Diagnosed with chronic adrenal fatigue by dr p - Thyroid UK

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Diagnosed with chronic adrenal fatigue by dr p

Leegadsby profile image
17 Replies

Hi have finally been given a diagnosis by the one and only dr p of chronic adrenal fatigue and have been on 1 x adrenavive 2 per day for 10 days, I feel worst than ever and am unable to even get out of bed for days at a time, has anyone had any success with treating this or any advise

Tia

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Leegadsby profile image
Leegadsby
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17 Replies
marigold22 profile image
marigold22

When I saw Dr P it was in 1999 before he walked away from being signed up with the GMC/BMA. He diagnosed me with very low adrenals just by looking at me & testing reflexes. In those days he was able to prescribe hydrocortisone and I took 5mg a day. I had to stop my thyroid med for a while for the hydrocortisone to kick in and help the struggling adrenals. Now he is not allowed to prescribe medication like that and has to stick to the natural stuff. I'm unsure what's in Adrenavive but it seems like early days. Are you taking any thyroid meds? By the way, I will say to you - he is now an elderly gent, has always been extremely busy, therefore you will need to be fairly proactive in your healing process. Sorry I can't give you any more info. Though I have a member here suggest buying hydrocortisone cream 1% over the counter and using that to help adrenals

marigold22 profile image
marigold22 in reply tomarigold22

healthunlocked.com/thyroidu...

This may be helpful.

Leegadsby profile image
Leegadsby in reply tomarigold22

Hi

I'm not on any thyroid meds at all, blood shows thyroid is fairly normal, but dr p thinks crashed adrenals are not letting me use the thyroid hormones correctly, how does hydrocortisone work ?

marigold22 profile image
marigold22 in reply toLeegadsby

These are replies to a post about 4 years ago that I have found.

"Dr P helped me very much and gave me the confidence to continue to help myself. He is a lovely man, but I feel that he is a firefighter - he gets people up and functioning and then they have to sometimes do a bit of investigating themselves - he empowers his patients. "

"Paul Robinson, a scientist, has done a huge amount of research and personal experimentation treating exhausted adrenals using the Circadian T3 Method, or CT3M, and apparently this works extremely well for many people. He suffered from severe adrenal issues himself"

"The CT3M is great if you have adrenal fatigue, but if your adrenals are in greater trouble they just can't produce enough cortisol irrespective of the amount of T3 put into the system to help them. In those cases people need to provide other adrenal support or replacement hormones such as hydrocortisone (HC) - so be careful.

Buy his book recoveringwitht3.com/book/c...

"The CT3M helped my moderate adrenal fatigue but my son, who has very low cortisol production all day, (due to a congenital adrenal condition) was incapable of being helped by it - it is not a panacea for adrenal issues. We are individuals and our health issues need to be treated in an individual way".

"I suppose what I wanted to say is that Dr P is lovely - like many people using this site I have also been treated by him - but he does not hold all the answers. I was well for quite a few months under his regime but suffered a relapse, and have come to realise that for me Dr P was the first and most important step on the road to self-management of this wicked illness. Dr P himself works with his patients to this end - for them to become self-experts and make him redundant. A most generous man.”

Leegadsby profile image
Leegadsby in reply tomarigold22

Thank you for your replies,

I completely agree with you about him being generous into having to train ourselves, I have learned so much already about the thyroid conditions and treatments, however not so much about adrenal fatigue, I think he said mine were about as bad as it gets and I had the double Wammy with adrenal failure and not using my bodies t3, I'm feeling so unwell now I have no life whatsoever, my business is ruined, I've lost the love of my life, have no social life and am stuck in bed for 3-4 days and nights at a time and I am only 28 😢 I just don't know what to do anymore

marigold22 profile image
marigold22 in reply toLeegadsby

It can only get better now with the help of this forum. I too lost my 15 year marriage, then my own home, couldn't hold a job down. As I said - GPs are unable to interpret thyroid blood tests. I think you need to get a thyroid blood test to include TSH, Free T4 and Free T3 & as many other tests as GP will do. Preferably vitamins B12 & D, ferritin and ferrous. Then after one week you MUST go to GP reception desk and ask for a copy of those blood results; you are legally entitled to have a copy. Then post those results on here for help and comments. There are ranges for each test. The TSH test result must be under 1 to feel anything like normal. The Free T4 and Free T3 must be in the upper part of the range. GPs just say you're fine if your results fall within their wide range and do not comprehend how much that makes us feel ghastly.

marigold22 profile image
marigold22 in reply toLeegadsby

I too had Double Wammy - extremely low adrenals - Dr P said he was surprised I could still stand upright. Also the T4 I was taking for the 14 years previously to seeing him was not being converted into the usable thyroid hormone T3. So I didn't have any good thyroid hormones in me. Turned out I have a genetic fault whereby T4 can't be converted into T3 - did that test (DIO2) in April this year.

marigold22 profile image
marigold22 in reply toLeegadsby

You say blood shows thyroid is fairly normal. Have you seen the blood results yourself? GPs are unable to interpret thyroid blood tests.

Leegadsby profile image
Leegadsby in reply tomarigold22

Yes I have done lots of tests, I have posted on here previously if you look at my profile I have those readings for blood from thriva and the 24hr saliva/ urine cortisol, dhea and t4 test, please any advice would be greatly appreciated

marigold22 profile image
marigold22 in reply toLeegadsby

Apologies I didn't read your profile or previous posts. The Free T3 blood test is vital.

pinkjess17 profile image
pinkjess17

Hi,

If you feel worse I would cut it down or taper off before you get any worse. It may be too strong for you, you need to listen to your body it's the best guide. Thorne does an adrenal cortex in 50mg dose which is weaker, you can get it on iherb. Hope this helps.

Leegadsby profile image
Leegadsby

I'm supposed to be doubling the dose tomorrow, I have read that people feel wiped out at first on this adrenavive 2 I've also got some strange aches all over and a weird pain in my wrist, just had the lowest oral temp reading I've ever had too of 95.1 f something is very wrong

pinkjess17 profile image
pinkjess17 in reply toLeegadsby

It's up to you, but you need the correct supplement that suites you. You should feel better, not worse even at the beginning. It could be switching your own adrenals off too much hence why your temperature is dropping not rising.

marigold22 profile image
marigold22

I hope it's not Addisonian Crisis. Your temperature is worrying. Dr P said your adrenals are very low. Perhaps you should go to A&E and see if they can do all types of investigations to at least rule out some illnesses. I'm sorry to sound harsh but you will have to somehow beat this fear of needles. (good job you aren't a pregnant woman! :-) )

Leegadsby profile image
Leegadsby

I hope not too, I wish it was as easy as that for me, but I have seizures when someone tries to do anything medically to me, especially needles, if I go to a and e they will just want to stick needles and don't understand my condition even having my blood pressure taken can make me pass out 🙈

marigold22 profile image
marigold22

It's your choice. Speedily find a way to get blood tests done - valium, hypnotherapy, or google it for ideas. Or perhaps die a horrible death. Extremely low adrenals along with very low thyroid hormones = Addisons Disease

healthunlocked.com/thyroidu...

Kasikkk profile image
Kasikkk

Folks. Im very suspocious. Im feeling like i have adrenal as well. My serum cortisol was 70 afternoon and thre accepted as a normal. Should be rechecked in the morning but from 4 days my doctor dont wana send me for retest this. He found thyroid on me but im feeling very tired.

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