Thyroid UK's Response to NHS Consultation

[lynmynott]

Thyroid UK responded to NHS England regarding the proposal to deprescribe Liothyronine for all patients, as outlined in section 4.9 of the document “Items which should not be routinely prescribed in primary care: A Consultation on guidance for CCGs”

Due to the complexity of our response, Thyroid UK's submission is in the form of a written document, rather than use the online form that was provided.

To read the response please go here:

thyroiduk.org/tuk/T3-Campai...

[loueldhen]

Thorough. Thank you. Filed for useful reference.

I can't wait to see their summary of responses - if they publish such a thing. I guess it will be something like - "We had 349 responses to liothyronine, 348 disagreed with deprescribing [the one that didn't disagree didn't understand the term 'to deprescribe'], 3000 others who answered the survey didn't comment on that aspect of the survey so on balance your views will be ignored."

[lynmynott Partner Thyroid UK in reply to loueldhen]

I hope not! We have some good MPs on our side and some big organisations that are disagreeing with the de-prescription so fingers crossed!

[Hillwoman]

Thank you for your work on our behalf.

[ShinyB]

Thank you for all that you do, and thank you for this response.

[Had-enough]

Thank you so much for this response, I can foresee a debilitating future for me without Liothyronine and I am worried.

[Nanaedake]

Thank you, I have filed a copy. It's really useful to read the section on how CCG's have been making decisions not to prescribe it and the fact that endocrinologists have been given a target to reduce presription by 60%. No wonder we've seen so many distressed ill people on this forum who've had it whipped out from under their nose and left hypothyroid and ill.

Is it ok to pass this on to friends and even our GP or is it confidential?

[lynmynott Partner Thyroid UK in reply to Nanaedake]

Hi Nanaedake, No, it's not confidential at all. Pass on to all interested parties! Lyn x

[Nanaedake in reply to lynmynott]

Thank you.

[nightingale-56]

A brilliant response Lyn. Thank you for all you do.

[Quokka]

This is briliant, thanks very much!

[Sunny65]

Thank you so much for all your hard work Lyn your a star! 😊

[lola1956]

Thank you ,getting harder than ever without t3 ..we need help

[Hennerton]

Thank you for such a comprehensive answer. It must have taken weeks to research and then write the response. We are all indebted to you.

[Hidden]

Thank you.💐

[lucylocks]

Many thanks for all you do.

[Babette]

Thanks Lyn. That's a fantastic response.

[JMo1]

Thanks Lyn! Fantastic response! X

[TaraJR]

Lyn, thank you so much for your comprehensive response. Brill!

[MaryMary]

Thank you for this comprehensive, logical reply. It must have taken a lot of time to compile, so thank you! I have saved it as the references are really useful to have in one place.

Mary

[Clutter]

Wow, I'm stunned. That is such a brilliantly comprehensive response. Well done, Lyn.

[Opatija]

Thank you so much Lyn

[Tiggywink]

Thank you so much for all your hard work producing such a thorough and comprehensive response!