Hypothyroid & fluctuating TSH: Hi everyone, this... - Thyroid UK

Thyroid UK

144,210 members169,655 posts

Hypothyroid & fluctuating TSH

minniemuffinmoo profile image
7 Replies

Hi everyone, this is my 1st post on here. I was diagnosed back in april with autoimmune thyroiditis (hypo). My TSH was 9.6 & I was put on 25mg of Levothyroxine & this was soon increased to 50mg. Slowly my TSH came down to 6.4 until my last blood test last week. My TSH is now 14, higher that when I was diagnosed!! Is it usual for this to happen? That seems to be a big jump from 6 weeks ago when it was 6.4. My GP has increased my dose now to 100mg & I think he was trying to say that to maintain me within range my levothyroxine must be increased to 100mg. He also did an an antibody test back in May & he said that the rate my immune system is attacking my thyroid is fast or high. Am I right in assuming that this can happen until the right dosage of levo has been obtained?

I do have the usual symptoms & have not felt too good lately, so suspected that my TSH had gone up.

Any help would be very much appreciated :)

Written by
minniemuffinmoo profile image
minniemuffinmoo
To view profiles and participate in discussions please or .
Read more about...
7 Replies
Clutter profile image
Clutter

Welcome to the forum, Minniemuffinmoo. Autoimmune disease (Hashimoto's) will in time destroy your thyroid gland but Levothyroxine will slow progression of the disease.

Autoimmune disease is thought to start in the gut and some Hashi patients find benefit from adopting a gluten-free diet which sometimes help to reduce antibody levels and the frequency of Hashi flares.

Ask your GP to test ferritin, vitamin D, B12 and folate as hypothyroid patients are often deficient/low and these deficiencies can cause musculoskeletal pain, fatigue and low mood similar to hypothyroid symptoms. Post your results with the lab ref ranges (the figures in brackets after your results) in a new question and members will advise whether supplementation is required.

thyroiduk.org.uk/tuk/about_...

minniemuffinmoo profile image
minniemuffinmoo

Thank you for your reply. I have had all the tests you mentioned & they came back within normal. So I am having a Hashi flare despite being on the levothyroxine? I will have to read a little more about Hashi's as my GP never uses that word but I know it's one & the same when you have autoimmune thyroiditis!

Stourie profile image
Stourie in reply tominniemuffinmoo

Although your results were within normal limits maybe they are not optimal for you. Would you post your results and let the good folks here comment.

minniemuffinmoo profile image
minniemuffinmoo in reply toStourie

I don't have a copy of them..can I request them all from my GP?

Stourie profile image
Stourie in reply tominniemuffinmoo

Yes, and they cannot refuse altho they may try but it is your right to get them

Chicken12 profile image
Chicken12

I was referred to an Endo when my TSH rose to 8 or 10 I think it was. They tried me on thyroxine for one year, to see if the TSH reduced, and it did for a while but then it crept up again. When I saw the Endo I had bloods taken for kidneys and tests carried out for the pituitary. Luckily it was neither. I was diagnosed with Hashimos after testing positive for the antibodies. My GP never put me on a high enough dose of thyroxine, I was only ever on 50 and I take 100mcg now. I would think they will monitor you for a while and then refer you to an Endo if results don't come into the "range". Do you feel okay? I had huge weight gain, tired, forgetfulness, cold etc.

minniemuffinmoo profile image
minniemuffinmoo in reply toChicken12

Hi thanks for your reply. So did the endo do the antibody test when you had the other tests? I have already had this & it's positive.

Not what you're looking for?

You may also like...

OH sudden increase in TSH 14 years after Radioactive iodine treatment

Hi,OH (65) has been feeling really fatigued the last few months, also really feeling the cold....

fLuctuating TSH levels

Hi. I have written before, but I wonder if there are any ideas as to how to manage my situation. I...
philippa1412 profile image

Increased TSH level.

My TSH level gone up from 1.1 at my last test to 2.8 and my T3 is 12. I am currently on 75mg of...
CarolineWade profile image

Recently diagnosed and trying for a baby

Hello, I have just been diagnosed with an under active thyroid by my GP and i am 31 years old, my...
ruby678 profile image

Help please!!! Hypothyroid now not hypothyroid but subclinical thyroid dysfunction whaaaaat

So I have been to the doctors today, I saw a different doctor to my regular doctor. I was diagnosed...

Moderation team

See all
PurpleNails profile image
PurpleNailsAdministrator
SlowDragon profile image
SlowDragonAdministrator
Buddy195 profile image
Buddy195Administrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.