Connection between seizures and NDT?: I have been... - Thyroid UK

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Connection between seizures and NDT?

8 Replies

I have been a passive member for a couple of years now; reading posts here almost daily and learning a lot from others, but not posting myself. The main reason for this is health problems (not related to my hypothyroidism).

Now, however, I would like some input from others when it comes to the following question: does anyone know if aluminium can cause epileptic seizures? I started having epilepsy-like seizures around the time I started taking Thyroid-S (contains aluminium) two and a half years ago. Although countless EEGs and two MRIs have not shown anything abnormal, the neurologist I was referred to decided to put me on an anti-epileptic drug anyway. It has not worked, and the doctor is now talking about trying out a different drug.

The fact that all those exams have not revealed anything has made me wonder if something could be causing those seizures...something that has nothing to do with epilepsy.

I realise this forum is not about epilepsy, but decided to post this question anyway, hoping to get some feedback from members. There is so much knowledge, experience and expertise in this forum that it never ceases to amaze me...

I should add that I have been doing great on Thyroid-S, but feel the need to look for alternative explanations for my so called epilepsy...

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8 Replies
shaws profile image
shawsAdministrator

This is an excerpt from the following link. :-

Antacids - Most of these contain aluminium hydroxide and is well known for reducing the body's ability to absorb thyroxine.

thyroiduk.org.uk/tuk/treatm...

thyroid-s.com/does-thyroid-...

epilepsy.com/connect/forums...

rootcausemedicalclinic.com/...

in reply to shaws

Interesting links, thank you very much! From the article on Thyroid-S, it seems it does not contain enough aluminium to cause any problems...I hope I can stay on it as it has really made a huge difference in how I feel; I now feel normal as opposed to when I took T4 only for over a decade and never felt quite right...I have also lost the weight I put on before being diagnosed with Hashimoto's in 2001 and never managed to lose while on T4 only...once I switched to Thyroid-S, the weight loss happened quite effortlessly. I feel so much better since adding T3. Thai NDT is a fraction of the cost of prescription NDT and, given the reported problems with Armour, Erfa etc, I'd much prefer to stay on Thyroid-S...I could give Thiroyd a try, but it seems to have more mixed reviews than Thyroid-S. Although many seem to be doing great on Thiroyd, some report it to be inconsistent or even weak. It also seems Thyroid-S contains a slow-release substance, and I like that as it does not feel to cause any ups and downs.

shaws profile image
shawsAdministrator in reply to

Everyone is different and what suits one person doesn't always suit another. Taking sufficient of any NDT usually resolves symptoms.

I am glad you feel well on Thyroid-S and we are reluctant to change once we find one that makes us feel well.

Marz profile image
Marz

How is your B12 level ? I have read that there is a connection with low B12 and epilepsy. A result below 500 can present with neurological symptoms ...

in reply to Marz

It's actually good. I've been taking a vit B supplement for the past year and both my B6, B9 and B12 levels are at the top of range (measured at the same time a month ago).

silverfox7 profile image
silverfox7

I am good on Thyroid S but after the first year I tried the alternative Thiroyd and couldn't take it. After two days didn't know what hit me! But before I took the plunge I read posts for over a year and noticed that lots were like me, could take one and not the other so stick to what works. The aluminium is very low but I can't remember which drug it was but there was a scare many many years ago now with the drug after a large amount had been causing problems and I expect that has made some people advise others not to touch it.

in reply to silverfox7

I agree, I'd be very hesitant to switch to any other brand of NDT since I am doing so well on Thyroid-S...

I read on the STTM that Thyroid-S contains Ponceau 4r lake, Tartazine lake, Brilliant Blue FCF lake and Sunset yellow FCF (aluminium). They are all food additives (colourings) and also used in cosmetics, and different countries have different rules about the maximum allowed amount in various products. Since only the free Ts in Thyroid-S are measured, and we have no idea how much of the fillers and binders each pill contains, is it at all possible that they contain more than is allowed in Europe or the US...? After all, if you take a drug daily for years, even tiny amounts add up...but I have no idea if those additives are known to cause epilepsy...?

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