The Petition “Improve thyroid treatment for millions of people. Stop the withdrawal of T3” has now been signed by over 22,600 people. It’s great but we need as many signatures as we can posibly get. We graciously welcome an international support but only the signatures of UK Residents will count when the petition goes to the Parliament.
HU Thyroid UK community has over 62,079 Members. We need help from all of you. Even if you don’t use T3 yourself, you know how it feels to have untreated or poorly treated thyroid disorder.
Can You please sign the petition and share it with others. We all have family members, friends, bosses, co-workers or employees who may be sympathetic to our cause. Maybe your next door neighbour would want to help? What about your postman? Perhaps members of your local community group would want to support the campaign? Maybe somebody from your church would want to help out?
Apart from us, people affected by thyroid disorders, and our relatives, friends etc. also individuals, groups, organisations and communities interested in the following areas may be willing to support the ITT campaign: chronic fatigue, adrenal fatigue, adrenal insufficiency, menopause and perimenupause, fibromyalgia, chronic widespread pain, chronic pain, depression, anxiety, mental health, insulin resistance, diabeties, weigh loss, weight gain, obesity, slimming (e.g. Weight Watchers, the Slimming World), metabolic disorders, endoctrine disorders, autoimmune disorders, exercise resistance, miscarriage, infertility, PMT/PMS, cardiovascular problems, hair loss, high cholesterol, anaemia, irritable bowel syndrome (IBS), feminist organisations, women’s rights, gender/sex inequality, gender discrimination, human rights, inequality in healthcare, holistic healing.
Do you know anyone interested in any of the above issues? Are you a member of any groups or communities focused on any of the above issues? Would they want to help?
UK has a population of 65,557,375 people. One person in five suffers thyroid disease. There are 13,102,600 potential supporters of the ITT campaign left out there Please help them help up!!!
Hi Kitten1978 Thank you for that, we are already virtually up to 9,000 ! Over 450 signatures this morning thanks to the help of Stop the Thyroid Madness. They have given us a regular posting slot on their fantastic Facebook page. Today its our petition, so many encouraging comments already and the post only went up at 8am !
Sorry in the time it took to type that we've gone up by nearly 100 and past the 9,000 mark !
I just said that on STTM when someone abroad was unsure whether to sign. Yes we need 100,000 for the UK parliament, but its great to have global support for our issue. No harm in getting to 200,000 !
Also you can message any of us for some copies of that poster to put up in your area and spread the word. Message myself or Katepots for some of our professionally printed posters.
But... you wrote " One person in five suffers thyroid disease."
According to a recent post by Helvella, the recent figure for diagnosed hypothyroidism is around 3.6%. healthunlocked.com/thyroidu...
In which case, even taking into account the many potential untreated/undiagnosed, 20% of the UK population seems an exaggeration to me. Are you able to substantiate your figure?
Different sources show different estimates. I definitely don't trust the estimates based on the official NHS TSH norms! They are toooooooo wide, they are a social construct and have very little justification in science (see the article by Mary Shomon on TSH norms) and many people show multiple hypo symptoms ....although, according to the norms they are meant to be "euthyroid". Bear in mind that UK population is becoming heavily overweight in comparison to other EU counties. Delayed diagnosis and poor treatment can be among the causes!
I got the figure from a recent newspaper article, which I can't put my hand to this minute. I have been meaning to change it as I realised it was a bit high, but have been mad busy since the launch, its now changed.
Hi Kitti1 C.A.T.S. (Cumbria Advisory Thyroid Service ) did a small survey a few years ago. We did not get all the GP 's to respond so in some ways the survey was not a true picture of the real situation.However we found that in some area's of Cumbria as many as 4 out of 10 patients had Thyroid problems. When I asked a Doctor about this his reply was "well.there are a lot of old people in Cumbria "
Thank you moyramm If doctors had the knowledge, experience to recognise the symptoms and willingness to use them for diagnostic purposes, if the THS norms were lower and if the general public knew more about thyroid disorders and their symptoms ...the number would be much, much higher!
I quite agree Kitten1978 . Doctor's need much more training on Thyroid issues. We did a big campaign to raise awareness in the community but there is still.lots more needs doing x Moyra
Looking for people to display posters, as above... currently no cost...so please contact ITT if you are able to display any.
Close to 10k today. I have signed shared tweeted RTd and holding off on selling my sole😂🤣
Great to see the support and hope many many more WILL get behind this amazing thing that is happening. Kitten1978 great post Kitti1 we think you've done something very bold but necessary, its been too long swept under the carpet.
Can I just say, because I've noticed I gathered some followers a a result of this post, that Kitti1 is the brave woman behind this campaign. I'm just an ordinary trooper
However, the begging letter for a donation which appears automatically after signing the petition is in my opinion a bit of a cheek.
