Fluctuating tsh : Hi there diagnosed with... - Thyroid UK

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Fluctuating tsh

lisaallen profile image
lisaallen

Hi there diagnosed with hashimotos back in may. Been taking 100mg thyroxine and tsh coming down on blood tests (to almost zero) and t4 going up . Last test in August showed poss over medication but doc said keep going on 100mg and we will retest in 3 months. Bloods back today and tsh up to 10 which is almost level at diagnosis . Presumably doc suspected this may happen which is why he didn’t change dose last time ? Is this all normal ??

2 Replies
SeasideSusie profile image
SeasideSusieAdministrator

Normal with Hashi's, yes. Symptoms and test results can fluctuate as and when the antibodies fluctuate. Each time the antibodies attack they dump a load of thyroid hormone into the bloodstream and you can swing from hypo to a temporary sort-of hyper situation, then it swings back to hypo again. It looks like you could be in a very hypo phase at the moment.

Have you done any research on Hashi's so you know how it affects you? Are you gluten free and taking selenium l-selenomethionine 200mcg daily to try and help reduce the antibodies?

Gluten/thyroid connection: chriskresser.com/the-gluten...

stopthethyroidmadness.com/h...

stopthethyroidmadness.com/h...

hypothyroidmom.com/hashimot...

thyroiduk.org.uk/tuk/about_...

As you are Hashi's, and gut/absorption problems go hand in hand with Hashi's and can cause low nutrient levels, what are your vitamins and minerals like? You mentioned in a previous post about B12 being 145. Did you get checked for Pernicious Anaemia?

You also need Vit D, Folate and Ferritin checked. All vits and mins need to be optimal for thyroid hormone to work.

Hi there thank you for your detailed response. I had nhs bloods for b12 I was told they were ‘normal’. But haven’t had the fight to get the numbers from the doc. Went vegan shortly after diagnosis and found gluten free too tricky alongside that . I need to make an appointment with doc probably to discuss the numbers of the b12 test. The labs round here won’t routinely test the other things you mention ... :( x

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