12 year old boy died of missed Addisons

[marigold22]

dailymail.co.uk/news/articl...

Disgusting. Doctors are not fit for purpose

[greygoose]

I don't think it's that rare! And I don't think that that's all they missed. Looks to me like he's got a goitre.

[Hidden]

I agree with GG, it doesn't seem that rare to me. I know 2 people in my relatively small community who have been diagnosed and treated for the disease.

[Marz]

When thyroid issues are missed I believe the adrenals become stressed and mal-function. For many of us his handsome but hamster cheeks - eyes - neck - really tell us everything. Sadly for Docs it means nothing ....

[marigold22 in reply to Marz]

I had severe adrenal issues having been hypothyroid for decades when finally diagnosed, then on T4 fir 14 years. Then found Dr P who diagnosed the very low adrenals. i felt like death. That poor boy

[Marz in reply to marigold22]

I think I would have been burned at the stakes - I see things all the time.

So glad Dr P sorted you. He also taught me to look after myself 😊😊

[humanbean]

I am amazed that the doctors didn't follow up on the hyperpigmetation. I thought it was a classic sign of the disease.

[marigold22]

That story has been on my mind all morning. Those two GPs still have their jobs. Even wondering whether to write a letter to the mother - they live in a village in Wales so I'm sure it would get to her. It should not have been missed.

[bobbyb in reply to marigold22]

You should, it might be of some comfort. You could maybe suggest they and any relatives get their thyroids tested. I was thinking of doing the same.

[marigold22]

Have just gone back and re-read this story. The poor lad died in 2012

[bobbyb]

There was a young boy on the news recently , doctors missed Addisons disease and he died think he was only about 8.I saw another case recently. My sister had Addisons disease, she was diagnoised when she was about 19 and she died swimming in India when she was 28, 20 years ago. I don't think she was ever treated properly. My brother who is a Doctor in Ireland referred somebody who he suspected of having addisons disease and he got a real telling off, but he was right the person did have Addisons disease. I recently saw an article about a woman freeloading at a funeral the person whose funeral it was had Addisons disease. It definitely seems to be on the increase. I wish my Sister had seen Dr Skinner or Dr Peatfield , she would probably be alive today if she had.

[marigold22 in reply to bobbyb]

The details of Addisons is in the old medical books. We are going backwards. So sorry to hear about your sister.

[bobbyb in reply to marigold22]

The Doctors said she was anorexic, she was wasting away in front of our eyes. My Sister was flicking through my Brothers medical journal just by chance when she saw a case study on someone with Addisons Disease and she phoned my Brother.. If she hadn't done that she would have died then.

[Kitten1978 in reply to bobbyb]

I'm so sorry about your sister ;( It's good to hear that your brother is able to stand up for his patients and defend his own diagnosis. He probably saved his patient's life. One reason why more and more people suffer from Addison's is barbaric approach of the nhs to diagnosing and treating thyroid disorders...

[Kitten1978]

Clare Cooper died aged 24 in February 2013 from Addison’s disease: globalgenes.org/raredaily/u...

"The inquest at Woking Coroner’s Court on Friday heard how doctors at Woodlands Surgery, in Woodlands Road, Redhill, missed “red flags” including Clare’s complaints of unexplained weight loss throughout 2012 and two blood tests showing she had a sodium level of 126 milliequivalents per litre – compared to a usual reading of between 135 and 145. But rather than searching for an “organic” – or physical – cause, the inquest heard doctors referred Clare to an eating disorder clinic to test for a psychological cause."

[Kitten1978]

On death's door: Addison's Disease Survivol Story: experienceproject.com/stori...