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Thyroid UK
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Please help! I'm at a loss!

I will keep this as brief as possible.

At the age of 11 I was diagnosed as over active (treated with carbimazole) Over time it went under active (treated with thyroxine) until At the age of 23 I had my first child. Apparently there after my thyroid is classed as 'normal'

But I never feel 'normal' approx once I year, I pop into docs and tell him the same -

I'm exhausted

Gain weight by looking at food

Low moods

Severe headaches

Poor concentration / foggy mind

I'm always told bloods all normal.

My latest results I have -

TSH 1.59 (0.34-5.6) July 17

T3 4.9 (4-6.6) July 17

T4 10.9 (7.09-20.0) July 17

In Feb my TSH was 2.3

7 Replies

Your thyroid levels are too low

You probably need to start on Levo

Ask GP to test vitamin D, folate, ferritin and B12

Did you have Graves' disease ?

See this excellent video series - free tonight only


If you can't get full thyroid and vitamin testing from GP


Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have money off offers. DIY finger prick test or option to pay extra for private blood draw or

All thyroid tests should be done as early as possible in morning and fasting and don't take Levo in the 24 hours prior to test, delay and take straight after. This gives highest TSH and most consistent results

Email Louise at a Thyroid UK for list of recommended thyroid specialists louise.roberts@thyroiduk.org.uk

1 like

Thank you so much for taking the time to reply. And yes it started off hyperthyroidism at 11.

I'm off to see a consultant in rheumatology on Thursday, in hoping they will look into my bloods abit more despite not being an endocrinologist x


Be nice if they did

If not private tests are the way to go

I followed conventional medical advice 20 years.....not any more ....now my endo is catching up with USA thinking on importance of diet and vitamins, plus T3 obviously

See pages 5-8



1 like

You may well find that the rheumatologist is helpful. It wouldn't be the first time that a specialist in another discipline knew more about thyroid problems than the endo.

You've probably read on here that 'normal' is not the same as 'optimal'. I'm also a believer that getting vitamins and minerals right is essential; then your thyroid meds will work better.

If you haven't done so already, you'll find the Thyroid UK website is very useful. thyroiduk.org/index.html


Thank you, let's hope they can shed some light. I'm just beyond exhausted now x


Agree. My GP started messing with my treatment as he said TSH too low. I’ve been hashimotos for over 20 years. But I had a series of other health issues inc ANA and DVT and diagnosed with SLE and APS a blood clotting disorder. Rheumatologist then tested Thyroid panel and found TSH of 40. She was shocked and basically told GP not to fiddle anymore. Exhaustion was my main issue along with eyebrow hair loss, nails not growing

1 like

Yikes, bless you.

I've just been tested for lupus but GP said that was normal. My ANCA bloods came back slightly raised. My creatine kinase very raised and my ESR levels are very raised too x


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