Hashimotos and Pernacious Anemia: Hi Everyone I... - Thyroid UK

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Hashimotos and Pernacious Anemia

savery8753 profile image
3 Replies

Hi Everyone

I have an appointment with a Chronic Fatigue specialist next week after suffering with Hashimotos then Pernacious Anemia symptoms for ten years.

Hashis was being treated by Dr S then had to source a private local gp who was happy to give me levo based on history and symptoms.

8 years later I suspected pernacious anemia, which I self injected every other day until my symptoms were eliviated. The combination was a miracle, was thinking of going back to work.

Over the past few months I havnt been able to fund my health privately nor will my gp prescribe either of the above. Am now unable to get off the sofa, look after my kids, am in a terrible state.

Im trying to build a case to present to the chronic fatigue specialist, explaining my history, journey, findings etc. does anyone know where I can find any information on how the nhs treat people with what they believe to be chronic fatigue .

Is there any information out there, any other case studies/evidence etc I can present to help me back up what medication worked for me so I can persuade the chronic fatigue specialist to give to me.

I have always had what was considered 'normal' blood tests with every symptom under the sun. My nhs gp refused to do any more thyroid testing at the beginning of the year.

I am no longer taking anything, as the nhs gp will not prescribe for me.

I would appreciate any help.

Thanks

C

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savery8753
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greygoose profile image
greygoose

Have a look at what humanbean has to say in this thread :

healthunlocked.com/thyroidu......

savery8753 profile image
savery8753

Hiya

Thank you for your reply.

Yes, I have a bible of everything of all tests and printed everything after the stroke.

When I saw Dr S in Birmingham, he told me my thyroid swung after showing him all my bloods. His very words were, 'we're going to work on killing the thyroid off' now realise he meant I had hashimotos ( i think) literally 6 weeks on levo I was brought back from the dead.

I dont have any current test results as my gp refuses to do anything now, uses the excuse that im seeing chronic fatigue soon.

I see a lady at Citizens advice now, who has had to help me with my finances. This is ruined my life, lost my business, husband and now having to sell my home to fund my health. So at least I can start getting blood tests done privately and start all over again.

Can anyone advise if antibody tests can come back normal if either graves or hashimotos is present?

Thanks

C

silverfox7 profile image
silverfox7

Any chance you could find a new GP or try a different one in the practise to start off with?

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