Hyperthyroid sufferer : Hi I am new to this. I... - Thyroid UK

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Hyperthyroid sufferer

Lux2014 profile image
18 Replies

Hi I am new to this. I have been diagnosed with hyperthyroidism and I am to start Carbimazole but I have symptoms of feeling cold, puffy eyes, swollen thyroid, hard stool, dry skin, heavy and irregular periods, breathlessness, weight gain, headaches, tiredness, hoarse voice, hair loss. Are these hyperthyroid symptoms? I am confused.

Thank you in advance

TSH 10.3 (0.27 - 4.20)

Free T4 9.1 (12 - 22)

Free T3 3.0 (3.1 - 6.8)

TPO antibody 804.5 (<34)

TG antibody 377.3 (<115)

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Lux2014 profile image
Lux2014
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18 Replies
Marz profile image
Marz

Do you have any thyroid test results with ranges you could share with us ? In particular the anti-body test that confirmed your Hyperthyroidism. Are you certain you do not have Hashimotos - when you can swing from Hypo to Hyper .... ?

Welcome to the forum :-)

Lux2014 profile image
Lux2014 in reply toMarz

TSH 10.3 (0.27 - 4.20)

Free T4 9.1 (12 - 22)

Free T3 3.0 (3.1 - 6.8)

TPO antibody 804.5 (<34)

TG antibody 377.3 (<115)

Marz profile image
Marz in reply toLux2014

You have Hashimotos and you are HYPO not Hyper and do not need Carbimazole. You need Thyroxine starting at 50 mcg - re-test in 6/8 weeks so your dose can be increased.

Also have B12 - Folate - Ferritin - VitD tested and post results with ranges in a new thread. Am expecting them to be low.

Read as much as you can about the auto -immune aspect of Hashimotos. Will not overwhelm you with too much info as you have a lot to cope with at present - not least a suspect GP 😊

Lux2014 profile image
Lux2014 in reply toMarz

Thanks I have them already and I supplement do I post?

Marz profile image
Marz in reply toLux2014

Yes please ....

greygoose profile image
greygoose

Marz is right, before you start taking carbimazole, you need to see your results. You need to know exactly what was tested and what the results were, because doctors tend to only test the TSH. And, you cannot make a diagnosis of hyper based only on the TSH. So, if that is what your doctor has done, you need to insist he does more tests to verify his 'diagnosis'.

TSH

FT4

FT3

TPO antibodies

That's the minimum that needs doing. And, you are not hyper unless your FT3 is over-range. We have seen too many cases on here, lately, where a doctor has prescribe carbi for someone who is actually hypo, because he only looked at the TSH. :)

Lux2014 profile image
Lux2014 in reply togreygoose

TSH 10.3 (0.27 - 4.20)

Free T4 9.1 (12 - 22)

Free T3 3.0 (3.1 - 6.8)

TPO antibody 804.5 (<34)

TG antibody 377.3 (<115)

greygoose profile image
greygoose in reply toLux2014

I'm sorry, I'm confused. Those are the results that your doctor said were hyperthyroid? He wants striking off! A TSH of over 10 is very hypOthyoroid, not hypERthyroid! He should have put you on levo, not carbimazole!

Do not take the carbimazole! It will make you worse.

You also have high antibodies, which means you have Hashimoto's Thyroiditis - aka Autoimmune Thyroiditis.

You have a very, very dangerous doctor there, and one day, his ignorance will kill someone! You should complain to the practice manager straight away.

Marz profile image
Marz in reply togreygoose

New post re vitamins and minerals - yikes ! You are right gg - this Doc is on track to do harm. WIGO - what is going on ? Too many people now getting the wrong diagnosis - even just today .... very worrying.

greygoose profile image
greygoose in reply toMarz

It is extremely worrying! And makes you wonder how many other people have got the wrong diagnosis from these doctors, and are now just getting worse and worse. And, is it just that these doctors are ignorant about thyroid, or are they making mistakes in other areas, too? Terrible situation. You just can't trust doctors anymore.

Lux2014 profile image
Lux2014 in reply togreygoose

Thanks I plan to complain

greygoose profile image
greygoose in reply toLux2014

Good! Let us know how it goes. :)

Lux2014 profile image
Lux2014 in reply togreygoose

Sure will :)

shaws profile image
shawsAdministrator

If your blood test was not at the very earliest, request a new blood test as most doctors only go by the TSH alone and it is highest early a.m. and drops throughout the day.

Lux2014 profile image
Lux2014 in reply toshaws

Bloods done before 9am

Lux2014 profile image
Lux2014 in reply toshaws

Please see post with results added

shaws profile image
shawsAdministrator in reply toshaws

I agree with Angel_of_the_North you should see another doctor.

You are not hyper (overactive) with those results and should not be taking carbi - it will make you seriously ill. You are hypo (underactive) and should be on levothyroxine. You should report the doctor who gave you the diagnosis based on those bloods and definitely make a complaint about wrong treatment - and find a new doctor

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