Don't take my life away..πŸ’•: Hi all I am on T... - Thyroid UK

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Don't take my life away..πŸ’•

Lunasaysso profile image
Lunasaysso
β€’7 Replies

Hi all I am on T3 have been for thirteen years T4 made me extremely ill and I list a good ten years of my life on it my consultants put me on T3 after trying every avenue I absolutely cannot and will never take T4 ever again T3 has changed my life for the better and more or less cured my hypothyroidism if I didn't need T3 I wouldn't be on it would I I have all my consultants letters to presant day saying I must not take this toxic drug I'm lucky to be alive as a thyroid storm was created by this drug I have and cannot convert T4 some poeple can't after all we are all different thinking they were going to take my T3 away has made me feel suicidal after all it is not my fault I have to take T3 besides there should always be a back up drugs for people like me and others that most definitely cannot tolerate T4 you have to suffer from this awful condition to understand how one feels I would rather die with no drugs than die on a drug that was killing me wrong so wrong please don't take my T3 away from me thank you ..πŸ’•

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Lunasaysso
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7 Replies
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SlowDragon profile image
SlowDragonAdministrator

Are you in the U.K. and have you been threatened incorrectly and inappropriately with having your prescription removed?

Lunasaysso profile image
Lunasaysso in reply to SlowDragon

Yes I live in Kent thank you so much thank goodness for forums like this.πŸ’•πŸŒΉπŸ’•

EbonyEvans profile image
EbonyEvans

If you have previously been on T3 and have a clinical need for it, it should not legally be removed. Do not give up hope or stress yourself out with the CCG β€˜powers that be’. You can self medicate. I have pm’d You with my supplier who is very reliable should you need to temporarily go down that route. And for anyone reading this - please do not ask me to pm you as I’ve learnt it’s long and arduous (I haven’t updated my phone so I have to remember your user name, type it in,etc) BUT feel free to drop me a message so I can reply.

Positive vibes Luna. This forum are here for you πŸ’œ

Lunasaysso profile image
Lunasaysso in reply to EbonyEvans

Thank you from my heart your comment helped me a lot ..πŸ’•πŸ’•πŸ’•πŸ’•

Clutter profile image
Clutter

Lunasaysso,

It's not us you need to convince but NHS England.

healthunlocked.com/thyroidu...

Please complete the NHS England Survey re withdrawing Liothyronine prescriptions. engage.england.nhs.uk/consu...

Please also sign the petition requesting better thyroid diagnosis, testing and treatment. change.org/p/itt-campaign-g...

Lunasaysso profile image
Lunasaysso

Thank you everyone for kind comments from the bottom of my heart and advice ..πŸ’•πŸ’•πŸ’•πŸ’•πŸ’•πŸ’•πŸ’•πŸ’•

Lunasaysso profile image
Lunasaysso

Hi everyone haven't posted anything for a while ,I have been trying to sort my liothyronine medications out however some good news it looks like I will get this essential medication from my hospital I had become very stressed about it but feel better about everything I also take vitamin D and sea kelp and a sod liver oil three times a week this really helps me a lot I have had an underactive thyroid for years with many ups and downs trust me a good healthy diet a little exercise etc makes a world of difference ,I hope this will help someone out there season's greetings freinds all the best and stay positive..πŸ’œ

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