3 four hours away from thyroid meds.

Magnesium helps D3 to work and comes in different forms, check to see which would suit you best and as it's calming it's best taken in the evening, four hours away from thyroid meds

naturalnews.com/046401_magn...

Check out the other cofactors too.

MrsO2510 profile image
MrsO2510 in reply toSeasideSusie

I haven't actually seen the GP about the vitamin D results yet so I will ask him about dosages tomorrow when I see him. I'm struggling with really bad brain fog at the moment and I don't quite understand the units of measure 🙄

So is it: If I take five tablets a day each at 800 then that's 4000 a day that's not enough?

I'm sorry to be so thick

SeasideSusie profile image
SeasideSusieRemembering in reply toMrsO2510

MrsO

For severe deficiency (which is the category you are in at 15) your GP should be prescribing loading doses - see cks.nice.org.uk/vitamin-d-d...

""Treat for Vitamin D deficiency if serum 25-hydroxyvitamin D (25[OH]D) levels are less than 30 nmol/L.

For the treatment of vitamin D deficiency, the recommended treatment is based on fixed loading doses of vitamin D (up to a total of about 300,000 international units [IU] given either as weekly or daily split doses, followed by lifelong maintenace treatment of about 800 IU a day. Higher doses of up to 2000IU a day, occasionally up to 4000 IU a day, may be used for certain groups of people, for example those with malabsorption disorders. Several treatment regims are available, including 50,000 IU once a week for 6 weeks (300,000 IU in total), 20,000 IU twice a week for 7 weeks (280,000 IU in total), or 4000 IU daily for 10 weeks (280,000 IU in total)."

So he can give you 4000iu daily but it should be for 10 weeks to comply with the recommendation for loading doses. You will only be getting 224,000iu in total if you take it for 8 weeks and it should be 280,000-300,000iu.

However, D3 is cheap and you will probably get a better supplement buying your own, so you could just take what you are prescribed, then come back here with your new level and we'll suggest what to buy and the dose.

D3 is usually in International Units (IU). 800iu is a poor level for a maintenance dose.

MrsO2510 profile image
MrsO2510 in reply toSeasideSusie

Thank you so much for your help x

SeasideSusie profile image
SeasideSusieRemembering in reply toMrsO2510

You're very welcome :)

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