Hi everyone I just joined this community due to a very bad day at the GP’s, that has left me really upset & doubting of my own sanity, I hope it’s ok to share this long ramble.
I was diagnosed with underactive thyroid in 2009 after 4 years of symptoms but with ‘normal’ blood test results...after a nervous breakdown due to feeling constantly unwell I was found to be hypothyroid with high antibody levels. My GP at the time concerned by the numbers referred me to an endocrinologist (but he frankly treated me like i was a neurotic crazy person & in his words “I don’t know why she sent you”!)
After a good while of levothyroxine treatment my physical symptoms although never having completely gone improved greatly to the point of being liveable, before diagnosis I had permanent fatigue, dizziness and vertigo for 4+ years.
Fast forward to December of last year when I had a severe vertigo attack out of the blue which left me with residual dizziness on and off since, eventually after being unwell all year a few weeks ago my thyroid levels were shown to be off again & my thyroxine has been upped from 50mcg to 75mcg.
I’m still feeling awful i’m exhausted, my tongue is now scalloped, my legs are stiff, I have an unbalanced feeling 24/7 & all in all i’m just feeling awful as I was before my first diagnosis.
I wanted to go to the doctors again today to find out a bit more given my initial diagnosis was a good few years ago now & ask about the Hashimotos diet I’ve been reading about & whether they thought that could benefit me & just maybe get some reassurance that I will feel better.
....I say to the doctor “ I presume given my high antibodies level that it is probably hashimotos?
To be told “no that’s wrong hashimotos causes overactive thyroid & you’ve never been overactive ....”
At this point I was so utterly dumbfounded, feeling so unwell & pondering if everything I’ve ever read is wrong I burst in to tears & just gave up, if she thinks hashimotos causes overactive thyroid what is even the point trying to find more information.
To make matters worse she said “do you think you’re just anxious” ....
& my scalloped tongue that I’ve never had before I was told “people just have that naturally.”
I’ve never felt so utterly dismissed & dejected.
Sorry for the long rant, I just feel so upset that a GP can be so dismissive of a condition that affects so many people’s lives. I feel powerless in regards to my own health, I lost the majority of my twenties to this & the thought of being unwell again with no end in sight is heartbreaking.
Apologies for the rant. Thank you for allowing me to share my day.