just a thought : hello my friends i have had my... - Thyroid UK

Thyroid UK

141,244 members166,489 posts

just a thought

wendypartridge profile image
14 Replies

hello my friends i have had my blood tests back after a 25mg increase to 125 of levo per day

tsh -0.67 ( 04- 5)

t4 - 16.23 ( 9.-19)

t3 - 3.2 ( 2,6-5)

b12 4 .38

my tsh is low for me and when it starts been very surprised i get a lot of pain, I need to have a tsh above 1 and under 2 to feel well . So i was thinking of taking 125 one day and 100 the next, just to see if it would raise my TSH . I dont no why but will a tsh below 1 i get bad pain .. all advice welcome

Written by
wendypartridge profile image
wendypartridge
To view profiles and participate in discussions please or .
Read more about...
14 Replies
wendypartridge profile image
wendypartridge

suppressed

shaws profile image
shawsAdministrator

You could do a trial of 125 and 100 to see if it works out.

However, your T3 is so extremely low and maybe you need a combination of T4/T3. Low FT3 causes symptoms. You may not be able to convert levo to sufficient T3. Some people are resistant to T4 (levo) and have to take T3 only to be relieved of clinical symptoms.

I don't understand your result for B12 but if it as you state - 4.38 you appear to have none in your body. Also any deficiencies and if B12 is that low you will have problems.

You need B12, Vit D, iron, ferritin and folate and state results along with ranges.

wendypartridge profile image
wendypartridge in reply toshaws

my mistake Shaws the b12 is 438 no decimal point. I think I will try a trial of 125 and 100 , of course, the doctor says all is well ( takes no notice of my pain confusion etc) . I am slowly learning but no there yet because doctors just dont get it

wendypartridge profile image
wendypartridge in reply towendypartridge

I rang doctor and he just refuses to say t3 is low 'its fine within range ' he told me as is your tsh and t4 i really am at the end of my very last nerve with this

shaws profile image
shawsAdministrator in reply towendypartridge

Maybe give him a copy of your ticked off symptoms telling him you are ticked off by not yet recovering :)

thyroiduk.org.uk/tuk/about_...

The optimum aim for B12 is 1,000 now.

wendypartridge profile image
wendypartridge

thanks, shaws I did that once before he laughed and said' its a wonder youralive ' and dismissed it . so if my illness is not my thyroid leavls i think i need to insist on an answer although i no what his answer will be ' its fibromyalgia ' really feeling fed up sorry to moan , thanks for your help x

shaws profile image
shawsAdministrator in reply towendypartridge

You will have to take care of your own health it would seem to me, with the help from members.Most of us have been there and done that.

shaws profile image
shawsAdministrator in reply towendypartridge

If he says 'fibro' tell him that fibro is due to thyroid of thyroid hormone resistance and relief will come when I take T3.

web.archive.org/web/2010103...

greygoose profile image
greygoose

You do know that TSH doesn't cause symptoms, don't you? Whether it's high or low, it doesn't make you feel anything. It's the T3 that causes hypo or hyper symptoms.

wendypartridge profile image
wendypartridge in reply togreygoose

no greygoose i never knew that, do you have any logical evidence about the tsh

greygoose profile image
greygoose in reply towendypartridge

Logical evidence? Not sure what you would consider logical evidence. I just know what TSH does, and what it doesn't do. It stimulates the thyroid to produce thyroid hormones, and it plays a role in conversion, but it doesn't have any direct effect on any other cell or organ or bodily system. Unlike T3, which is needed by every single cell in the body to function correctly. If there's not enough to go round, or if there's too much, the cells mal-functions, and you get symptoms.

wendypartridge profile image
wendypartridge in reply togreygoose

thank you grey goose ,it kinda makes sense because whenmy t3 was 2.7 i felt dreadful but not in pain but yes that does make sense

wendypartridge profile image
wendypartridge

thank you very much Greygoose

greygoose profile image
greygoose in reply towendypartridge

You're welcome. :)

Not what you're looking for?

You may also like...

pregnancy levels, can someone have a look?

hi all!!- nearly 19 weeks pregnant, began this pregnancy on 100 eltroxin with a tsh of 0.04...
gracegirl78 profile image

tsh too low on levo dose

Hi, I was trialling an increase of levo from 125 to 150. My tsh dropped from 1.6 to 0.09 ( range...
WeeB profile image

just had a thought

i do appologise if you smell burnt rubber lol the NHS are complaining about the amount of wasted...
mandy72 profile image

Help with carpel tunnel

Dear all, I am currently suffering with what I think is carpel tunnel. I had this back in 2012 and...
Auntbessy profile image

HELP! BAD LAB RESULTS WITH NDT

I switched to 1/2 grain Armour Thyroid on August 9 and then on September 14 switched to 1/2...