Vision differences: Hi everyone, I have Hashi but... - Thyroid UK

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Vision differences

Christineblue profile image
19 Replies

Hi everyone, I have Hashi but not on meds at the moment, my TSH is being monitored currently 4.4. Suffer tiredness and on meds for iron and Vit d, plus Lansoprazole fir acid reflux. I have a finance role, and have noticed I keep making mistakes and not sure if it's my vision, I can't' focus clearly sometimes and feel like I gave gritty eyes especially at night. I wear glasses varivocals that I have had for two/three years, thinking of going to have my eyes tested.

Has anyone else noticed this issue.

Thanks

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Christineblue profile image
Christineblue
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19 Replies
Nanaedake profile image
Nanaedake

It could be because of a high TSH. If you have Hashimotos most people feel better when their TSH is 1.0 or a little lower, it helps to prevent antibodies attacks. Lanzoprozole interacts with levothyroxine. You should always take iron meds and any other medicines or supplements at least 4 hours after Levothryxoine. It's particularly important with iron.

Many people with Hashimotos or thyroid disease have low stomach acid which causes acid reflux and discomfort. Doctors often prescribe PPI's because they don't know about low stomach acid for hypothyroid patients and the symptoms of low and high stomach acid are similar. A lot of people find going gluten free makes a great difference. You can read more about Hashimotos and linked aspects on the Thyroid UK website. Vitamin deficiencies are linked too. Recent research suggests taking 200mcg of Selenium daily can lower autoimmune antibodies activity.

Christineblue profile image
Christineblue in reply to Nanaedake

Hi, I am not on any Levo and have reducesd Lansoprazole to 30mg daily I was taking 60mg, have tried reducing further to 15mg but symptoms seem worse, I don't understand why I have symptoms could it be because it's already low and taking the meds in lowering the stomach acid further. Or is it a symptom of Hashis.

Angel_of_the_North profile image
Angel_of_the_North in reply to Christineblue

There is a rebound effect when you try to come off PPIs, so you feel worse.

SlowDragon profile image
SlowDragonAdministrator

How long have you been taking vitamin D and how much are you taking? Is it just 800iu? If so it may be too little to raise dose.

To recheck, if GP won't agree to there's easy postal kit - VitaminDtest.org.uk - £28

Essential to also test B12, folate and ferritin. Always make sure you get the actual results and ranges

With raised antibodies (Hashimoto's) Changing to a strictly gluten free diet may help reduce symptoms and eventually start to lower antibodies. Very very many of us here find it really helps and can slowly lower antibodies, improving symptoms

thyroidpharmacist.com/artic...

thyroidpharmacist.com/artic...

amymyersmd.com/2017/02/3-im...

chriskresser.com/the-gluten...

Low stomach acid is more common than high acid. Same symptoms, completely different treatment

Lots of posts on here about how to improve with Apple cider vinegar or Betaine HCL

thyroidpharmacist.com/artic...

Christineblue profile image
Christineblue in reply to SlowDragon

Hi it's all very strange and confusing, I don't think Drs or in my experience Endo are very helpful in this matter, I ended up being told by my GP that bloods were normal but after persisting and seeing a Gastro dr, Endo Dr, and ENT Dr privately I was treated for H.Pylori, Vit d difficiency level 14, iron deficiency . Had a negative Endoscopy. I was told by Endo I had Autoimmune Thyroiditis also known as Hashi and tested positive for antibodies. No treatment for this offered as level of TSH was under 10. I read many people seem to be unwell but remain unwell on Levo with symptoms and side effects.

Thinking of trying the gluten free and supplement road now, I asked all Drs about diet and nutrition and gluten free would help to reduce antibodies was told no once you have this condition you have it.

Where could I get genuine high quality supplements from please, don't want to buy rubbish.

Thanks

Angel_of_the_North profile image
Angel_of_the_North in reply to Christineblue

Try biocare.co.uk - although there are plenty of other decent brands, inc Jarrow Formulas and Life Extension

Christineblue profile image
Christineblue in reply to Angel_of_the_North

Thank you just registered on Biocare, this looks good, please would you know the difference on the Magnesium and which one is helpful. I am considering coming of my Lansoprazole, taking Betain HCL with Pepsin and starting Selennium. Does this sound like a plan that would help my Hashi. Looking into going Gluten Free too.

Many thanks

Angel_of_the_North profile image
Angel_of_the_North in reply to Christineblue

I think most people go with magnesium malate or citrate. Betaine HCl and selenium re a good choice. It's very hard to come off PPIs, - it's probably worth searching the internet for advice as I think you have to go via things like ranitidine to counteract the rebound effect. Takes a long time.

virginias377 profile image
virginias377 in reply to Christineblue

Bulk supplements.com.They have everything

Christineblue profile image
Christineblue in reply to virginias377

Thank you, I will take a look.

silverfox7 profile image
silverfox7

You say you aren't on medication at the moment, have you ever been on thyroid meds or have you been stopped, if so why? I'm one of the 10% who doesn't have antibodies but I have read posts where ones that do have been denied medication because TSH hasn't reached 10 which is stupid anyway but the advice given was that with a antibodies you need to suppress TSH to feel better so will always need to be medicated to do this.

Nanaedake profile image
Nanaedake in reply to silverfox7

Is that antibodies silverfox7

silverfox7 profile image
silverfox7 in reply to Nanaedake

Sorry yes. Phone has a mind of its own if I write too much-corrected now thank you.

Nanaedake profile image
Nanaedake in reply to silverfox7

I know, mine too!

Christineblue profile image
Christineblue in reply to silverfox7

Hi, no please see replies above, not been treated with thyroid meds at all. I was given Vit d at 40,000 Iu weekly for 8 weeks then on 800iu daily.

How do I suppress TSH level and reduce antibodies without meds?

All feels like a merrygoround and Drs make you feel like you are some kind of hypochondriac .

I have read all the articles on the Thyroid UK site, got the Dr Toft article but you armed with all that info to Drs they won't even look at it, they don't seem interested in finding a solution or helping you feel better, feels like it's all about numbers, NICE guidelines and cost of treatment to the NHS whatever happened to quality of life and wellbeing for people.

There are hundreds of yes posting to each other on this site and well seem to believe struggling with the same issues. Do we ever get our life back I wonder.

Thanks for help

silverfox7 profile image
silverfox7 in reply to Christineblue

With you saying you were on medication at the moment I wasn't sure whether you were hoping to be or had been and stopped so wanted to clarify. If you have antibodies I understand to keep them low you need TSH to be suppressed so yes you need to be put on Thyroid medication to do that.

SlowDragon profile image
SlowDragonAdministrator

PPI and low Magnesium

gov.uk/drug-safety-update/p...

pulsetoday.co.uk/clinical/m...

Christineblue profile image
Christineblue in reply to SlowDragon

Thanks slowdragon, those are interesting articles, I am going to go and get more bloods done next week to see what my levels are doing then I can decide on taking any supplements

silverfox7 profile image
silverfox7

You have hit the nail on the head that some doctors and some Endos don't know what they are doing but thankfully many who have learned from experience are happy to share it. Many do very well in Levo but of course we don't hear about them. Some who ask for help are t managed properly, left in too low a dose is one tgstseasily improved and doctors know Verdi little about diet and minerals and vitamins. At one time as a nation we probably are better and the produce was better for us but food is now mass produced and low in many things or not so good things added to them plus being Thyroid suffered we lose nutrients easily. The internet though has allowed us to research and discuss the subject thirhvother sufferers and hopefully this is an all round improvement. When the time comes that doctors realise they have a lot to learn and do it then that would be Utopia!

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