Liothyronine

[Sharcott]

I have been on a small dose daily of Liothyronine along with Levo and The NHS are withdrawing it, can anyone offer advice please ?

[shaws Administrator]

They are not following the BTA's advice if we've been on T3 and this is an excerpt from the British Thyroid Association's article. Excerpt:

In the FAQ’s for Patients, under the question, “Do I have to switch from T3 to thyroxine” the BTA state, “If you are receiving T3 and are satisfied that you are deriving benefits from it then you do not have to stop it. You should let your GP know that you wish to continue taking T3. If the GP is not happy prescribing it they should seek the opinion of an endocrinologist.”

Again, from what we are being told, no offers to seek the opinion of an endocrinologist is being suggested.

In the “Information for Endocrinologists” document under the heading “Clinical approach to patients on L-T3” the BTA state, “For patients who are established on L-T3 and are considered to be stable, a change to L-T4 monotherapy should not be implemented without discussion with the patient. In such cases change of treatment may result in significant instability of thyroid status and potentially undesirable clinical outcomes, which may prove more costly than continuation with L-T3 therapy.”

Read Numberone1 comment:

healthunlocked.com/thyroidu...

[Sharcott in reply to shaws]

Thank you very informative

[Clutter]

Sharcott,

Who is withdrawing the Liothyronine ie endo, CCG or GP, and why?

[Sharcott in reply to Clutter]

My understandin is the GPs is but she is getting the some one to call me from the Institute of Pharmacy I think she said, I wasnt taking it all in. Its to do with cost mainly and they are not aloud to prescribe it anymore

[Clutter in reply to Sharcott]

Sharcott,

I would write to your GP (cc your MP) and tell your GP that the CCG does not have the authority to tell GPs what not to prescribe and you believe your GP may be in breach of GMS contract by with-drawing treatment you have been told you need and which has benefitted you. Say you have been well on Liothyronine and wish to continue taking it. Attach the BTA guidance for patients and GPs.

The BTA issued guidance that patients doing well on T3 should not have their prescriptions with-drawn. See FAQS for patients and GPs in british-thyroid-association...

BTA also published this in response to the NHS England consultation which ended in October british-thyroid-association...

CCGs do not have the authority to tell GPs what not to prescribe. Individual GPs, not CCGs, could be found in breach of the General Medical Services contract if they do not prescribe treatment patients have been told "they need".

bmj.com/content/358/bmj.j36...

The GPC has warned that GPs would be in breach of the GMS contract and could get into legal trouble by following the orders and refusing to prescribe patients treatments they have told them they need.

gponline.com/gpc-warning-ig...

CCGs are also obliged to consult with the Public on how reconfiguring services (ie withdrawing Liothyronine) impacts on their care. mills-reeve.com/files/Publi...

[Sharcott in reply to Clutter]

I am having trouble opening this one The BTA issued guidance that patients doing well on T3 should not have their prescriptions with-drawn. See FAQS for patients and GPs in british-thyroid-association...

[Clutter in reply to Sharcott]

Sharcott,

Try again tomorrow. The BTA site doesn't appear to be working.

[Sharcott in reply to Clutter]

There was a cooment somewhere about getting the Lio cheaper a different company and I have lost it, do you know it please

[Clutter in reply to Sharcott]

Sharcott,

I don't know what you mean. The links I posted don't tell you where to obtain Liothyronine. They have information from the BTA about Liothyronine being withdrawn.

[Sharcott in reply to Clutter]

Maybe it want anything you sent I just saw it somewhere, it wasnt me getting it, no worries I will look, thank you

[Sharcott]

Thank you a lot to take in really appreciate your help

[mrsm49]

Hmmmm my gp won't prescribe t3 as I was started on it by the endo after the BTA advice was published. Endo and gp currently each saying the other should give me a private prescription to buy it myself. Frustrating!