I have selected the charities I support and don't appreciate being made to feel guilty when I do not select an amount to donate. The work the thyroid charities do to fight on my behalf is wonderful, which is why I buy Christmas cards and other bits and bobs to support them. However, I don't appreciate being pressured into donating, this approach has the opposite effect with me.
mauschen the 'begging letter' is nothing what so ever to do with the ITT campaign, that is solely there to fund Change.org. It is them you / who ever is donating to and Not our cause. I'm afraid its not something I, as the person that started the petition, had any control over. Many thanks for signing.
I didn't say it was anything to do with you or anyone else Kitti1. I cleary stated the appeal for donations appeared automatically. My comments did not lay any blame, they were only intended to vent my annoyance at the pushy nature of the appeal for donations.
Thyroid.org is an American Thyroid Association webpage. It's good to have an international support but, for the petition to be considered, we need 10,000 UK votes (we have over 12,000 votes but some of them are from outside of the UK), and for the petition to be discussed in the Parliament we need a minimum of 100,000 of UK signatures.
International singatures are good IN ADDITION to UK signatures, I'm afraid.
I had already signed and shared. Hoping the campaign makes a difference. Have the organisers thought about contacting the national or local Healthwatch groups for support? They may be able to pass on via a Newsletter or email distribution to patients.
Kitten1978, Your petition is doing well. I'm very sceptical about your assertion though:
We need 100K of UK signatures to make sure this petition is discussed in the Parliament.
Are you sure about this? I didn't think this was possible because it is a Change.org petition and not a Government E-Petition. Can you point me to some info that corroborates your statement please? Am more than happy to be proved wrong
It doesn't matter whether it's gov.uk petiton or change.org petition.
There was a query from one of ITT members whether we change.org petition could be discussed in the parliament at all and another ITT member, with more knowedge about those issues than I have, replied that yes, change.org petition can be discussed. The only difference is that Kitti1 , who created the petition, will need to persuade her MP to take the petition to the Parliament.
We couldn't have used the gov.uk petition as gov.uk petitions are still closed (!) due to the recent general election. The previous gov.uk petition advertised on HU, which asked for more funding for the research on the treatment of thyroid disorders, was closed prematurely only because of the general elections. We certainly wouldn't want this to happen to this petition!
Many thanks for your explanation. It is so very frustrating that the government e-petion facility is still not available
The link you point to does of course only refer to the government e-petition. But ITT have obviously done the research to confirm without doubt that the change.org petition is still valid (with the right numbers!)
I found it even more frustrating when I realised that the petition, which reached 12,114 signatures, was closed only because of the general election wrrrrrrrr... I'm glad Kitti1 didn't start this one on the gov.uk webpage.
This petition will be valid with the right numbers of UK signatures. We are delighted with an international support the ITT campaign is receiving but only UK-based signatures will count in the UK Parliament...so we need to keep going. There is a lot of work ahead of us and every single signature counts!
I've posted today on TUK a reference to a big article by Dr Henry Lindner a US advocate of combination T4/T3 or T3-only therapy. I sent the article to Louise Roberts at TUK for members to access. Perhaps you could access it to bolster your case. BTW I have signed.
THANK YOU very much indeed. I've just emailed Louise asking her for a copy of the article. Once I have it, I'll share it with ITT members. Every little piece of an evidence helps with our letters! THANK YOU very kindly for your support We appreciate it very much : )
We need 100K of UK signatures to make sure this petition is discussed in the Parliament.
If every person who signs can get just 2 other people to sign and and keep that pattern going, we will be able to reach 100k.
PLEASE SHARE THIS PETITION!!!
The petition is close to 18k signatures. The recent article in HSJ with information from the ITT campaign and Lyn Mynott will help us get the results we all want and know are needed, better thyroid treatment and a choice of medications.
I know I'm being booooooring by reminding people but we are desperate to get 100,000 of UK-based signatures. The pressure is on...Thank you for your support and patience!!!!!!
If you're reading this thinking 'this doesn't affect me, I'm doing ok on levo and starting to feel well' and you don't sign, please think again.
2 months ago I felt fantastic, like my old self, on what I thought was my optimal dose of levo and I wrongly started to think I might be one of the lucky ones.
I now realise that for me levo alone will never be enough. So I'm going to try NDT - sometime soon I'll post a bit more. But for now I urge you to sign this petition, you really don't know if you'll need more than just levo.
Dr Hoenderkamp's story shows that a person may be o.k. on levo for years...until they are unable to tolerate T4-only treatment and may need T3 to survive: youtube.com/watch?v=QJqWKwI...
Kitten1978 I'd forgotten about Dr Renee's YouTube video. It's really informative, she is hypothyroid herself and she has been supporting campaigns to stop the withdrawal of T3.
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Perhaps members of your local community group would want to support the campaign? Maybe somebody from your church would want to help out? 
