Advice appreciated : Hi. I've been under active... - Thyroid UK

Thyroid UK

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Advice appreciated

9 Replies

Hi. I've been under active following radio iodine for over 8 or so years. Forget !

I am taking levo 125 daily.

In the last couple of years I was diagnosed with depression. Put on antidepressants and after a battle I did get better but I'm never the same. Doc has said the 2 illnesses could be linked but with my blood test results coming back normal I'm pretty much on me on. Have seen others mention the T3 and I did mention to doc but she waved it of with a "you won't get that treatment"

Just wondering how anyone has convinced the GP to try them on T3 ? I would pay for it if it works.

I will get print out of blood results and hopefully I can understand them!

Just want to feel the excitement of life again. I do have a good life but it's seems like I'm slightly disconnected. I feel mental pain and a low rumbling of fear every day. I dont want to be alive sometimes. That is not me!

So any help on me trying the T3 or something els if it is my Thyroid condition I would be grateful...

Thanks

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9 Replies
greygoose profile image
greygoose

You don't have to understand your results. Post them on here, with the ranges, and someone will explain them to you. :)

It does sound as if you're under-medicated, which wouldn't be surprising, because very few doctors understand thyroid. And, they certainly don't understand T3! And, as a result, the NHS has allowed the price of T3 to soar so that, now, no-one will prescribe it. But let's have a look at your results and see if you actually need it. You might just need an increase in levo. :)

in reply to greygoose

Thank you! I'll get results soon and post them.....

greygoose profile image
greygoose in reply to

You're welcome. :)

shaws profile image
shawsAdministrator

Did you get your Blood tests at the very earliest possible, fasting and allow a gap of 24 hours between last dose and the test and take it afterwards. This helps keep the TSH at its highest as that seems to be all the doctors take notice of.

Your GP should test B12, Vit D, iron, ferritin and folate. Deficiencies can cause symptoms too.

Levothyroxine is inactive and has to convert to T3. T3 is the only Active Thyroid Hormone required in our billions of receptor cells. Low FT3 can cause depression. The following is a past post:-

healthunlocked.com/thyroidu...

In the UK they have stopped prescribing T3 as it has got very expensive but you can buy it privately by getting information by Private Message from members who source their own.

Put your results with the ranges on a new post for comments.

in reply to shaws

Hi, the last blood test I did fast and I think it was late morning. They told me it was a full check so I'm assuming that was for vitamins etc. Thanks for your help! Will get the results soon, very keen to see what others see in it.....

shaws profile image
shawsAdministrator in reply to

Doctors are apt to only look at our TSH result. If it is within range they think we don't need more levothyroxine.

The earlier we get the test the better as the TSH will be higher as it drops throughout the day, so we may not get an extra dose we need.

in reply to shaws

Thank you! I get on to the doc to see if I can do an early test.....

SlowDragon profile image
SlowDragonAdministrator

If you can't get full thyroid and vitamin testing from GP

thyroiduk.org.uk/tuk/testin...

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have money off offers.

All thyroid tests should be done as early as possible in morning and fasting and don't take Levo in the 24 hours prior to test, delay and take straight after.

Thanks that's really helpful....

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