ANTIBODIES RESULT.

[Rmichelle]

hi all i had my second lot of bloods taken a couple of weeks back and have now got a copy of my bloods from docs which has got results for my antibodies but tgab not been done, surprise.i have not supplied you with the other results as i have had advice from you great people on these. The doc said the aim is too bring me down to hypo as it makes life easier for all, ha not sure how all hypo people will feel about that as it is not easy for them, doc said it probably thyroiditis or hashis please help i trust you guys more!!x if there is anything else i need please say.xx

Thyroid tpo(mro) 865 lab range0.00-60.00 abnormal.

Thyroglobilin mro. No action normal no actio.- note from lab saying requested in error.not applicable- maybe endo will do these?

Tsh and frees are all improving.

[Clutter]

Rmichelle,

Thyroid peroxidase (TPO) antibody 865 means you have autoimmune thyroiditis (Hashimoto's). Hashi's can cause transient hyperthyroidism but it usually resolves within 3-4 months without Carbimazole so you may have Graves and Hashimoto's in tandem causing hyperthyroidism.

Your endo will need to test TSH receptor antibodies (TRab) or Thyroid Stimulating Immunoglobulin (TSI) to confirm or rule out Graves in addition to Hashimoto's.

There is no need to test thyroglobulin (TGab) as Hashimoto's is already confirmed.

thyroiduk.org.uk/tuk/about_...

There is no cure for Hashimoto's which causes 90% of hypothyroidism. Levothyroxine treatment is for the low thyroid levels it eventually causes. You may find that you achieve remission from hyperthyroidism for a while and that you eventually become hypothyroid in a few years or decades.

Many people have found that 100% gluten-free diet is helpful in reducing Hashi flares, symptoms and eventually antibodies.

chriskresser.com/the-gluten...

thyroiduk.org.uk/tuk/about_...

[Rmichelle in reply to Clutter]

Thankyou clutter will the endo do these tests for graves ir do i ask? There is so much to remember, not sure on what happens at first appointments mine is nxt tuesday, will they take bloods. Ultrasound etc i really dont know? I have been diagnosed celiac with bloiods i am going gluten free tomorrow for sure its about time.x

[Clutter in reply to Rmichelle]

Rmichelle,

My endo doesn't take bloods at the consultation, I have them done a few weeks prior to the consultation.

If your thyroid was tested within the last 3 or 4 weeks I imagine your endo will work off those results. Perhaps you could take copies with you. If endo thinks more bloods or ultrasound scan is necessary s/he will order them. Ask your endo to do TRab or TSI to confirm or rule out Graves.

[Rmichelle in reply to Clutter]

I will be due bloods the week after endo. I get mine done every month so i could get them done a week earlier so they will have them there. Ultrasound requested by my doc i have that for 3rd nov. will doc prescribe higher dose to bring me hypo.

[Clutter in reply to Rmichelle]

Rmichelle,

The endo will decide what dose you need based on your blood levels and will tell you how often you need monitoring after your consultation. I would have thought the aim was to make you euthyroid not hypothyroid.

As your GP has arranged an ultrasound scan 3rd Nov there's no need for the endo to arrange one too.

[Rmichelle in reply to Clutter]

Yes doc said aim to make you hypo. one day hopefully i will see that light at the end of the tunnel. But i surpise its still early days.

[Clutter in reply to Rmichelle]

Rmichelle,

Your GP is wrong. The aim should be euthyroid levels not hypothyroid.

[Rmichelle in reply to Clutter]

I knew you would say that, again proves their ignorance.x

[Clutter in reply to Rmichelle]

Rmichelle,

GP may have meant that you will be invited to have RAI or thyroidectomy which will make you hypothyroid. It is premature to be considering that at this stage though.

[Rmichelle in reply to Clutter]

I dontvknow what he meant really. Clutter can i ask will i remain on carbi until im hypo.then and then they will change meds. I always thoughtbhadhis was connected to hypo and graves to hyper, i do find it a little confusing still.x

[Clutter in reply to Rmichelle]

Rmichelle,

Hashi's will usually cause hypothyroidism but it sometimes runs in tandem with Graves which causes hyperthyroidism. The hyperthyroidism is prominent at the moment.

If your endo treats you with Carbimazole titration euthyroid should be the target. If endo is intending Block & Replace treatment that means Carbimazole dose will be increased until you are hypothyroid and Levothyroxine will be introduced to replace the thyroid hormone Carbimazole is blocking.

[Rmichelle in reply to Clutter]

Thankyou clutter i understand now. I do hope its not graves but it is what it is at the end of the day.

[Rmichelle in reply to Clutter]

Clutter ive been thinking again- i know dangerous but ive been reading various info on graves and hashis and im now confused again. Ive read that tpo is to confirm just for antibodies, that is what ive got but dies this mean i could have graves or hashis then? Tgab is for hashi and tsi for graves? I havent had this done yet or is tpo confirmation for hashis. Sorry just dont get it at moment. Probably reading to much.xxhelp

[Clutter in reply to Rmichelle]

Rmichelle,

TSI and/or TRab are Graves antibodies tests.

