Multinodular goitre/thyroid antibodies

Hi, this is my first post and I'm in need of help/advice. Judging by what I have read, I believe you guys know more than the doctors! I have 9 nodules on thyroid gland. Ive had scans and an fna. (Had to go private for these). Also have thyroid antibodies. My endocrinologist said there is nothing they can do until my thyroid gland eventually packs in. My results are normal according to doc. I have all the symptoms of hypo, my skin is breaking out constantly with eczema, doc keeps giving me creams. I really loathe going to docs as it's pointless. I'm going for another private scan soon any advice as to what I can ask/request from endocrinologist? I'm gluten caffeine and sugar free and take supplements but nothing seems to work. Thanks.

9 Replies

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  • What are your results? Can you post them here - with the ranges - and let us have a look? Doctors either don't know, or refuse to admit, that antibodies can cause symptoms. They just don't understand antibodies.

    What sort of supplements are you taking, and how much of each? Did you do any nutrient testing before starting on them?

  • Thanks grey goose! I used to drink that until I found out it contains gluten! I'll make an appt with normal doc and request results. I haven't had any nutrient testing. Do gps do this? At the moment I take vit d, probiotics, sea kelp, evening primrose ( for my skin my eczema looks like burns) . I've ordered thyro complex, adrenal extra, t convert gum guggul and red yeast rice tabs as my cholesterol was 7.7! Which I think is high ( I'm on clean diet mostly and don't eat fried foods or butter, but again doc said he wasn't concerned re result.

  • I'm sorry, what did you used to drink?

    GPs can do nutrient testing, if they're so inclined. But some of the get difficult about it. Ask, anyway.

    High cholesterol has nothing to do with eating butter or fried foods. You should, actually be eating butter, it's a super food. And if you're on a low-fat diet, that could be part of your problem.

    Cholesterol is made in the liver, because it is an essential nutrient, and the body needs it. The brain is made of cholesterol, and without cholesterol there are no sex hormones. The only reason it is high is because you are probably hypo. That's how they used to diagnose hypothyroidism before there were TSH tests. When your thyroid hormones are low, the body cannot use the cholesterol properly, so it mounts up in the blood. But, it is not a problem, it will not give you a heart attack or a stroke. That is just Big Pharma BS to sell statins. So, stop trying to lower it. It doesn't matter.

    And, if you're hypo, you really should not be taking sea kelp. You could make your problem ten times worse with that. Unless you have tested deficient for iodine, you shouldn't be taking it. It won't help.

    And you shouldn't take vit D3 without getting tested first, either. Too much can be toxic.

    What is thyro complex? That sounds like another total waste of money! These things just don't work. They're a con. Adrenal extra, try it, see how you go. it's not for everyone.

    I have no idea what t convert gum is, but I don't much like the sound of it. And guggul? Why?

    Did you start all these things at the same time? Or did you introduce them gradually? Out of all that lot, I would just keep the probiotics and the EPO. And get tested for vit D, vit B12, folate and ferritin before you do anything else. Just taking supplements haphazardly really isn't a good idea.

  • Ok thank you. The extra supplements are arriving today but I won't take them. I will also stop the sea kelp. I don't like butter! But I make my own nut butter and use a lot of coconut oil. I'll post results etc after next docs appt.

    ps grey goose is a brand of vodka!

  • So they tell me. I don't drink vodka!

  • Welcome to our forum Surejosie

    You are right - most of our members know far more than the medical profession and those who've had a similar condition to you will respond.

    You have an Autoimmune Thyroid Disease (as you have antibodies) and your gland will be attacked by these antibodies which wax and wane until you are hypothyroid. Your Endocrinologist is happy to let you wait until you have all the unpleasant symptoms instead of prescribing you a decent dose of thyroid hormones. If you are in the UK maybe your GP will prescribe and if you email louise.warvill@thyroiduk.org.uk and ask for a copy of the Pulse Online article by Dr Toft (he was President of the BTA) who advises that those who have antibodies get levothyroxine to 'nip things in the bud'.

    One thing which we learn if we have a dysfunction of our thyroid gland is to never accept 'normal', 'o.k' or 'fine'. These are absolutely meaningless when we feel awful and have symptoms which we don't even understand why we feel so awful.

    First, blood tests should be at the very earliest and fasting, although you can drink water. If you take thyroid hormones allow about 24 hours gap between the last dose and the test and take afterwards.

    Always get a print-out of your results with the ranges and post for comments if you wish. If your GP hasn't tested the following, ask for these to be done Free T4 and Free T3 (T3 is the most important). GP may refuse as they've been told the TSH is sufficient. Not the case.

    Yours is more complicated due to the goitre but your antibodies can be reduced if you go 'gluten-free'.

    Ask GP to also check your B12, Vit D, iron, ferritin and folate as we are usually deficient and that can cause symptoms too.

    When you get the copy of the Pulse Online article, make appointment with GP and discuss prescribing levothyroxine.

    If you want to see a private Endo who is more inclined to treat, email louise.roberts@thyroiduk.org.uk who has a list. If you choose a name you can put up a new post asking for information to be sent to you by Private Message as the guidelines state no names or comments can be put on the Forum.

  • Thank you Shaws for your very informative reply! I'll email and request copy of Dr Tofts article.

  • I didn't say that when prescribed levothyroxine it should be taken on an empty stomach (many take a morning dose) with one full glass of water and wait about an hour before eating. Food interferes with the uptake of levo. Or, if preferred you can take it at bedtime as long as you've last eaten about three hours previously.

  • Ok dokes! Fingers crossed my doc is open and willing to support Tofts theory

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