GP says I dont need thyroxine any more - Thyroid UK

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GP says I dont need thyroxine any more

Nishe profile image
19 Replies

I am new GP says i dont need thyroxine any more despite receiving a diagnosis of hypothyroid in 2011 so i would like to know where i now stand please

thyroid peroxidase antibody 803.5 (<34)

thyroglobulin antibody 278.5 (<115)

tsh 2.69 (0.2 - 4.2)

free t4 15.6 (12 - 22)

free t3 4.0 (3.1 - 6.8)

thankyou

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Nishe profile image
Nishe
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19 Replies
greygoose profile image
greygoose

What a moron! Not only do you need it, but you need an increase in dose! You have Hashi's, so you're not going to suddenly stop being hypo. You're going to get more hypo as time goes on. Your doctor probably calls it Autoimmune Thyroiditis, but I doubt he knows what it is by any name.

I'm sorry, I don't know what you can do about it - apart from asking for a second opinion. But I would certainly advise you to do that.

Nishe profile image
Nishe in reply to greygoose

thankyou it is because of hyperthyroid symptoms my gp wants to stop it

greygoose profile image
greygoose in reply to Nishe

Well, with Hashi's it's not unusual to have 'hyper' symptoms at the same time as hypo symptoms. But, you are in no way hyper - can't the silly man read blood test results? You are hypo. Doesn't matter about the symptoms. In fact, I'm rapidly coming to the conclusion that it's a mistake to talk to GPs about symptoms, because they always misunderstand them. But, I can assure you, that if you stop your levo, your hypo symptoms are going to come rushing back at the gallop, and you are going to feel really bad. If I were you, I would refuse to stop it, and ask for an increase instead.

Oh, by the way, what hyper symptoms are we talking about?

Nishe profile image
Nishe in reply to greygoose

joint pain given codeine

feeling cold

sweats

weight loss

anxiety given ssri

tremor

diarrhoea

puffy eyes

hair loss

cramps

pins and needles in feet

pale skin

irregular and scanty periods

greygoose profile image
greygoose in reply to Nishe

Well, there's not much in the way of hyper symptoms there!

joint pain - low vit D/hypo symptom

feeling cold - hypo symptom

sweats - hypo/hyper

weight loss - hypo/hyper

anxiety - hypo/hyper

tremor - low cortisol/hypo/hyper

diarrhoea - IBS, which can be a hypo symptom

puffy eyes - hypo symptom

hair loss - hypo/hyper

cramps - low magnesium

pins and needles in feet - B12 deficiency

pale skin - low iron

irregular and scanty periods - low iron

None of the above justifies your doctor stopping your levo. He just doesn't know anything about thyroid, is totally out of his depth and feels scared. You've really got to learn about your disease so that you can guide him. I know that shouldn't be your responsibility, but that's just the way things are, these days. :(

Clutter profile image
Clutter in reply to Nishe

Nishe,

Some symptoms can be common to hyperthyroidism and hypothyroidism.

bantam12 profile image
bantam12

I saw an Endo years ago who said I didn't need Levo anymore despite me having no thyroid ! I would ditch that doctor as he clearly knows nothing about thyroid. Your antibodies are high and so is your TSH, usually best around 1 so stopping your Levo will send it higher which you don't want.

Find another GP asap.

And file a complaint against this GP as this would be considered malpractice in a perfect world.

humanbean profile image
humanbean

Hyperthyroid symptoms in people who are hypothyroid...

I'm guessing that you sweat a lot, have high blood pressure, feel jittery and shaky, suffer from anxiety, suffer from insomnia, have palpitations, fast heart rate, can't cope with stress... How am I doing so far?

All the symptoms I've just listed can be due to low nutrient levels - low iron can cause tachycardia and palpitations, and/or high blood pressure, for example. Low T3 is implicated in all these symptoms too, and so is low vitamin B12 and low folate. Low vitamin D can cause depression and bone pain.

Another factor is that if you have been under-medicated for quite a long time, or were hypothyroid for a long time and left untreated then one way the body tries to cope with too little thyroid hormone is by over-producing cortisol and adrenaline. Eventually the body can't keep producing cortisol at such high rates and levels begin to drop. It is common for people who are hypothyroid to have high cortisol or low cortisol, and both can produce very unpleasant symptoms. Once the tap has been turned on high for cortisol it can be very, very difficult to reduce the flow, even when thyroid hormones are prescribed.

Nishe profile image
Nishe in reply to humanbean

thankyou i have results of these and they are

ferritin 21 (30 - 400)

folate 3.2 (4.6 - 18.7) taking 5mg folic acid

vitamin b12 201 (190 - 900)

vitamin d 26.3 (25 - 50) taking 800iu d3

cwill profile image
cwill in reply to Nishe

Sorry but with those results and little action this is not a doctor to see again. I stand by my comment below re complaint but my you have even more to include! Angry for you and sad as usual.

humanbean profile image
humanbean in reply to Nishe

SeasideSusie gives excellent advice on vitamins and minerals. You need to read some of her replies to other people who have similar results to yours. You'll find them here :

healthunlocked.com/user/sea...

cwill profile image
cwill

Try simply laying out the facts in a letter to practice manager and senior partmenrs: diagnosed in x, dose adjusted on blood results over x years, regular prescription of x, last apt with Dr. D prescription denied. Antibodies present and high, TSH raised above 1 therefore hypothyroid mismanagement. Request prescription reinstatement and raise of dose urgently as bloods poor for patient diagnosed and medicated and if this is beyond the doctors in the practise an urgent endo appointment.

Once it is written down and labelled 'formal complaint' they tend to take notice. But as others say if the numpties can't offer a rapid reinstatement then register elsewhere quickly. Good luck and let us know how you get on.

Nishe profile image
Nishe

doctors have said ferritin below range insignificant for iron deficiency

greygoose profile image
greygoose in reply to Nishe

What can I say. They know even less about nutrients than they do about hormones - and that's saying something! What do they think the ranges are for? So that they can ignore them, if it suits? You really do have some pathetically ignorant doctors, there - not to mention dangerous! You are never going to get well with them. It really is time to find someone else. :(

silverfox7 profile image
silverfox7 in reply to greygoose

Glad you put that GG! stopped me getting too irate typing the the same! So if only they listened to themselves and if so why don't they see how stupid some comments are!

greygoose profile image
greygoose in reply to silverfox7

They're too ignorant to see that. It would be like me talking about motor mechanics. I could do it, but it wouldn't make any sense. Now, there would be a laugh!

Put in a complaint to the GMC. You will find the rules by which all UK doctors operate here: gmc-uk.org/guidance/good_me...

This"doctor" needs serious retraining and should have his licence to practice withdrawn immediately.

If you have tremors and joint pains they be connected to other autoimmune diseases such as

parathyroid problems, coeliac disease with maybe a gluten intolerance which will affect your immune system. A coeliac test may show you have a problem and a gluten free diet might

be helpful. Gluten can cause Hashimotos. Diabetes 1 is also associated with thyroid disease

and if you have not had a diabetes test and you don't want to go back to the doctor

visit a branch of Lloyds chemist which do free diabetes tests, and explain your health history.

You will then get a referral to he appropriate department., even if the test says you don't have diabetes.

As you should have a check up every year, if your last thyroid test was over a year ago,

you can ask for your annual check. If you go back try a different doctor in the practice.

It is so difficult when you are told you are ok and you are noy.

I have type 2 diabetes and get tingling in my feet, which is a type of diabetic neuropathy

so I know that it is possible for you to have diabetes as well as your thyroid problem.

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