T3 tablets questions...again: I saw a private... - Thyroid UK

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T3 tablets questions...again

brighter84 profile image
11 Replies

I saw a private endo last week who suggested I go back to T4/T3 again as I haven't been getting on so well on NDT.

I used to get T3 on NHS prescription but of course that is unlikely to happen now. I've got a NHS endo appt next month so I'll try my luck but it'll be slim chance.

I have a private prescription from my private endo. When I suggested ordering online he said he doesn't recommend doing that and instead going for a holiday to Austria or Portugal or somewhere and buying 6 months or a years worth of T3. Could those of you who privately source T3 online or otherwise please PM me with info?

Also, is there much difference between T3 brands? Do some get on better with some brands compared to others? When I was taking T4 I definitely didn't get on with Actavis and managed better with Wockhardt.

Thanks in advance and hope you have a lovely weekend.

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brighter84
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11 Replies
shaws profile image
shawsAdministrator

I think it all depends on the person as some don't have side effects on levo, NDT or T3 whilst others do. It is always trial and error.

EbonyEvans profile image
EbonyEvans

Good morning Brighter84,

I swear by UniPharma even though I'm lactose intolerant it doesn't seem to affect me. I've tried four other brands. But luckily I need 25 mcg so I don't have to faff about cutting up certain pills. I've heard Tiromel is stronger but has more fillers. I'll inbox you a list of ingredients for most T3 pills in case you have an intolerance to any of those.

There have been a lot of issues with some brands from ordering in the internet- hopefully someone will let you know via inbox which sites.

Be well. Ebony

Clutter profile image
Clutter in reply toEbonyEvans

EbonyEvans,

The only brand with which there has recently been an issue ordering online is UniPharma which is still in short supply in Greece.

EbonyEvans profile image
EbonyEvans in reply toClutter

Thank you Clutter, I'm aware and have inboxed Brighter84 with my supplier. 💜

Scatunga profile image
Scatunga in reply toEbonyEvans

Hi, please can you send me the list too? Tnx

Clutter profile image
Clutter

Brighter84,

What dose is your prescription for? Portugal doesn't produce T3 and imports 25mcg from France.

brighter84 profile image
brighter84 in reply toClutter

20mg. I've never been on higher than that. In fact at one point they had me on 10mg and 20mg alternating days which seems a bit silly.

Perhaps he didn't say Portugal? He was just saying I'd likely have to get it from countries which are less regulated. As I mentioned getting it from NL as I have friends and family there.

Clutter profile image
Clutter in reply tobrighter84

Brighter84,

As far as I'm aware Turkey and India are the only countries where Liothyronine (T3) is available over the counter without prescription.

You can use your 20mcg prescription to buy Sandoz Liothyronine from Austria or Thybon from Germany. There is a link to Thybon here versandapo.de/en/0/7498960/...

You may be able to order Sandoz 20mcg via one of the online importers in this link thyroiduk.org.uk/tuk/treatm...

You can ask your pharmacist to order Sandoz or Thybon via one of the specialist wholesale importers on the link above but do check the price first.

EbonyEvans profile image
EbonyEvans in reply tobrighter84

I just got back from Amsterdam and they accept faxed prescriptions. I asked in the airport and in a small town called Bussum. If you've got family there as you said. Cytomel came up on the screen. Best of luck.

brighter84 profile image
brighter84 in reply toEbonyEvans

Thank you. Am I silly for still hoping that the NHS endo I see in Oct will prescribe me T3 again?? Probably.

EbonyEvans profile image
EbonyEvans in reply tobrighter84

Go in armed with information and the difference it has had on you. I believe they cannot take it away if it's been proven to be effective. I can't remember what the phrase is. Fight for it. It's life sustaining.

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