I am 30 years old endo stopped my thyroid medication of 175mcg levothyroxine and I am feeling awful I was diagnosed 2011 with hypothyroidism what do I need to do please thankyou
TSH 7.10 (0.2 - 4.2 mIU/L)
Free T4 13.3 (12.00 - 22.00 pmol/L)
Free T3 3.5 (3.1 - 6.8 pmol/L)
Good God, they get worse
When was this stopped? What reason?
Have you got any blood test results to add?
Do you have any Levothyroxine that you can start again, once bloods tested?
Thankyou it was stopped due to below range TSH and I have levothyroxine left over latest results been added
I am in the US so am not totally familiar with your health system, but maybe a private doctor would be the way to go. You were on a pretty substantial dose of thyroid replacement to go from that to nothing seems crazy. Could you get copies of your bloods and post them? In the meantime support your thyroid with selenium or a combination thyroid supplement. Add seaweed to your diet and perhaps nacent iodine. When adding iodine he sure you are taking selenium and adding sea salt to your diet
TSH 7.10 (0.2 - 4.2 mIU/L)
Free T4 13.3 (12.00 - 22.00 pmol/L)
Free T3 3.5 (3.1 - 6.8 pmol/L)
On nothing at all and before that when I was on medication
TSH 0.02 (0.2 - 4.2 mIU/L)
Free T4 20.5 (12.00 - 22.00 pmol/L)
Free T3 4.3 (3.1 - 6.8 pmol/L)
So these are results since dose stopped?
How long have you not had any Levo?
Do you have Hashimoto's also called autoimmune thyroid disease, diagnosed by high antibodies?
TSH of 7.10 when dose stopped and I was off levothyroxine for 6 weeks and I have antibodies of TPO 346 (<34 IU/mL) and TG 253.1 (<115 IU/mL) thankyou
So you have Hashimoto's
Did they ever bother to explain that? I doubt it
You need to start back on Levo, but it will have to be in steps. You probably can't start straight back on 175mcg
Especially if your vitamins are now low
50mcg probably would be ok, you might cope with 100mcg
With Hashimoto's it is very likely hidden food intolerances can be causing issues, most common by far is gluten.
Changing to a strictly gluten free diet may help reduce symptoms. Very, very many of us here find it really helps and can slowly lower antibodies.
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Has GP seen latest results
GP hasn't seen latest results no
Did GP do them or did you get privately?
Either way take results in, explain that you have started back on Levo at 50mcg and will need retest blood form for 6 weeks time.
You might consider putting in a complaint against the endo you saw. To leave you on no Levo, not closely monitored and with such awful results is negligent.
Second set of results was about perfect.
Endo freaked out at low TSH, but both FT3 and FT4 are in range
Do you have vitamin D, folate, ferritin and B12 test results either from when on 175mcg or now (or both)
Your blood test results were fine when on Levothyroxine. Your Endo knows nothing about Thyroid hormones. I would go to your GP and get levo prescribed and complain about your treatment to the hospital. Your Endo is not qualified to treat you if he/she doesn't understand thyroid hormone. TSH is a pituitary hormone. It doesn't matter if low when FT3 and FT4 in range.
And I agree with Greygoose don't supplement iodine, it's not recommended.
Thankyou yes when on 175mcg levothyroxine
Ferritin 98.3 (30 - 400)
Folate >20 (2.5 - 19.5)
Vitamin B12 536.5 (190 - 900)
Vitamin D 72.0 (50 - 75 suboptimal)
On nothing at all
Ferritin 46.3 (30 - 400)
Folate 2.3 (2.5 - 19.5)
Vitamin B12 241 (190 - 900)
Vitamin D 56.2 (50 - 75 suboptimal)
Taking 3000iu from prescribed 800iu D3 and folic acid and ferrous fumarate once a day
see SeasideSusie excellent vitamin advice
Eg
Well, your vitamin levels really dropped when your thyroid medication was taken away. I would be dropping that into your complaint, if you make one, as clearly the Endo has made you nutrient deficient which surely demonstrates poor concern for your wellbeing.
Considering you are supplementing vitamin D3, presumably at your own cost since the NHS haven't given you enough, your levels now are much too low!! I hope they reimburse you for the cost of all the vitamins you've had to buy due to the Endo's incompetence.
the high dose of levo may be masking a pituitary problem
Explain why. What would thyroid blood test results look like if there was a pituitary problem?
tsh would be high and t3 low
they often ask for tsh and t4, you have to ask for t3
FT3 would be low anyway if TSH were high, as likely FT4 would be low too.
If the Endo had any concerns about a pituitary problem, he should be discussing it with the patient, not stopping their Levothyroxine.
I think if there were a pituitary problem TSH would not have risen when off levo.
No, don't add seaweed to your diet. Nor nascent iodine. That really isn't recommended for people with thyroid problems, and could make matters ten times worse. 
I have been on both for years. Not here to debate just saying everyone has to do their own research. Dr Brownstein 's book on the thyroid is a good place to start. Selenium is a must when including iodine. Seaweed and nacent are really low levels. Go low and go slow. Everyone's body is different and all you can do is do your research, try things that seem appropriate, see how you feel and follow up with your doctor regularly.
No, you didn't say that everyone should do their own research, you said 'Add seaweed to your diet and perhaps nacent iodine.' That's not a suggestion, that's an order.
I'm not her for a debate, either, I just don't want people who know nothing about thyroid - the OP is new to all this - doing something that is not recommended and could make them worse.
Skeptical
do you have Hashimoto's?
I have not tested positive for antibodies, but my endo said that does not mean I do not have it . My thyroid scans suggest that I do, but apparently what I am doing keeps antibodies in check. I've been following a gluten free diet for years along with a number of supplements.
You cannot replace thyroxine with seaweed or iodine . .just not same thing. It's like saying cabbage suppresses thyroxine but you'd have to eat ridiculous amounts to gave any effect.
Jeez. Does this endo know how to read results? Quickly get back on thyroxine and put in a huge complaint! ( I had a GP who made mistake of thinking high reading was high thyroxine but we discussed and he realised was wrong straight away) . . Endo's should not make mistakes like this . .young endo missed out a blood test as in his opinion I was fine after nuclear medicine though I said I was sure I was getting hypo. Took years to recover as had no thyroxine in my system.
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