TPOab and TGab are Hashimoto's antibodies tests.

Some Graves patients also have high TPOab ie they have Graves and Hashimoto's in tandem.

[Rmichelle in reply to Clutter]

Right ok. So i do have hashis then for definate,jyst felt confused as people with hashis are mostly hypo. I will ask endo on tuesday about tsi test. For now i will shut up and go and have a word with myself and a cuppa.xxx thankyou

[purple64 in reply to Clutter]

I had my first endo appointment. No scan was done. Just a physical examination of the throat and neck. They also took about 6 lots of bloods although I did ask for vitamins to be checked. Does gluten free work for Graves? Trouble is I like a biscuit with my morning coffee 😂

[Rmichelle in reply to purple64]

No need to give up the biccies there is a wide choice of biscuits, cakes etc, no need to go wirhout, check out asda online section and marks spencers although more expensive. I dont know about graves though, but i need to be tested for that aswell. My doc has booked a ultrasound due to my symptons of swallowing food and being breathless he is thinking nodules pressing on windpipe, doc felt my neck other day then said i think ultrsound. How did it go your 1st appointment? Did you feel treated well etc.youre hyper yes? Sorry sometimes i loose track on who has what. Im still on carbi 20mgs but it soon wears off

[purple64 in reply to Rmichelle]

Ah ok that makes sense. I am hyper I have graves. First appointment was fine they treated very well from the health care assistant who took my blood pressure, my weight and height, oxygen levels and pulse rate, the Dr was good at explaining everything and again the health care assistant who took the blood test. All was very relaxed to make you feel at ease. Hope all goes well for you.

[Rmichelle in reply to purple64]

Yes i got to have tsi test for graves because it can run alongside hashis- great. When is your next appointment then?

[purple64 in reply to Rmichelle]

December

[Rmichelle in reply to purple64]

Sorry just trying to gain some more info, did they make appointment for you there and then? Also if you have any probs do you ring them with regards to meds then or doc? Sorry you must feel lke whats with all the questions!!

[purple64 in reply to Rmichelle]

The DR gave me a piece of paper to take to reception and they just sent the appointment out in the post. She did tell me before I left that she wanted to see me again in 3-4 months.

[Rmichelle in reply to purple64]

Glad yours went fine. Fingers crossed for me on tuesday.xx thankyou for your help.🌻

[purple64 in reply to Rmichelle]

Good luck hope all goes well. Keep us posted x 🌺

[Clutter in reply to purple64]

Purple64,

I don't know whether G-F is helpful with Graves. Perhaps you could Google "Gluten-free and Graves Disease"?

[Valarian]

The problem being hyper is that your metabolism , and consequently heart rate, tend to run like the clappers, leaving you at risk of stroke or heart attack. There also the risk of thyroid storm, which is an emergency situation. Neither condition is great to live with, but the complications of being hyper can arise more quickly, and have greater impact - so if a hyper condition can't be controlled, many doctors would prefer to get rid of the thyroid altogether.

At least you have a diagnosis now, and there are plenty of people here with hashis who will be able to help with their experience.

[Rmichelle]

Thankyou yes. I see endo next week but my levels are moving down slowly. Do you think endo will increase carbi, is that to make you hypo. I really im confused about what will happen on appiintment.

[greygoose in reply to Rmichelle]

If you don't have Grave's, then the levels will come down by themselves. Carbi shouldn't be necessary for long.

What will happen on the appointment rather depends on the endo in question. I don't think there's any fixed formula.

[Rmichelle in reply to greygoose]

Thanks greygoose for your inputt, i hope i get a good endo. Fingers crossed and tomorrow i am going to prepare my questions in a notepad so i dont forget.😨

[greygoose in reply to Rmichelle]

Fingers crossed!

[purple64 in reply to Rmichelle]

I also did a bullet point list that they could put in my notes when I went. She said it was quite helpful. I wouldn't worry too much about appointment. If it's anything like mine it was just getting background history. When it started, anyone else with thyroid problems, do you smoke,drink etc.

[Rmichelle in reply to purple64]

Right ok i hope they sort meds etc. Did they change yours?

[purple64 in reply to Rmichelle]

Not the Carbimazole but they want GP to prescribe propranolol. Not sure about it as I'm asthmatic.

[Rmichelle in reply to purple64]

I could not take propranol made my breathing worse. I believe there are others that are more suitable.for asthma.

[purple64 in reply to Rmichelle]

Ok thanks for that will ask my GP

[SlowDragon Administrator]

Make a short list for yourself of questions to ask in large writing so easy to read while talking to endo

Most important ones at top of list

If you can take friend or family member they can help remember what is said

If not, you could record consultation on your phone

[Rmichelle in reply to SlowDragon]

My husband is coming with me and i will do a list of questions for endo, my hubby juzt suggested recording convesation, great minds think alike.xthankyou slowdragon.