I've really benefited from all the excellent advice here and I have read some very informative posts along this same issue so really just posting because I am worried about my thyroxine being reduced.
Background to this is I have now been on 100mg of levothyroxine for just over 2 months (after starting on 25mg in June, increased to 50mg in July and then to 100mg at the end of July). I am now starting to feel a lot better.
I received a phone call from my GP surgery this morning to tell me that my last blood test result (taken last week) had come back and because my TSH had dropped from 6.6 (22/06/17) to 0.5 my GP wanted to see me again. I am now worried they want to reduce my medication. I have told my surgery that I don't want to make an appointment with the GP as I will have to see a GP in just under 2 months anyway when my prescription runs out and I have a consultant appointment before then.
I am going to the surgery tomorrow morning to ask for a print out of my lab results as I want to know what my FT4 is too and also want a copy to take to the consultant endocrinologist in mid November. I know the consultant I have been referred to specialises in diabetes as I checked when I received my appointment letter. So now I think I will have to convince this consultant to notify my GP not to reduce my medication. I have a copy of the BMA booklet 'Understanding thyroid disorders' by Toft so I will take that to the consultation to back up my argument for not having my medication reduced.
I know I am anticipating that it is my GPs attention to try and reduce my medication but I am very worried that the GP is going to try and reduce my medication because of the drop in my TSH level from 6.6 to 0.5. I am not looking forward to this conversation with my GP as I suffer from 'white coat syndrome' and find it hard to be assertive when I already feel very nervous. I am really worrying about my medication being reduced and starting to feel ill again.
I have previously posted my results on here but not sure if I have mentioned that I requested antibody testing
My result from that was TPO 768iu/mL positive>100 20/07/17.